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Posted on Jun 1, 2019, 4:56 am
#31

Hi everyone, we've made it to day 8. This is also day #3 of lengthening. There's been some good progress but what frustrates me is that I am entirely dependent on my walker. I've seen videos of people walking completely unassisted and it feels that's still a ways away for me. I guess you could say my walk on the walker is improving by a bit, but it still takes a while to transition from the bed to the walker, and from the wheelchair to the walker. I really didn't see myself using a wheelchair at all past the 3 week mark, so I have a long way to go with physical therapy this week if I want to reach that objective. Pain wise things are okay. I cut out the long term pain medicine, the morphine, and I'm only taking half of a dose of the Oxycodone. Even a short walk around my hotel with the walker has me absolutely worn out by the time I return to the bed. I'm still very tired particularly in the morning. I have to remember that only 1 week ago I had both of my legs broken in half.

Quote from: ActionSpeaks on May 31, 2019, 08:47:04 AM[...] I will feel very nervous overall during consult. I tend to get quiet/introverted when I'm nervous so I'll be sure to have information like plans during recovery etc handy so I can talk about that. Great information also on meds!

[...]Oh and thank you for saying that the actual LL surgery is longer than one hour. I saw this on the LimbplastX website and that gave me pause as other doctors (Paley, Mahboubian etc) take at least 4 hours.

[...]You mentioned $73k as the amount you paid, which is really great. I am undecided whether to have the consult (also going for Stryde/femurs) now or wait longer and save more in case I need any of the additional surgeries like iliotibial band release etc.

[...]I was rereading your diary again tonight to see how long you were in wheelchair before moving onto walker, but it seems you were on walker almost immediately and just used wheelchair for transit/trips? Anyway, your diary is great and really you are so brave. You are well on your way to your goal and hope you are feeling better and better each day.

Hello again ActionSpeaks! I hope you don't mind that I snipped parts of your comment to be sure I responded to each part.

Be yourself during the video consult! Good questions are great, it shows you've done your research. Dr. D. loves to go on about the process itself and loves to share his philosophy. Here's something I did to prove this was something I was serious about. I told him I was wearing lifts as we talked and I pulled the lift out and showed him while we were on video chat.

I don't know where they got that 1 hour surgery number from but that is just plain wrong. I figured there's no possible way, and this surgery proved it. Parts of their web site are a little bit optimistic (especially in areas like how many weeks it will be til you're walking unassisted, etc.). I will be sure to share my thoughts with them and hopefully encourage them to change that stuff. I don't think they're intentionally misleading anyone, I just don't think they've had enough Stryde patients to realistically know certain things.

The $73,000 figure includes the IT Band release. They gave me a good discount on PT because I'm going to do most of that at home. You do need to factor in transportation costs between PT sessions, which as I learned today, isn't exactly cheap (~$27 each way on a wheelchair accessible taxi).

Thank you so much for the nice words! I used a walker immediately in the hospital. Wheelchair is only for transport by car or going long distances. I do NOT want to get comfortable using the wheelchair.

Quote from: BeYourBest on May 31, 2019, 03:34:17 PMGreat detailed diary, Vertical Push!

I look forward to reading more. Wishing you the best on your journey.


Very encouraging words, BeYourBest! I truly appreciate it and will keep this diary updated.

Quote from: TheAlchemist on May 31, 2019, 01:22:13 PMThanks for the reply vertical push!

Another question, can you describe time management and mood management approach? I'm conditioned to being fairly active throughout the day (working, meetings, gym, hobbies, etc.) and I'm trying to mentally prepare myself for losing mobility and sitting/laying in one position for the majority of the day with nothing urgent to do......

Instead of fearing it I'm trying to plan how to use the time effectively.....how are you spending your time these days? I have a growing list of things to do (books to read, musical instruments to learn, online courses/credits I can apply to my career, etc.) What has worked for you? Is there even an opportunity to do this in between the pain, lack of sleep, and PT? 

