MEDICAL DISCLAIMER: The information provided on OrthoLength Pro is for educational purposes only and does not substitute for professional medical advice. Always consult with a qualified orthopedic surgeon.
Posted on Aug 4, 2014, 12:54 am
#351

Sorry Medium, I got a bit overreacted as well, my apology! I deleted my previous posting.

Crimson, I agree with Medium that to stand is the best way to cure ballerina foot. In fact, my doctor Dr Donghoon Lee put the most emphasize on standing. He told me more than once that standing is even better for ballerina foot than walking. While you are waiting to decide what to do next, try to stand as much as you can, it will help with your ballerina foot tremendously.

Like (0)
Posted on Aug 4, 2014, 5:37 am
#352

i contacted embassy... my situation is i can easily get up using a walker, but i can't walk really.. maybe because i haven't in  a while, but its really from the ballerina... its really bad... also, my legs feel ok, except now when I'm on my toe standing,  my left knee feels some discomfort when i attempt to walk or transfer weight


i contacted embassy, because i have no other choice... theres been an odd black oil leaking from my frame i think... but can't be sure.... my  frame has rings so tight  i can't even see there.... this can't be from my legs i assume, must be frame, because it is black

i just got on the forum for the first time in a while, so haven't really read new posts here. i wanted to post fast... i think the knee  discomfort when i transfer weight is due to ballerina...   standing on toes is not very stable, and is causing undue stress...

not sure how common some knee discomfort is... my knee feels fun otherwise, i can bend,etc..... even when  standing on toes, i can  basically squat down.... i can not walk really now at all, as the tendon is extremely tight, and i am on my toes now 4 or so cm...

i have not done much pt... i am 100% getting a release.... my  issue is too extreme, and my situation as such demands it... i am alone, i need to be able to walk , i do not have the luxury of  doing pt for a year to fix it....

here is a photo of the black goo... it is definitely from the frames... if you notice, the ring is incredibly close to my leg, so i can't see underneath it, and the pressure i get from the ring is bad....

Like (0)
Posted on Aug 4, 2014, 5:39 am
#353

the goo, well, I'm not in pain , so i guess its ok... but  maybe not.... as you can see, its is black,  never seen anything like this  come out of any human, so  its from the frame.....

Like (0)
Posted on Aug 4, 2014, 5:50 am
#354

and yes.... i think everything will drastically change, mood included, once i get release, even with frames on.... as id be able to put heels on ground,etc


having to stand on toes, 4 c from the ground on both feet is weird... but doable.... but walking now is  too dangerous... when i say I'm on my toes and heel isn't on the ground, i mean I'm really on my toes.... at an extreme angle... think extreme ballerina position... now imagine trying to walk in that position with legs that haven't consolidated yet.... its just not possible.... i don't have nurses or family to help, so doing pt to fix it is not practical for me..... i have to be able to walk

with this black oil issue, i also feel i need to get the frames removed... theres just too many issues   with keeping them on....though as long as i can find out and fix this issue, wearing frames would be doable.... the ballerina is definitely not....

Like (0)
Posted on Aug 4, 2014, 11:15 am
#355

My god, clean your pins and that "black goo" is just dried blood and underneath that probably an infection.

You need to stop being lazy or you wiill get yourself into serious trouble, clean your pins and do PT.

Btw your problem with ballerina is not extreme, you are just very very lazy and not very smart.



Like (0)
Posted on Aug 4, 2014, 11:58 am
#356

jesus christ...


123... now listen closely... it is not dried....at all... that is not dried blood, because it is not dried, it is wet...... it is liquid, and definitely not infected... , btw it is a flowing black liquid, not congealed....

regarding my issue with ballerina, you have absolutely no idea whether it is extreme or not, as  you have never met me, so you must rely on what i say, which is that i have 4 or more cm in each foot, and  must rely on myself, so the ballerina is absolutely extreme in my case..... do you have information to the contrary?TIBIA LENGTHENING IN MOSCOW WITH DR BAGIROV?

the "debris" is from jeans that i wear, as i have to wear jeans most of the time here

so 123, now that we've established that is not dried blood, do you  have anything to say about what it actually is?TIBIA LENGTHENING IN MOSCOW WITH DR BAGIROV

Like (0)
Posted on Aug 4, 2014, 1:43 pm
#357

Quote from: Wannabegiant on August 02, 2014, 09:16:26 PMreplying here since it got off topic.

