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Posted on Apr 6, 2019, 8:26 pm
#21

Quote from: ShortLivesMatter on April 06, 2019, 08:11:06 PMI was instructed to start lengthening a week after the surgery so GhostFish's calculation is right.  Started on the 18th of March, today is the 6th of April so that's 20 days * .8mm per day = 1.6 cm now

Very interesting, I did not expect that tibia lengthening start date would be different from femurs. I wonder why. I will ask him when I can and will keep everyone posted when I find out.

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Posted on Apr 7, 2019, 12:39 am
#22

Hey, SLM. Thank you very much for another diary. Very kind of you.

Do you have a goal height, or are you going for the most you can get?

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Posted on Apr 7, 2019, 2:49 am
#23

Quote from: ShortLivesMatter on April 06, 2019, 08:11:06 PMNo, most of the time my pain level is 2-3. It's just at times i experience the sharp pain that's like a 7-8 but it's gotten a little better in the past couple of days.
Good to know. I thought after third week pain would decrease a lot. 8/10 is very hard.

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Posted on Apr 7, 2019, 7:11 am
#24

Quote from: ShortLivesMatter on April 06, 2019, 08:11:06 PMNo, most of the time my pain level is 2-3. It's just at times i experience the sharp pain that's like a 7-8 but it's gotten a little better in the past couple of days.
Hi SLM
I think you are doing great!! The sharp pain seems to be common for tibia in the shin area. It comes and goes. Hopefully, you feel better soon.

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Posted on Apr 10, 2019, 4:15 am
#25

Quote from: Ghostfish on April 07, 2019, 07:11:00 AMHi SLM
I think you are doing great!! The sharp pain seems to be common for tibia in the shin area. It comes and goes. Hopefully, you feel better soon.

Thanks for all your advice Ghostfish, you seem to be pretty knowledgeable about LL! Yeah thankfully that sharp pain is lessening day by day.

I am aiming for 5.5-6cm, not too much, this will get me back to my original tibia-femur ratio and it's a good amount for me. I will be a little over 5'6 when it's all done for a total of +5 inches. Sure that's still short but it's an extraordinary increase from where I started with. Can't cry about the hand you were dealt, you can only improve it, I'm just grateful I have the ability to do so.

Anyway I went back to work yesterday after 4 weeks. I used a cane and it was tougher than I expected. Walking around the house here and there is one thing but having to walk at work (from parking lot to building and then to desk, walking to meetings, to the bathroom that's located at the other end of the floor) is another matter. By the end of the day I felt like the nail was going to break at any moment and my legs would fall off.  I will definitely use crutches from now on at work.

Today (Day 29) had another follow up with Dr. R. I have lengthened 1.8cm and everything was looking good. ROM was still good as well as callus formation. Dr. R was surprised I was already just using a cane and told me to take it easy and use crutches instead. He said that while Stryde is indeed amazing and weight bearing, there have been instances of the nail breaking so it's not indestructible.  The cane doesn't offer any weight bearing while the crutches do.  He said to be extra careful since I am doing tibia and obviously the tibia nail has to support more weight as opposed to if it was inserted higher up in the body in the femur. All in all things are good, I think I am settling into a rhythm now that I'm back to work and the pain at night is much more manageable. 

 

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Posted on Apr 10, 2019, 5:56 am
#26

Hi SLM

I am so surprised that you are already getting back to work!  That is amazing but it should be tough.  When I was in Paley institute, I knew one guy who did tibias with Stryde nails.  He was able walk with a cane by a month or so but complained about sleep deficiency and pain, from which I suffered even more than he did, since I am quite sensitive and have trouble in sleeping anyway.  Based on his case, it is hard for me to imagine that someone with tibia nails is working while lengthening.  Hopefully, everything goes smoothly!

Take care! SLM

Ghostfish   

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Posted on Apr 11, 2019, 3:55 pm
#27

hey slm hope youre doung good. I had a question for you, do you smoke or have you ever had a history of smoking in the past. Ive heard smoking can cause poor bone consolidation. I used to smoke but have switched to JUUL ( vape ) was wondering what the results would look like if a person had a smoking history.

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Posted on Apr 11, 2019, 10:33 pm
#28

Quote from: kanye007 on April 11, 2019, 03:55:51 PMhey slm hope youre doung good. I had a question for you, do you smoke or have you ever had a history of smoking in the past. Ive heard smoking can cause poor bone consolidation. I used to smoke but have switched to JUUL ( vape ) was wondering what the results would look like if a person had a smoking history.

Nope I don't smoke, and yes smoking can cause slow bone consolidation. If you are planning to do LL, it's best to stop it completely. 

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Posted on Apr 12, 2019, 1:56 am
#29

Hey SLM,

Im very happy that you are doing well, keep up the great work. And I don't think 5'6 is short. Its just below average. To me short is where you started from and where I will be starting from (5'3). I too plan to reach 5'6 with my femur surgery and have no plans for tibias (though I don't think I would actually proceed with tibias). With regular shoes our heights would be 5'7, which is a great life changing difference from where we began!

I just realized as I was typing this that I forgot to ask you whether dr R ever prescribed you some nerve meds for that shooting nerve pain in your tibias. I hope it has gotten much better since your last update

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Posted on Apr 13, 2019, 3:07 pm
#30

Do you still have that sharp pain 8/10?

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