Thanks


Hi again, TheAlchemist! I was fairly active prior to surgery, going to the gym 4 days a week or so. There is none of that after surgery, at least not the first few weeks. PT is your "activity" for the day and it takes everything out of you. I can't even force myself to wake up early enough to attend the hotel's continental breakfast (although I will try harder tomorrow). I find more alert time towards the end of the day which is usually when I update my diary and reach out to friends. I think this will improve in future weeks though. I'd love to use this time to learn to play the guitar. The pain isn't the biggest negative factor. It's the boredom of laying in one spot. The medicine does hurt your attention span so it's hard to stay focused on one thing for very long. I downloaded some video games to my computer (I'm not a big video game player) but haven't even started playing them yet. I keep telling myself this is the end of week 1, so it'll get easier from here. I sure hope that's right! To give you an example, I got some of the best work news today I could've possibly received and I've been waiting at least 6 months for this. Soon as I got that news I took an hour nap. I'm happy about it, but there is no celebration right now haha. Your mind is focused on the recovery process.

Quote from: Kenda on May 31, 2019, 04:30:32 PMThank you for the reply Vertical,
But did you do a Consultation with Dr Paley or Dr Rozbruch before choosing this Dr ? & did u ever think of saving a bit more & going to paley or paley isnt that special anymore...

Also, whats your goal for femurs ....the full 8 cm or what?


Hi Kenda, I reached out to Paley and Dr. M in LA. I have no regrets going with Dr. D., but I should've also reached out to Dr. Rozbruch because I believe I read somewhere that someone was able to successfully use insurance to cover part of the surgery. Paley is just too expensive and when I contacted Dr. M it was before he lowered his prices. Dr. D. was the cheapest by about $20,000 or so. No brainer decision for me.

Do your due diligence - if Dr. D. and Dr. M. are closer in price it would make the decision a little more close. I hope this first Dr. D. diary gives people some datapoints to use when weighing the options. I went into this almost completely blind -- but can confirm I still have two legs attached! My Vertical Push with Dr. Debiparshad (Strydes in Femurs)

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Posted on Jun 1, 2019, 6:00 am
#32

Hi veriicalpush

I am so glad that you are doing fine.  Yes, you are doing just fine!  haha  Don't expect too much at this moment.  As far as I know, none was able to walk without walker around a week.  That is simply impossible and not even recommended.  Videos you have seen are not probably walking after 1-2 weeks of surgery.  The early time you can expect to walk without an aid is probably 3 weeks which is already great.  You may start to walk with crutches by now or a few days later and continue to practice walking with crutches 1-2 weeks before walking with a cane.  By 3-4 weeks, you may expect to walk with a cane.  Once you walk like that, you can continue to walk like that for a while until the last moment which is generally somewhere 5-6 cm.  This is a general progress so some people do a little better and others do worse.  But in the end, they all do similar.  I think stretching is more important than walking although both are very important. 

For Alchemist, I was also thinking to use my time during lengthening.  But it didn't happen and perhaps can't happen.  It is just so hard to do anything meaningful during lengthening, especially if you are alone.  All things like eating, washing, getting/preparing food, or even pooping become much tougher.  You also need to spend quite some time for PT.  In my case, I had overall quite some pain during the whole process so I couldn't sleep very well and was so exhausted for a whole day.  So I recommend you not to expect too much during this time and just focus on lengthening and going home.

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Posted on Jun 2, 2019, 7:29 pm
#33

Quote from: Ghostfish on June 01, 2019, 06:00:54 AMHi veriicalpush

I am so glad that you are doing fine.  Yes, you are doing just fine!  haha  Don't expect too much at this moment.  As far as I know, none was able to walk without walker around a week.  That is simply impossible and not even recommended.  Videos you have seen are not probably walking after 1-2 weeks of surgery.  The early time you can expect to walk without an aid is probably 3 weeks which is already great.  You may start to walk with crutches by now or a few days later and continue to practice walking with crutches 1-2 weeks before walking with a cane.  By 3-4 weeks, you may expect to walk with a cane.  Once you walk like that, you can continue to walk like that for a while until the last moment which is generally somewhere 5-6 cm.  This is a general progress so some people do a little better and others do worse.  But in the end, they all do similar.  I think stretching is more important than walking although both are very important. 