Wrong again crimson, I did read what you wrote and it was inaccurate. Specificially when you say tendon release is beneficial, but its not. Tendon release is best avoided but some patients require it. You might not have had required it though if you lengthened slower or used footholders. Most cases of ballerina can be solved through PT.

I dont see how anybody reading that faq can get the idea that tendon releases are something good. Its only for some patients that they are needed but that simply means those specific patients are not able to lengthen as much without damaging their body more, and thus not recovering as well as those who dont need it.

Since they mention that the surgery required afterwards if you already got ballerina feet is worse and more complex, that is the only reason they do it preemtively if they suspect the patients, but its still not a good thing for the body.

and while those specific numbers was for femur, it irrelevant, as mentioned, if the achilles tendon is to tight before the surgery, that simply means your body is not able to lengthen as much without weakening it more with a release.

"If these structures are tight before surgery and not prophylactically lengthened then muscle/joint contractures that require later more expensive surgery are required (in the lay literature these are referred to as duck ass deformity for tight iliotibial band and fascia lata, and ballerina feet for tight Achilles tendon). Prophylactic anterior compartment release is often done at the time of tibial lengthening. There is no additional charge for this procedure. This is done to prevent compartment syndrome."

This quote from Paley is basically saying that the only reason they do it from the beginning with some patients is to prevent them from having to do an even worse surgery afterwards if you develop severe ballerina. Again nothing here suggests it being a beneficial thing, at least not for your case as you already have ballerina.



again, you avoided what i said.... nothing i said was wrong.. you stating it is wrong does not mean it is wrong

the fact is that top drs do releases when needed, even as preventive measures.... not simply after the fact... why???

because they have determined that getting the release is more beneficial than acquiring ballerina, or that getting a release to fix the ballerina is preferred over having ballerina over an extended time ,even if it could be fixed by pt eventually... again, you simply do not address this....

you're reasoning based on a false dilemma, or all or nothing... that a release can't be beneficial  because it could have complications

you fail to account for that having ballerina for an extended period of time can most definitely have  complications too.... it isn't, this is  100% good, that is 100% bad....

all your reasoning can be used to justify  having the release


you stated that tendon releases are best avoided, but  so is ballerina... yet i have it now...

wannabe, lets take this very logically... start with premises we can agree on

1- palsy does releases

2- paley does do it not just  as a fix, but as a preventive measure

i think  we can logically infer that the reason for doing the release beforehand is because  in his mind, the complications of ballerina outweigh the risks of the release?TIBIA LENGTHENING IN MOSCOW WITH DR BAGIROV again,  keep this on track, and actually interact with what i'm saying....  yes, releases can cause issues, but so can ballerina

by the way... you are 100% wrong about sweden's issues having nothing to do with ballerina... he has explicitly said that his ankle issue is because of lingering ballerina




Like (0)
Posted on Aug 4, 2014, 1:53 pm
#358

Quote from: crimsontide on August 04, 2014, 01:43:25 PM
again, you avoided what i said.... nothing i said was wrong.. you stating it is wrong does not mean it is wrong

the fact is that top drs do releases when needed, even as preventive measures.... not simply after the fact... why???

because they have determined that getting the release is more beneficial than acquiring ballerina, or that getting a release to fix the ballerina is preferred over having ballerina over an extended time ,even if it could be fixed by pt eventually... again, you simply do not address this....

you're reasoning based on a false dilemma, or all or nothing... that a release can't be beneficial  because it could have complications

you fail to account for that having ballerina for an extended period of time can most definitely have  complications too.... it isn't, this is  100% good, that is 100% bad....

all your reasoning can be used to justify  having the release


you stated that tendon releases are best avoided, but  so is ballerina... yet i have it now...

wannabe, lets take this very logically... start with premises we can agree on

1- palsy does releases

2- paley does do it not just  as a fix, but as a preventive measure

i think  we can logically infer that the reason for doing the release beforehand is because  in his mind, the complications of ballerina outweigh the risks of the release?TIBIA LENGTHENING IN MOSCOW WITH DR BAGIROV again,  keep this on track, and actually interact with what i'm saying....  yes, releases can cause issues, but so can ballerina

by the way... you are 100% wrong about sweden's issues having nothing to do with ballerina... he has explicitly said that his ankle issue is because of lingering ballerina


Nope, everything about your statement was wrong, get over it. A tendon release is not beneficial period. If a patient can avoid doing it, that is always a better outcome. Some patients require it from the beginning to prevent them from having to do a more serious surgery afterwards if they get severe ballerina. But not all patients who get ballerina need surgery, like Sweden and Rgkey.

