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Posted on Apr 25, 2019, 4:01 pm
#41

Quote from: ShortLivesMatter on April 24, 2019, 08:21:50 PMDue to my previous femur lengthening I don't think my soft tissues can take much more abuse.
Don't you think it's better to do tibia first for this reason?

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Posted on Apr 26, 2019, 1:18 am
#42

What is your daily rate of distraction? 75mm per day?

Quote from: ShortLivesMatter on April 24, 2019, 08:21:50 PMI bought some incline stretch wedges from amazon and stand on them for a good stretch.https://www.amazon.com/ProStretch-Blue-Stretcher-Fasciitis-Tendonitis/dp/B000GAAXGK
Is it this?

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Posted on May 3, 2019, 1:01 pm
#43

Hi ShortLivesMatter,
just read your diary and I have alot of questions tbh :
_______________________________________________
1) First of all Are you a girl ? & how old are you exactly? Were you skinny to start with (low muscle mass)?

2) How did you say that when you did femur they couldnt fit the nail in your leg of the stryde but then the stryde nail fit in your tibia ?? Isnt the tibia muscle smaller and narrower than femur ?

3) From your experience did you feel a difference between both Precice 2 & Stryde? with precice 2 were you sitting all the time or when could you start walking?

4) Knee Pain : How was the knee pain in both experiences ? 
-----> Did Tibia hurt more as the nail went right through your knee patella ?

5) When it comes to Pure External Tibia VS Pure Internal Tibia.....what would you advice , I an a girl & having major scars and infection allover my tibia isnt easy or favorable and also walking with a huge circular frame for 6 months or more is hard but they say pure external avoids Knee pain, do you think I should wait better & do Stryde in Tibia However ??


*Sorry for all these questions lol .

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Posted on May 3, 2019, 10:56 pm
#44

Quote from: Kenda on May 03, 2019, 01:01:59 PMHi ShortLivesMatter,
just read your diary and I have alot of questions tbh :
_______________________________________________
1) First of all Are you a girl ? & how old are you exactly? Were you skinny to start with (low muscle mass)?

2) How did you say that when you did femur they couldnt fit the nail in your leg of the stryde but then the stryde nail fit in your tibia ?? Isnt the tibia muscle smaller and narrower than femur ?

3) From your experience did you feel a difference between both Precice 2 & Stryde? with precice 2 were you sitting all the time or when could you start walking?

4) Knee Pain : How was the knee pain in both experiences ? 
-----> Did Tibia hurt more as the nail went right through your knee patella ?

5) When it comes to Pure External Tibia VS Pure Internal Tibia.....what would you advice , I an a girl & having major scars and infection allover my tibia isnt easy or favorable and also walking with a huge circular frame for 6 months or more is hard but they say pure external avoids Knee pain, do you think I should wait better & do Stryde in Tibia However ??


*Sorry for all these questions lol .

1. I was a very short and small boned guy, very skinny, in my early 30s now.

2. I did femurs in 2017 with Precise as Stryde was not available yet. We used the smallest Precise 8.5mm nail as that one fit better than the next size which was 10.5mm. My femurs could have probably handle the 10.5 nail but that would have required reaming so going with the 8.5 nail was the safer choice. 

3. Yes with precise I could not weight bear until after 4 months so my leg muscles were all deteriorated and weak. With Stryde I started walking unassisted after 3 weeks so my muscles are recovering alot better this time. 

4. There was no knee pain with the femurs as the knee was untouched.  There was knee pain with the tibia after the surgery but it's been getting better and better, almost no pain now but I havn't dare try to stand on my knees, I'm sure that would hurt like hell since my surgery was only recently and I'm still healing. 

5. Sorry I do not know much about external tibia.  I only chose to do internal tibia because of Stryde which allows for comfort and fast recovery.  Even with Stryde you will still get scars.

Day 53 update - at 3.6cm now. I had a checkup this week. My ROM is still ok, dorsiflexion is getting tight at only 10 degrees.  I was instructed to slow down distraction rate to 3 times a day for .6mm total. This is due to my bone growth being a little slow which I was not surprised since I had the same issue when doing femurs.  I will probably stop at 5cm so 3 more weeks of lengthening, that's a good enough length for me for tibia.

If you have questions about insurance please send me a PM and I'll be glad to answer them. 