For Alchemist, I was also thinking to use my time during lengthening.  But it didn't happen and perhaps can't happen.  It is just so hard to do anything meaningful during lengthening, especially if you are alone.  All things like eating, washing, getting/preparing food, or even pooping become much tougher.  You also need to spend quite some time for PT.  In my case, I had overall quite some pain during the whole process so I couldn't sleep very well and was so exhausted for a whole day.  So I recommend you not to expect too much during this time and just focus on lengthening and going home.

Ghostfish, thank you for the amazing words of encouragement my friend. You are, of course, 100% correct in everything you wrote. In fact, after writing my last message I feel myself walking a little easier in the walker and getting up/down is getting much faster. I think things will continue to get better and I can't wait for that to happen! Part of the reason it has been so difficult is because I'm not using any aid/caretaker. That means I do need to push myself quite a bit. There are many times I feel I've already pushed my body to its limit yet I need to get up for some reason. As soon as I get to the point where I feel I can walk without a walker I'd be happy to post a video showing my gait - but like I said I feel there's some time to go before we get to that point.

I have seen several posts discussing things getting more difficult around the 6cm point. I'm curious if that means people are regressing back to walkers/wheelchairs around that point or if it simply means they're feeling tighter. I really don't want to regress and I also don't want to give up! Going the full 8cm is pretty important to me since I won't do this surgery ever again and I don't want to have regrets years later about giving up too early.

In 10 days from today I'll be heading home to continue lengthening! I cannot wait. I'll get another round of x-rays on June 12 and I will post those as soon as I get them in my hands.

What an experience this has been so far - it truly feels like a battle in every sense. If I were to say which parts have been the most difficult then it's clearly days 2-3 (especially transport) - every day afterwards has GRADUALLY become easier.

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Posted on Jun 2, 2019, 10:48 pm
#34

Vertical, may i ask where are you staying in Las Vegas?
Is it the Hotels listed on Limbplastx website or an Airbnb or what exactly because honestly it’s impossible to find a airbnb thats not above 3k per month in this area!

2) Do the hospital staff that do the PT everyday offer transportation to and from the hospital or how does this work? Do you take Uber?

3) How long are you staying in Las vegas ? Or are you going home to lengthen by yourself?

 

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Posted on Jun 3, 2019, 12:57 am
#35

Quote from: verticalpush on June 02, 2019, 07:29:07 PMI have seen several posts discussing things getting more difficult around the 6cm point. I'm curious if that means people are regressing back to walkers/wheelchairs around that point or if it simply means they're feeling tighter. I really don't want to regress and I also don't want to give up! Going the full 8cm is pretty important to me since I won't do this surgery ever again and I don't want to have regrets years later about giving up too early.
Hi verticialpush
Actually you are amazing that you have been doing this all by yourself.  My wife stayed with me for the first 2 weeks and left for her job.  It was so hard for me to handle everything by myself.  Dr. Paley probably doesn't even allow you to be alone for the first 2 weeks so if you come alone, you need to hire a caregiver for the first 2 weeks.  but I may be wrong about it. 

Everyday life is not easy with two painful broken legs.  Eating, washing, cleaning dishes or whatever is so hard.  As time goes by, you will be quite exhausted mentally and physically.  Also you will miss your family and friends a lot and may become to regret to fall into CLL journey.  Around 2 months, many people feel that way and tightness gets worse and worse too. Some patients didn't do any PT and couldn't stretch legs so they had to stop lengthening at 5 cm or less.  So you need to stay focused and determined.  And be positive and optimistic.   

