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Posted on Jul 7, 2014, 11:02 am
#101
Hehe I had a gut feeling that you'd pick Dr.Parihar and do externals No More Mal-Kahn-Tent - External Tibias - Dr Parihar Thanks for pioneering CLL with Dr.Parihar. He seems like the best option in India. Your experience will be invaluable for prospective LL'ers who are considering Dr.Parihar or India.
Stay strong buddy, you will be taller in no time.
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Posted on Jul 7, 2014, 3:32 pm
#102
How much does Doctor Shah charge for Precice?
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Posted on Jul 7, 2014, 5:42 pm
#103
Quote from: TheRisingShorty on July 07, 2014, 11:02:42 AMHehe I had a gut feeling that you'd pick Dr.Parihar and do externals No More Mal-Kahn-Tent - External Tibias - Dr Parihar Thanks for pioneering CLL with Dr.Parihar. He seems like the best option in India. Your experience will be invaluable for prospective LL'ers who are considering Dr.Parihar or India.
Stay strong buddy, you will be taller in no time.

Thanks. The experience has been going well so far and I'm hoping it stays that way for the duration of treatment. Dr Parihar was best for me, but if someone wanted to go to a doctor more willing to do other methods like plate fixation, or believes that releases are always necessary for CLL, then I think Dr Shah would also be a good option to check out. Dr Dhawan also appeared to be technically good. Dr Parihar, Dr Shah, and Dr Dhawan all vouch for each other too, so you're probably safe with any of the three.

Quote from: Gichelu on July 07, 2014, 03:32:49 PMHow much does Doctor Shah charge for Precice?

His external only price is $8,000 and LON is $9,000. I didn't ask him about the cost of Precice, but I imagine it would be the $30,000 for the nails plus the surgery fee. So I'd guess between $38,000 - $40,000 USD, accommodation excluded.
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Posted on Jul 7, 2014, 8:08 pm
#104
I wish you all the best luck Kilokahn, thank you for this very detailed and well written diary.

One thing i wonder about, what was the specifics of the plate fixation you discussed with the surgeons that made you decide not to do it and go for exfix only instead? Was it simply because that there isnt enough patients who have done it already and thus a lack of knowledge of the results?

Also has the Dr Parihar given you any kind of estimate as to how long you will need to wear the frames? Like if he had some kind of average time frame based on his former patients.

Thank you again  No More Mal-Kahn-Tent - External Tibias - Dr Parihar
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Posted on Jul 7, 2014, 8:30 pm
#105
7/3/2014
Woke up at 11:30 am and distracted another .25 to bring me to 1 mm of distraction. The physiotherapist named Mohini came but I wasn’t done with my sponge bath so she said she’d come in 10 minutes, but I had spent a long time coming back from the bathroom and getting ready so she eventually left without me doing my physio. It’s a shame too because she’s the physio I’ve got a thing for. A team of three physios came later, one lady trained in the US in Connecticut for physiotherapy and was the leader of the group. She told me that they noticed even before the operation that my dorsiflexion was below average and that I have a naturally tight fascia, so they were going to try and release it a little to improve the ROM of my feet. She put some cream on her hands and started on my right tibia where she felt around for a bit and then pressed down before spreading her fingers across the surface in various areas of the top, side, and back of my tibia. There was a deep throbbing sensation that responded to the physios work and when she spread her fingers across the middle of my tibia it felt like I had a really bad bruise that was sensitive to touch. After the session she saw with her measuring equipment that my dorsiflexion had improved by 8 degrees. She gave me exercises to do with my feet to add to the other physio exercises I’m required to do. I’m willing to do it as much as possible though because I want to fight this equinous before it happens.

So far things have been really good here, the only real annoyances I had were with a couple of the attendants. One of them asked a bunch of times for me to help him get a visa into the USA, and when I said I had no way of doing that he told me that I must have a way of knowing how he could get one – somehow he had the idea that I could make it happen. The rest of the day was kind of awkward when I told him that there was nothing I could do. The other attendant was just really... not too smart. Example, I walk to the bathroom on the walker and he straightens out the slippery rug for me to walk on instead of removing it. I’ll come out of the bathroom and he’ll have a bucket of water right by the door that’s too heavy for me to move. He’ll put a bucket with very little water in it directly near the toilet so I accidentally knock it down. He’ll insist on trying to put on my sandals even when I tell him I’ve got it. These are minor things I guess, but when you're in pain in fixators the smaller things tend to grate on your nerves a bit more. I think the only big complaint I had with the guy though was that he would just sit on the bed across from me and stare intently while I’m writing or using the laptop, even though he doesn’t have to stay in the room and at least has a phone with 3G access so he can occupy himself with something other than staring at me.

Some days when that second attendant was there, the scene would like like this for minutes at a time:

No More Mal-Kahn-Tent - External Tibias - Dr Parihar

7/4/2014
Continuing distraction. Left leg is very sore and I have lots of knee pain. Encountered a new kind of pain today that hurt like hell every time it happened. I find that if I am about to fall asleep and quickly regain alertness, or fall asleep completely and wake up in the morning, I end up getting a muscle contraction that tightens around all the pin sites and relaxes after a split second. The pain is very brief but hurts a lot, especially on the pins and wires by the ankles. Legs were in a lot of pain today even after getting two physiotherapy sessions and exercising to loosen up the muscles. The few painkiller tablets I took didn't help much either.

