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Posted on Jul 10, 2014, 7:46 pm
#201

Hey crimsomtide. Sucks that things arent going so well.  I have been following your diary and truly hope you get well. As others have said you should not be alone now not just because of emotional aspects but because of the "you never know" problems that pop out of nowhere. Did the doctors you consult find out what the black stuff from your knee was?

Take care man   i am considering Bagirov but my main concern was what happens when i go back home and there is a complication?  I know theres really no right answer to that. If anything ask Bagirov to fly back to Russia and pay the thousand bucks to stay therr for a month and take care of the problem.  I am thinking of having the surgery that paying for like 3 months until i get the hang of things and decrease the chances of complications.

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Posted on Jul 10, 2014, 8:07 pm
#202

crimsontide how about just standing?  Do you have problems doing just that?  When I was going through my problem period in LL I didn't walk at all.  In fact, don't remember walking more than occasionally throughout my whole LL experience, no matter how well or poorly I was doing.

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Posted on Jul 10, 2014, 8:49 pm
#203

hi can stand i guess... its just that thongs like going to the bathroom are a huge hassle... also, I'm alone now, and the bed I'm in is very low, so was always hard to get up , but now more so


i just got a eply from drs asst.... to me, the black oil looks like motor oil, it can't be from my knee, has to be from frames I'm guessing, has to be some kind of oil leaking from it... i mean, it is completely black, looks like motor oil, or exactly like lubricant you would use for bearings

the  tendon tension is making it hard to sleep... also right knee, feels like the nail is tearing a bit, so hurts, but the ankle issues from tendon are the worst

i guess ill be ok, just really feel i need to get a release for my tendons

medium, how much pt did you do??? i haven't done any lately tbh

i just used my arms to help lift leg, and i get get leg straight, while I'm on my back, so it seems like the ballerina is really the issue here

ill try to see either dr parihar or dr shah within a few days to  hopefully get the ballerina fixed, and possibly take frames off

I'm tempted to lengthen more, but i think its best to stop now???

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Posted on Jul 10, 2014, 8:58 pm
#204

I didn't do much PT.  Beijing is not known for its PT, and I did less than most other patients there except the 2 or 3 who did none.

Standing for long periods of time, like an hour, will help with your problem.  Just stand and bear weight, and the tendons will stretch on their own.  Those lengthening/release surgeries make the tendons weaker forever and should be avoided if possible.

The situation you're in sucks, but it will get better if you have some patience and are willing to deal with the pain and inconvenience.  LL was hard for me even with nurses and caretakers 'round the clock.  It's going to be even harder for you, being alone, but you've got to stay strong and smart all the way through it.

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Posted on Jul 10, 2014, 9:04 pm
#205

ill tell you what I'm thinking now... btw, I've done very little pt, if any, though i seem to be ok except for awful ballerina

being alone makes you think the worst... I'm just thinking ill never be able to walk again,etc...

i think palsy does the release all the time... might make my tendon weaker, but this sux too much

paco, my parents are both deceased, so I'm pretty much on my own now

ill eventually write about my ex gf when I'm feeling better hopefully


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Posted on Jul 10, 2014, 9:05 pm
#206

and am i   right i thinking i should stop lengthening??? I'm so tempted right now, but i won't lengthen

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Posted on Jul 10, 2014, 9:42 pm
#207

I am sorry, Crisomtide.
You need stay with somebody during this process to do it more easy.

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Posted on Jul 10, 2014, 10:10 pm
#208

Or hire a caretaker man. Being alone is just gonna stress you out and can impact your healing.

Also i dont kniw if oil leaking is a normal thing. Maybe i am misinformed or am misinterpreting the severity of the issue but something like that would make me want to be really sure it isnt an issue not just a phone diagnosis.

Sorry to sound so negative but this is your health man. If there is an issue it is important you know how to proceed.  Who knows, maybe doing more PT is the cure, maybe doing PT aggravates the situation.
Like I said if im wrong sorry for the pessimism.

Also i stated i will pay to stay in hospital for like 3 months. I will do this for my health but also for my mind. I know i will be alone during the entire proccess because i dont want anyone i know to jnow about this.. So during the turning process i will still be fairly new to this experience and the surgery will be fresh meaning more chance of complication. Even if everything is going fine i will doubt everything. Just knowing that the hospital is right there will take a load of my mind. I might just rent apartment near moscow(but most likely in midweet usa where its really cheap) after i leave hospital. Think of it as buying peace of mind and decreasing the likelyhood of serious issues happening.

Also when in doubt just realize this.      At some point before the surgery when you were preparing and planing and reesearching, you knew this was gonna be a tough road and that you might have issues and doubts. you went for it anyways and now youre experiencing it just like many others have and i will soon too. Just still try to make the situatiin more comfortable by having some sort of help.

Medium Drink of Water

Your saying in your experience you didnt do much PT and there were no significant drawbacks? Im still gonna do Pt but i still would like to know.

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Posted on Jul 10, 2014, 10:32 pm
#209

Quote from: tx1111 on July 10, 2014, 10:10:14 PMMedium Drink of Water

Your saying in your experience you didnt do much PT and there were no significant drawbacks? Im still gonna do Pt but i still would like to know.

That's right.  I planned to work out like crazy, but my knees were too stiff the whole time to do any PT.  I just did standing and occasionally walked.  It probably took me longer to recover fully, but I don't think the end result would've been any different if I'd done PT.

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Posted on Jul 11, 2014, 3:17 am
#210

id like to hear from anyone else that had ballerina...

not only can't i put jy heels on the floor, but trying to sleep now is rough... the back of my ankles,where tendons are,   are very very sore


really really noticeable and annoying...... feeling it constantly in one ankle now

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