After 6 cm or so (It is different for every patient.), most of people feel quite tightness.  It gives you quite some discomfort and some pain too.  But it is not like unbearable.  Most of people I know went through this moment and were able to push a little further.  As for regressing, you probably do not need to go back to walker or wheelchair.  However, I also want to tell you that regressing is not that important actually.  It doesn't mean you can't lengthen or you have to give up on this. I used wheelchair almost until the end.  But it was just fine and I was able to lengthen as I planned. Of course, I walked a lot too as much as I could.  So I think you don't really need to give any symbolic meaning to walker/wheelchair.  They are just tools for your need.  You just need them for a short period of time during lengthening.  With that said, you probably can walk until the end of lengthening.  It should be doable with a cane.  I strongly recommend you to use a cane.  It is because of the safety.  You don't really need to rely on the cane but better to bring it to walk until you feel really confident to walk. 

Take care!

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Posted on Jun 3, 2019, 2:22 am
#36

Quote from: Kenda on June 02, 2019, 10:48:44 PMVertical, may i ask where are you staying in Las Vegas?

Is it the Hotels listed on Limbplastx website or an Airbnb or what exactly because honestly it’s impossible to find a airbnb thats not above 3k per month in this area!

2) Do the hospital staff that do the PT everyday offer transportation to and from the hospital or how does this work? Do you take Uber?

3) How long are you staying in Las vegas ? Or are you going home to lengthen by yourself?
(1) Absolutely, Kenda! I'm staying at the Hampton Inn on (3245?) St Rose Parkway. That is one of the hotels listed on their web site. Overall I would say this hotel is meh. One morning I was hungry and asked if anyone would mind putting together a box of breakfast for me, and while they obliged to do that, they made it clear it was a one time deal. They also said they wouldn't mind delivering ONE order from Amazon or Walmart if I wanted things shipped to my room. I made friends with some of the folks working the night shift -- I split half of a pizza I ordered with Adrian the night clerk and he is very generous about opening the door for food delivery now! My Vertical Push with Dr. Debiparshad (Strydes in Femurs) But as they mentioned a few times "this is not a full service hotel".

I'm switching to the Homewood Suites (South Henderson) on Thursday (10450 South Eastern Avenue Henderson Nevada 89052). According to Dr. D., this hotel has some special deal with Limbplastx and they'll do grocery runs with their hotel staff and will only charge you the actual cost. I'll note this hotel is also NOT full service, but it sounds like it'll be a step up. It also has a shuttle van but the shuttle is not wheelchair accessible. I'm hoping that by Thursday I won't need to be using the wheelchair to go to PT, however.

I'll be honest - I see very little advantage going with one of the three recommended hotels. You are only going back to LimbplastX one time after surgery - and that's to get a fresh set of x-rays before going home (if you plan to lengthen at home). I could've stayed at Sunset Station Casino, paid 1/3 of what I'm paying here, been physically closer to physical therapy where you go 3 times a week (Optimal Physical Therapy @ Paseo Verde Parkway #200, Henderson, NV) and would've had the ability to order room service and not mess around with uber eats / door dash, etc. If you plan to stay in Vegas for lengthening then the proximity to LimbplastX or the PT place matters even less. You can score some great hotel deals in Vegas.

(2) You're on your own for transportation and some days that can be quite a process getting from the hotel to PT. Uber and Lyft don't have wheelchair options turned on in Las Vegas yet so your only option is an app by the local cab companies called "Kabit". You can select a wheelchair accessible cab through that option. But it's not nearly as good as Uber. More than half of my pick up requests are cancelled until one finally isn't. It works in a pinch but I'm going to try to forego the wheelchair tomorrow or Wednesday and use a regular Lyft/Uber.

(3) I'm leaving Las Vegas in 10 days. I do feel myself getting quite a bit stronger the past couple of days so if everything continues at this rate that will be the perfect amount of time to have spent here. I'm dreading the logistics of how many bags I'll have to pack on the airline and then getting across the airport, but they have wheelchair service which I'll likely end up using.