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Posted on May 4, 2019, 12:02 am
#45

Quote from: ShortLivesMatter on May 03, 2019, 10:56:16 PM1. I was a very short and small boned guy, very skinny, in my early 30s now.

2. I did femurs in 2017 with Precise as Stryde was not available yet. We used the smallest Precise 8.5mm nail as that one fit better than the next size which was 10.5mm. My femurs could have probably handle the 10.5 nail but that would have required reaming so going with the 8.5 nail was the safer choice. 

3. Yes with precise I could not weight bear until after 4 months so my leg muscles were all deteriorated and weak. With Stryde I started walking unassisted after 3 weeks so my muscles are recovering alot better this time. 

4. There was no knee pain with the femurs as the knee was untouched.  There was knee pain with the tibia after the surgery but it's been getting better and better, almost no pain now but I havn't dare try to stand on my knees, I'm sure that would hurt like hell since my surgery was only recently and I'm still healing. 

5. Sorry I do not know much about external tibia.  I only chose to do internal tibia because of Stryde which allows for comfort and fast recovery.  Even with Stryde you will still get scars.

Day 53 update - at 3.6cm now. I had a checkup this week. My ROM is still ok, dorsiflexion is getting tight at only 10 degrees.  I was instructed to slow down distraction rate to 3 times a day for .6mm total. This is due to my bone growth being a little slow which I was not surprised since I had the same issue when doing femurs.  I will probably stop at 5cm so 3 more weeks of lengthening, that's a good enough length for me for tibia.

If you have questions about insurance please send me a PM and I'll be glad to answer them.

5'1" to 5'6/5'7isque.  You're incredible man.  What a fighter.  Good luck rest of the way, buddy. I'm on your side.

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Posted on May 4, 2019, 9:26 am
#46

Thank you for your reply and I wish you the bets recovery!

1) Okay but do you feel that if you would have done Stryde in your Femur you would have achieved the full 8 cm ?

Because for me having Financial problems i can only do this surgery once and by once i need to get the maximum which is 8, thats why im going for femurs even tho my proportion would be so weird ! But since i have No muscle mass like you im scared what may stop me from achieving the 8cm, because some doctors wont just say they will say we will see after surgery or so!


2) so after you did femurs When could you start walking like a Normal person as if you didnt do anything ?

3) Did you have problems with Tight/ short tendons or ligaments that prohibited your lengthening??

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Posted on May 9, 2019, 6:51 am
#47

Hey just wanted to wish you all the luck possible & send you some good vibes! I finished my femurs end of December 2018 for 8cm & am waiting to be able to do Tibias sometime in Late September of this year. Super amped for it although reading this reminded me of HELL WEEK (first 1-3 weeks) lol but whatever it’s all worth it my guy keep going

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Posted on May 17, 2019, 3:46 pm
#48

Hi..ShortLivesMatter, I hope your are doing well?  Can you give us an update..
panda  SLM Stryde Internal Tibia with Dr. Rozbruch March 2019

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Posted on May 21, 2019, 3:15 am
#49

Can you walk unaided indoors?

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Posted on May 25, 2019, 4:09 pm
#50

Quote from: Kenda on May 04, 2019, 09:26:19 AMThank you for your reply and I wish you the bets recovery!

1) Okay but do you feel that if you would have done Stryde in your Femur you would have achieved the full 8 cm ?

Because for me having Financial problems i can only do this surgery once and by once i need to get the maximum which is 8, thats why im going for femurs even tho my proportion would be so weird ! But since i have No muscle mass like you im scared what may stop me from achieving the 8cm, because some doctors wont just say they will say we will see after surgery or so!

I think I would have definitely hit at least 7.5cm. With the stryde, you are up and walking after a week so your muscles don't get so weak, they also stay more flexible and not as tight, and bone consolidation is quicker

2) so after you did femurs When could you start walking like a Normal person as if you didnt do anything ?

It took me about 8 months from the day of the surgery to walk as if nothing ever happened. 

3) Did you have problems with Tight/ short tendons or ligaments that prohibited your lengthening??

I had a knee bending problem at around 5cm but I stepped up my PT and resolved it by the end of the lengthening, the main thing that made me stop was my bone consolidation was slow and I was sick of the entire process and wanted to get back to normal life asap

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