7/5/2014
Woke up at around 12 o’clock with a really painful muscle contraction around all the pin sites. After washing and having breakfast, Mohini came into my room to do physiotherapy. I always like seeing Mohini. The thing I have for her makes any discomfort from the physio more tolerable. I had my second physiotherapy session at around 6 o’clock with Pratiksha. She taught me three new exercises, which were to help with back pain from lying down so much. Dr Divya came later and told me how discharge was going to work and had the chemist from downstairs meet me. Whenever I was to run out of dressings I would have to give this guy a call and order boxes in advance. I could get a discount of 100 INR ordering from him instead of going to the store. Ten boxes of dressings would cost about 600 INR. After everything was packed, I was taken in a wheelchair to the ground floor where I was put on a stretcher and into the back of the hospital ambulance. They took me to Maharana Inn and I had to use my walker to enter the elevator. The assistant from the room came with me and help set things up in the room. I was given a rate of $46.50 per night due to the extended stay. There was an even cheaper rom but they recommended this one as the other didn’t have any of the nice amenities and my stay would have been far less comfortable. They gave me a room closest to the front desk. Inside was a mini fridge, closet space, table, desk, bathroom with toilet, shower, towel and toilet paper, HDTV and internet access. Room service was all day and laundry service was available as well. Did physio on my own and had a Married...With Children marathon from the DVDs I brought.

X-Rays
Dr Parihar sent me my first set of post-op x-rays. I noticed that instead of a clean cut through the bone, it looked cracked or shattered. When I asked Dr Parihar about this, he said that he doesn't go in the surgery looking to shatter the bone intentionally, actually he prefers a clean cut. But he said not to worry about it. Sometimes the bone is just to solid to do a clean cut at the time of surgery and it ends up shattering, but the shattering allows for more surface area for healing. So I'm not really worried about it anymore. Dr Parihar is a very cautious doctor who tells it like it is, so I trust him that it's not something to be alarmed about.
No More Mal-Kahn-Tent - External Tibias - Dr PariharNo More Mal-Kahn-Tent - External Tibias - Dr PariharNo More Mal-Kahn-Tent - External Tibias - Dr PariharNo More Mal-Kahn-Tent - External Tibias - Dr Parihar
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Posted on Jul 7, 2014, 8:39 pm
#106
Quote from: Wannabegiant on July 07, 2014, 08:08:51 PMI wish you all the best luck Kilokahn, thank you for this very detailed and well written diary.

One thing i wonder about, what was the specifics of the plate fixation you discussed with the surgeons that made you decide not to do it and go for exfix only instead? Was it simply because that there isnt enough patients who have done it already and thus a lack of knowledge of the results?

Also has the Dr Parihar given you any kind of estimate as to how long you will need to wear the frames? Like if he had some kind of average time frame based on his former patients.

Thank you again  No More Mal-Kahn-Tent - External Tibias - Dr Parihar

Thanks Wannabegiant.

The reason I didn't do plate fixation really came down to choosing Dr Parihar as my surgeon. I found out he would not perform plate fixation for cosmetic patients at this time when it comes down to it. He said there haven't really been peer reviewed studies on the outcomes of bilateral plate fixation for cosmetic patients, so he wouldn't be able to say how my course of healing would be affected. He also didn't like the idea of doing them instead of LON because plates aren't as stable as nails.  I wanted to avoid the knee pain possibility and any malalignment could be corrected with the hexapod if I did exfix, so I decided to go that route. Had I decided to go with Dr Suhas Shah, who was my second choice, I think I would have done plate fixation then because he seemed to be confident about its use and said he's done it a lot.
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Posted on Jul 7, 2014, 9:30 pm
#107
Quote from: KiloKAHN on July 07, 2014, 05:42:44 PMHis external only price is $8,000 and LON is $9,000. I didn't ask him about the cost of Precice, but I imagine it would be the $30,000 for the nails plus the surgery fee. So I'd guess between $38,000 - $40,000 USD, accommodation excluded.

That's probably cheapest in the world for Precice! Is it Precice 1 or 2?

Separate question how much do you weight? You said doctors told you your bulk would help with healing. How much bulk is it? I am a little heavier than average also. That will help with healing?
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Posted on Jul 7, 2014, 9:47 pm
#108
Quote from: Gichelu on July 07, 2014, 09:30:23 PMThat's probably cheapest in the world for Precice! Is it Precice 1 or 2?

I believe it's the latest version of Precice as Ellipse is the one contacting specific surgeons in India who they will allow to use it. I don't think they'd contact them for use on an older product. Could be wrong though. Best to send Dr Shah an e-mail:

http://www.suhasshah.com/contactus.html

Quote from: Gichelu on July 07, 2014, 09:30:23 PMSeparate question how much do you weight? You said doctors told you your bulk would help with healing. How much bulk is it? I am a little heavier than average also. That will help with healing?

Well only a couple doctors said outright that bulk is good. Dr Parihar for example said it depends on what kind of bulk you're talking about and didn't really say yes or no about bulk being a good thing. Only thing for sure the bulk caused was me having to wear frames of a smaller diameter than most patients.

When I got on the scale at the hospital it said I was 96 kg (211 lbs). I'm very compact and most people don't guess I weigh that much. I've got a wide frame for my height though:
No More Mal-Kahn-Tent - External Tibias - Dr Parihar
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Posted on Jul 8, 2014, 12:50 am
#109
That's a lot of weight for someone your height!  I am about 167 and my highest weight when I worked out a lot was about 85kgs.

Do you think you might have too much muscle and resistance to lengthening on your legs?  I remember reading captain Americas diary and he had a lot of muscle and he had problems.  But maybe Sarins frames were just weaker.
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Posted on Jul 8, 2014, 4:03 am
#110
So glad to hear you're doing well Khan.  The nights get lonely, I definitely know this, but once you start standing next to people and realizing you're almost average height, it makes it all worth it.  Stay strong!

Btw, I envy your starting weight.  You're built like a brick man!  You're going to look great post lengthening.  No More Mal-Kahn-Tent - External Tibias - Dr Parihar
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