Quote from: Ghostfish on June 03, 2019, 12:57:03 AMHi verticialpush
Actually you are amazing that you have been doing this all by yourself.  My wife stayed with me for the first 2 weeks and left for her job.  It was so hard for me to handle everything by myself.  Dr. Paley probably doesn't even allow you to be alone for the first 2 weeks so if you come alone, you need to hire a caregiver for the first 2 weeks.  but I may be wrong about it. 

Everyday life is not easy with two painful broken legs.  Eating, washing, cleaning dishes or whatever is so hard.  As time goes by, you will be quite exhausted mentally and physically.  Also you will miss your family and friends a lot and may become to regret to fall into CLL journey.  Around 2 months, many people feel that way and tightness gets worse and worse too. Some patients didn't do any PT and couldn't stretch legs so they had to stop lengthening at 5 cm or less.  So you need to stay focused and determined.  And be positive and optimistic.   

After 6 cm or so (It is different for every patient.), most of people feel quite tightness.  It gives you quite some discomfort and some pain too.  But it is not like unbearable.  Most of people I know went through this moment and were able to push a little further.  As for regressing, you probably do not need to go back to walker or wheelchair.  However, I also want to tell you that regressing is not that important actually.  It doesn't mean you can't lengthen or you have to give up on this. I used wheelchair almost until the end.  But it was just fine and I was able to lengthen as I planned. Of course, I walked a lot too as much as I could.  So I think you don't really need to give any symbolic meaning to walker/wheelchair.  They are just tools for your need.  You just need them for a short period of time during lengthening.  With that said, you probably can walk until the end of lengthening.  It should be doable with a cane.  I strongly recommend you to use a cane.  It is because of the safety.  You don't really need to rely on the cane but better to bring it to walk until you feel really confident to walk. 

Take care!

Thank you Ghostfish! Doing this by myself seemed like an INSANE idea. I had a few options on Sunday I was going to consider if I wasn't feeling 100%, but this ended up working out. Not having someone here with me forced me to use my walker when I know I wouldn't have used it. By now, more than a week post-surgery, I feel a caretaker would be a luxury item for almost Stryde patient. I have no problem getting around my hotel with the walker and transferring between wheelchair/bed/couch/walker doesn't take nearly as much time as it used to. Practice makes perfect! Something else you wrote couldn't be more true - be positive and optimistic! I find my mental attitude has so much to do with my progress.

Thank you so much for the preview of what to expect when I return home and continue lengthening! I'll make certain to continue to use PT when I get back. I've come this far - I have no intention to quit early if I can help it! I will need to buy a pair of crutches and a cane to complement my walker, but I hope I won't need a wheelchair once I return home. I'm so glad to hear that many of the people you knew did not need to go back to a walker or wheelchair as they pushed past 6cm! I'm hoping to get to the 8cm mark but I would be alright if I needed to stop a little shy of that.

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Posted on Jun 3, 2019, 11:07 am
#37

Wait so Did Dr D tell you how to lengthen and by how much , will he monitor your progress?

& if you are leaving vegas, i dont know where are you going but how will you do PT ? Will you pick any center in your home state ?

3 times a week , oh i thought PT was everyday.


The thing is i am not a US resident and its a must that i stay in the city i do the surgery in, because what if the ERC broke, what if complications happen, what if i need It band release, what if and what if,...... so everything count on the Dr, thats why i dont want no money hungry careless Dr, i want someone that checks up and monitors the lengthening process consistently in order for me to reach full 8cm gain in femurs, i dont know if Dr D is careless or what......but your diary is so useful and it will show if he is worth it or not...


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Posted on Jun 4, 2019, 1:04 am
#38

Friends --

Getting to and from PT with a wheelchair using the only wheelchair-friendly app I'm familiar with (Kabit) is almost impossible.

