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Posted on May 25, 2019, 4:19 pm
#51

Hey everyone, sorry for the late update, I've just been really busy with work and LL.  It's been about 2.5 months since my surgery.  I am at 4.9cm and am going to stop in a couple of days.  I had another checkup and everything looked good, me slowing down lengthening to 3x a day has helped improve the bone formation and helped my muscles keep up better.

There is no pain when I'm sitting or laying but there is pain when I walk right below the knee.  Dr. R. attributed it to me walking too much without crutches when I'm still lengthening and my bones havn't consolidated, which kind of makes sense since it doesn't really hurt in the morning but by the end of the day after work, it's pretty rough. I just hope it isn't some permanent knee pain issue associated with internal tibia

Let me know if you have any questions. 

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Posted on May 25, 2019, 6:31 pm
#52

Quote from: ShortLivesMatter on May 25, 2019, 04:19:34 PMHey everyone, sorry for the late update, I've just been really busy with work and LL.  It's been about 2.5 months since my surgery.  I am at 4.9cm and am going to stop in a couple of days.  I had another checkup and everything looked good, me slowing down lengthening to 3x a day has helped improve the bone formation and helped my muscles keep up better.

There is no pain when I'm sitting or laying but there is pain when I walk right below the knee.  Dr. R. attributed it to me walking too much without crutches when I'm still lengthening and my bones havn't consolidated, which kind of makes sense since it doesn't really hurt in the morning but by the end of the day after work, it's pretty rough. I just hope it isn't some permanent knee pain issue associated with internal tibia

Let me know if you have any questions.

Glad you're doing well man.  How does it feel to be about 5'6 with absolutely no shoe on, after living most of life as 5'1" (My original height)?

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Posted on May 30, 2019, 10:48 am
#53

How is it looking SLM? Done with lengthening yet?

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Posted on Jun 1, 2019, 6:25 am
#54

Hi SLM. Great diart, a lot of useful information here! One question I'd like to ask is if you had to wear foot splints after your tibia surgery and for how long? Also, how did you manage to sleep through the night if you did wear these casts? Thanks and I hope you're making good progress on your lengthening. Keep at it!

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Posted on Jun 1, 2019, 12:23 pm
#55

Quote from: korok123 on June 01, 2019, 06:25:21 AMHi SLM. Great diart, a lot of useful information here! One question I'd like to ask is if you had to wear foot splints after your tibia surgery and for how long? Also, how did you manage to sleep through the night if you did wear these casts? Thanks and I hope you're making good progress on your lengthening. Keep at it!

Never had to, which is odd since Paley has his patients wear them. 

Day 80 - I finished my lengthening last night at 5.3cm.  I could have gone on but decided to stop here as I didn't want to do too much in tibia and my tibia/femur ratio is now at a good 80%.  I am obviously pretty tight but fortunately did not develop ballerina foot. I credit this to STRYDE and the ability to weight bear allowing me to stand/walk which helps against it.  My dorisflexion is 10 degrees on my left foot and 5 on my right.  I do have a little knee contracture, hopefully with continued PT I will be able to regain full knee extension soon. 

There is no pain while sitting/laying or just standing but there is while I'm walking, probably due to overuse of legs when they have not consolidated yet.  My walk is not normal as due to that pain, I try to minimize the ROM so my legs don't get lifted off the ground as much as a normal gait.  Anyway I'm walking around with a cane now outside the house, which helps me walk faster than w/o it as it provides balance. 

Hopefully it won't take too long to consolidate, I know tibia healing is slow but should be quicker with STRYDE .  Nothing much between now and the next 4 weeks when I'll get my latest xrays done. I'll post a copy of them when I do. 

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Posted on Jun 4, 2019, 6:42 am
#56

I’ve done femurs before for 8cm & my goal is to get as close to 8cm on tibs as well so i jus have some questions so i can be properly prepared

1. When did “hell weak” wear off? For me the first 2-3 weeks were a nightmare when i did femurs! I was too ambtious and was forcing myself to walk unasisted 5 days after surgery which.. i proved to myself that I could but it just made me super sore all the time & for tibs, i’m gonna be taking it much easier. But so i guess
When were u able to ACRUALLY have a solid night of good sleep? For me it was like 3 weeks

2. When did u transition from walker - crutches - cane - nothing

I work from my labtop so i’m gonna be dedicating fulltime to recovery. Assuming you had this kind of time & also someone to do it with (doing it w a friend). How far do you think you physically could have gone if u REALLY wanted to? Is 6 possible? 7? 8? Thoughts?

Thank you in advance for your replies!!

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Posted on Jun 4, 2019, 6:44 am
#57

Last question

Pain wise, what hurts more on a day to day basis assuming all activities are equal
Tibias or femurs?

I heard femurs hurt more cause bigger muscles
But tibias are more annoying to stretch & maintain

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Posted on Jul 30, 2019, 1:15 pm
#58

no update ?

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Posted on Jul 30, 2019, 2:10 pm
#59

Did you ever ask what exactly caused those sharp pain spikes of level 8? What did the doctor say?

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Posted on Jul 30, 2019, 2:52 pm
#60

Great and helpful diary thank you! Can I ask if you’re male or female? Thanks

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