Quote from: crimsontide on July 02, 2014, 06:15:18 PMi don't believe for one second that getting the nail means less chance of recovery... theres a chance for slight knee pain, but to say the frames don't have complications after one stops lengthening is false
the frames keep the foot and ankle pointed down,etc... along with the serious risks you face if you wear frames for say over 12 months... these are serious risks, not to mention little things, such as showering, etc
ill be walking faster without aids if i get the frames off.... the frames cause too many issues in many people... they've even made the areas around the sites extremely extremely dry... and its because of the frames
as far as them controlling everything, lets put everything out there.....
1- bagirov does not even do the surgery by himself, and people need to know this.... if people go to russia, its fine, but they need to know he will be doing 1 leg, and his assistant will be doing surgery on the other leg
2-we both know people who had surgery with him... you expect to have frames off in a few months, you might... but we both know a person who's had frames on 11 months and lengthened 4.5 cm.. this person also had complications when they did the "adjustment"
i also know of a few others, such as a girl that lengthened there, had frames removed, then her leg subsequently broke... she's had frames on about 2 years
i also know something else that i won't say here,only because i was told it in confidence... but it isn't good
bagirov option is ok i think, but there are many drawbacks to the way he runs things.... at this point, id rather py an extra 3 or 4 just to get the nail put in... for various reasons
Well its pretty much a fact that the nail insertion comes with added risks, you will damage the callus and slow it down further, also the fat storage that is inside the bone (it replaces the bone marrow after one grows up) will dissappear when you insert the rods, this might very well have long term negative implications , and the cut to insert it might give you permanent knee pains as mentioned.
You lengthened so much and so fast, and the nail insertion will slow down recovery further because of the increased damage to the legs. I seriously doubt you will walk normal earlier just because you get rid of the frames.
Also youre wrong, its not false to say the frames dont have complications after the surgery. The complications you get after the surgery are because of turning and lengthening, not the frame itself (i dont count infections as complications because they dont cause any permanent damage). When the lengthening process is done, they check the condition and makes sure everything is alright, after that the risks are pretty much over.
the frames dont restrict your movement, i have full range of motion now and can already walk close to normal after ive warmed up a little, the reason you cant move your feet and legs normally is partly because you are still lengthening and also because you lengthened faster than recommended, otherwise you wouldnt have gotten ballerina feet like i never did. There are no serious risks to having the frames on for a long time, theres no evidence to suggest it. Getting a nail insertion is a seriously invasive surgery which is a much bigger risk, and will have long term implications.
The guy you mentioned who had frames on for a long time and did 4.5 cm, i have talked extensively with him and he admitted to not following Bagirovs recommendations while lengthening, like the fact that he kept lengthening at the same pace despite getting a big infection among other things. despite his complications he doesnt think negatively of Bagirov, that says that he doesnt believe it was the doctors mistake.
I have also heard a few things about you btw, you havent exactly followed the doctors recommendation either..initially you didnt even keep track on how much you where lengthening each day. So i dont really think you have any position to talk negatively about the clinic when you dont do as recommended by the doctor.
The legitimate reason you should get the nail insertion is because of the long time you will have to hide your legs from public if you keep the frames on, and for overall comfort and practicality, not for recovery reasons which will be worse than sticking to external only.
External only isnt recommended when doing 6 cm or more, because of the long time you will be gone if you want to keep LL a secret.
TIBIA LENGTHENING IN MOSCOW WITH DR BAGIROV
One of the surgeons told me that he thinks the advantage of LON over external only is overrated and that the recovery time from LON takes even longer than exfix. With exfix you'll be weight bearing a lot sooner, promoting healing. Being able to move around, even with frames on, will be mentally beneficial. He said a lot of people who get LON feel cheated because they think they'll be walking back to normal a lot sooner than it really takes. Add to it that you see your legs with no frames and you have the urge to walk on them yet your surgeon tells you its not strong enough yet even with the nail inside. Makes it more mentally frustrating.
I think the same that wannabegiant, if you are doing 6cm or more is better LON, but for 5 or 5,5 cm is better only external.
This surgery should be more monitored, and the patients should be the lengthening period in the place of surgery under strict medical control and only when the lengthening period is finished and all is ok, you can go home.
Quote from: KiloKAHN on July 02, 2014, 07:37:50 PMOne of the surgeons told me that he thinks the advantage of LON over external only is overrated and that the recovery time from LON takes even longer than exfix. With exfix you'll be weight bearing a lot sooner, promoting healing. Being able to move around, even with frames on, will be mentally beneficial. He said a lot of people who get LON feel cheated because they think they'll be walking back to normal a lot sooner than it really takes. Add to it that you see your legs with no frames and you have the urge to walk on them yet your surgeon tells you its not strong enough yet even with the nail inside. Makes it more mentally frustrating.
Does that surgeon not use fully weight-bearing nails when he does LON? I could bear weight and walk the whole time I had my nails in.
Quote from: Medium Drink Of Water on July 02, 2014, 08:07:50 PMDoes that surgeon not use fully weight-bearing nails when he does LON? I could bear weight and walk the whole time I had my nails in.
Because the frames have less components than exfix the weight bearing allowed while in them would be less, and when the frames come off you'd still need time to heal and would need to use a walker or something before you can go all over without one. So he doesn't think it's a dramatic enough difference from exfix to go through the more invasiveness and increased infection risk with LON. It's what one of the assistant surgeons said though. The primary surgeon said I could do either. All I know from him regarding his opinion is that he thinks exfix is safer and would be better for me in terms of healing between it and LON.
Ughh so Dr Bagirov only does one leg? Who is the assistant and what are his/her credentials? I'd be pissed off if I just finished the surgery only to find this out, would definitely feel ripped off/cheated.
Im under the impression that its better to stay at the clinic whilst lengthening so they can monitor you therefore the more expensive alternative with Dr Barinov seems the better option in my opinion. It also seems like crimsontide's problems seem more like a mental issue of not knowing what will happen, slightly depressed, the break up doesnt help either than the LL itself. Perhaps you should wait a little before rushing into decisions half cked. But if he's already decided then all the best, good luck and I hope for you a safe recovery
Quote from: crimsontide on July 02, 2014, 06:54:53 AMIf I get frames removed it's because I'll have done latn. If I don't do latn , who knows how long I'll be in the frames
why do you need multiple visits to russia?
what if you stay in the frames, for whatever time needed to consoldiate, and then fly back to russia once only?
Hi again Crimsontide, thanks for replying to my earlier post! After reading some more about complications etc. I think I will go for a max 7.5 cm increase. I just wanted to ask, with your 6+ cms of lengthening, how freely can you move? And is the avoidance of knee bending also required in the consolidation phase?
Thanks for taking the time to reply.
Crimson, have you even been using a foot holder to counteract ballerina foot?
Quote from: ArmyPleb on July 04, 2014, 12:07:29 AMCrimson, have you even been using a foot holder to counteract ballerina foot?
good idea, but won't the foot holder impede muscular growth that is necessary for self-correction of this physiological condition?
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