I will not attempt to go to PT with a wheelchair again. Sadly, wheelchair transportation in Las Vegas leaves much to be desired. If you rely on it to get to/from your PT, prepare to wait a while if it does end up working. But more often than not it won't work. I present for your viewing pleasure my entire riding history with the Kabit app. None of the cancellations were from me, it was because they couldn't find a ride within 10 minutes. The only success I've had with Kabit has been calling the number (702-551-5151), but even that failed me today. Today I was fortunate to get a Kabit wheelchair accessible ride there but waited about an hour while the cab company was "searching" for a wheelchair compatible taxi. I had enough and called a Lyft. The Lyft driver was nice enough to fold my wheelchair which barely fit in her trunk and I got in the car.

If you're planning to do this on your own, do factor this in. There are specialized medical transport companies that will gladly transport you for a cool $100 unless you plan to use insurance, but file all of this under things to consider before surgery. You don't want to be worrying about this stuff when you're in pain! If you have a caretaker that drives then this doesn't apply.

Okay, soapbox off. Onto happier news. As of right I am 6.66 mm taller than I was before coming to Vegas! Walking with the walker is getting easier. I don't use the urinal anymore except if I have to pee in the middle of the night (I'll have to admit this is going to be a tough habit to break even when I can easily walk after I get back home!  My Vertical Push with Dr. Debiparshad (Strydes in Femurs) ).

Teresa/Ronnie check on me every day. Ronnie was going to drive me to Costco to get the next round of pills (fortunately I won't be out for another few days because I've been taking half doses). Apparently he was bit by a dog this weekend so I told him not to worry. I change hotels on Thursday to their main recommended hotel. Next Wednesday I see Dr. D. for a follow up and x-rays.

Time at the hotel is passing by just fine. I've become closer with some older friends of mine.

Quote from: Kenda on June 03, 2019, 11:07:59 AMWait so Did Dr D tell you how to lengthen and by how much , will he monitor your progress?

& if you are leaving vegas, i dont know where are you going but how will you do PT ? Will you pick any center in your home state ?

3 times a week , oh i thought PT was everyday.


The thing is i am not a US resident and its a must that i stay in the city i do the surgery in, because what if the ERC broke, what if complications happen, what if i need It band release, what if and what if,...... so everything count on the Dr, thats why i dont want no money hungry careless Dr, i want someone that checks up and monitors the lengthening process consistently in order for me to reach full 8cm gain in femurs, i dont know if Dr D is careless or what......but your diary is so useful and it will show if he is worth it or not...

Dr. D. does not directly monitor my progress between scheduled appointments with him. The Nuvasive ERC machine keeps track of that stuff and won't let you lengthen more than .33mm in a session, and no more than 1mm in a day. It resets the counter at midnight, so if you miss that last session then you have to wait till the next day. The machine has no WiFi built in it so as far as I know Dr. D. can't communicate with the machine, but him wanting to see you every 2-3 weeks for x-rays will tell him if there's a problem with the machine (or with the user!).

Dr. D. is going to call some PT providers in my city when I leave. He's done that for past patients who left. For example, they have a really good PT they worked with in the Austin Texas area. He will speak directly to the PT and tell him or her what exercises he wants them to do with you.

If you are coming from out of the country I assure you that you'll be alright! Las Vegas is one of the top international destinations. But to repeat my advice earlier in the thread - there's almost no need to stay in one of the pre-recommended hotels. You might stay closer to downtown Las Vegas and find that the service industry employees cater more to international visitors closer to the strip/downtown than they do here in Henderson. They will certainly speak more languages than they speak here at the recommended hotels! If you stay in Vegas I'm sure Dr. D. will check on you every 2 weeks for x-rays. He also calls the PT clinic to make sure everything is going well with that. Yes, you only go to PT 3 times a week.

So far I have absolutely nothing negative to say about Dr. D. or the surgery. But I DO have some minor complaints about the hotel arrangements and transportation between PT sessions.

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Posted on Jun 4, 2019, 8:03 am
#39

Hi Vertical Push, it sounds like you are doing amazingly well considering things like transportation or lack of, hotels, food deliveries, and on your own too! You definitely have a strong and brave character. And Dr. D does sound very thorough, caring and professional, and his staff sound great too. Thank you for answering my previous questions, that is really helpful. Also for the location of PT clinic in Henderson in one of your posts~ I have checked out some vacation rentals/rooms nearby, like within a mile or less, and hope to circumvent those transport issues as much as possible. There are also some more affordable hotels near PT vs hotels listed on LimbplastX site. Now that I know the latter don't really have wheelchair accessible transport they are off my list. I hope each day is still gradually getting easier for you, and good luck with the 6cm 'hump', and I have no doubt that one day very soon you will reach your goal.

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Posted on Jun 5, 2019, 5:08 am
#40

Well everyone we've reached day 12! So far the pain remains the soreness type you'd experience after really pushing yourself at the gym. It occurs in one of two spots - (1) about a 6 inch path behind my kneecap up to behind my leg, or (2) on the sides of my femurs. The very sharp pain I felt on the top ends of my femurs when I moved my legs is completely gone. I haven't felt that in at least 4 days. Pushing myself seems to be doing the trick. It is NOT easy but there's no doubt it's helping me to recover faster than I imagined I would.

Quick *TMI* story time. Many people stress the importance of stool softeners. You absolutely do need to take those. Every other day or so I also take a dulcolax. I took 2 last night, didn't get much action from it today so figured I'd take a third. I'll spare you the details but it was not one of my smarter decisions.

Sleeping is difficult. I'm a side sleeper and while I'm getting closer to the point where I can comfortably rest on my side for a while, eventually it becomes too uncomfortable. I've tried looking through other diaries to see when they could sleep on their sides - looks like I have a little ways to go.

The next set of x-rays come on the 12th. I'll ask Dr. D. to also get a video of me walking for me to post here.

Quote from: ActionSpeaks on June 04, 2019, 08:03:24 AMHi Vertical Push, it sounds like you are doing amazingly well considering things like transportation or lack of, hotels, food deliveries, and on your own too! You definitely have a strong and brave character. And Dr. D does sound very thorough, caring and professional, and his staff sound great too. Thank you for answering my previous questions, that is really helpful. Also for the location of PT clinic in Henderson in one of your posts~ I have checked out some vacation rentals/rooms nearby, like within a mile or less, and hope to circumvent those transport issues as much as possible. There are also some more affordable hotels near PT vs hotels listed on LimbplastX site. Now that I know the latter don't really have wheelchair accessible transport they are off my list. I hope each day is still gradually getting easier for you, and good luck with the 6cm 'hump', and I have no doubt that one day very soon you will reach your goal.
ActionSpeaks, thank you for such a positive message! One of the best features of keeping a diary is that we can encourage each other to keep pushing. I'm sure many of us don't tell too many family members or friends so in some ways we're the best support group we have!

Dr. D. has the deal with Optimal Physical Therapy but I specifically remember him saying you can choose any of their locations. The one here in Henderson is closest to the recommended hotels, but if you stayed closer to the strip you could use their central Las Vegas location (1341 S Rainbow Blvd, Las Vegas, NV 89146). If you've found some good affordable hotels close to the "main" Optimal Physical Therapy location in Henderson that offers wheelchair transportation go for it! Truth be told, it's frustrating not having a good option for wheelchair accessible transportation but it is something else FORCING me to push harder than I would've. Tomorrow I'll go to PT using just my walker, which is going to be a major challenge. I might use my wheelchair to wheel down the hallway to the hotel reception desk and ask them if I can leave it there until I come back - that would cut off a good bit of using the walker.

I really wish there was an "all inclusive" package where all of these details such as transportation, a caretaker, and groceries are worked out for you. AFAIK no U.S. doctors offer this but I think I've seen this from some international doctors.

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