Btw its funny you use Swedens case to support your argument (even though you are completely wrong and dont know what you are talking about) when he clearly states he doesnt need a release and its bad to do it.

A release will always weaken the tendon permanently. So it cannot be beneficial. Having ballerina is another issue, but if you already have it, then it wont get worse from there as long as you do pt and stop lengthening.

You want to justify doing something the easy way, and you are in denial of the factual drawbacks you get from doing it. Pt is better in every way other than the fact that it takes more effort and a longer time. Do a release if you want to, i dont really care, but dont fool yourself thinking it is better than doing pt in the long run.

Like (0)
Posted on Aug 4, 2014, 2:00 pm
#359

in an older post, mentioned something about issues with the dr in russia... i said i didn't want to post about it,   and received pms about it.. i   still didn't say anything


well, i will say now

one of the big reasons for me wanting to go to another surgeon is because while i was at the clinic, after surgery, the other patients would talk, tell you about stories

became  aware of 3 other cll cases with bagirov,

1- a woman that lengthened maybe 7 cm....   she had her frames taken off, then either fractured her legs or developed x legs... she had to come back to clinic, and could not walk...  this was approximately 2 years after surgery... i never met this woman, but a few females there had, and even had photos... i think she has a diary, but on a russian site

2- a russian man that developed bad ballerina, and to my knowledge still has frames on 11 months later after lengthening 4 or 4.5 cm... i have spoken to this individual,and so has wannabe

3- this one is the worst and is the incident i had alluded to i an earlier post.... dr fahri, who is dr bagirovs assistant  showed me in his laptop a man that had surgery and lengthened quite a bit....  his legs looked extremely bad... the worst x legs you can imagine..... dr fahri told me he had done this in baku, and laughed, said that bagirov didn't even know he had performed this surgery... but to him, the situation was comical... 

i did not want to state the last thing publicly, as  dr fahri explicitly told me bagirov had no idea he had done it... but it's relevant, because dr fahri is the one that basically supervises everything after the surgery








Like (0)
Posted on Aug 4, 2014, 2:19 pm
#360

Quote from: crimsontide on August 04, 2014, 02:00:55 PMin an older post, mentioned something about issues with the dr in russia... i said i didn't want to post about it,   and received pms about it.. i   still didn't say anything


well, i will say now

one of the big reasons for me wanting to go to another surgeon is because while i was at the clinic, after surgery, the other patients would talk, tell you about stories

became  aware of 3 other cll cases with bagirov,

1- a woman that lengthened maybe 7 cm....   she had her frames taken off, then either fractured her legs or developed x legs... she had to come back to clinic, and could not walk...  this was approximately 2 years after surgery... i never met this woman, but a few females there had, and even had photos... i think she has a diary, but on a russian site

2- a russian man that developed bad ballerina, and to my knowledge still has frames on 11 months later after lengthening 4 or 4.5 cm... i have spoken to this individual,and so has wannabe

3- this one is the worst and is the incident i had alluded to i an earlier post.... dr fahri, who is dr bagirovs assistant  showed me in his laptop a man that had surgery and lengthened quite a bit....  his legs looked extremely bad... the worst x legs you can imagine..... dr fahri told me he had done this in baku, and laughed, said that bagirov didn't even know he had performed this surgery... but to him, the situation was comical... 

i did not want to state the last thing publicly, as  dr fahri explicitly told me bagirov had no idea he had done it... but it's relevant, because dr fahri is the one that basically supervises everything after the surgery


The 2 first stories i am aware about, the girl who fractured her leg (her leg got bent actually, so she had to redo the process), the reason that happened was because she started doing sports/activities before she was allowed too. You are supposed to use crutches for a while after frame removal and then for at least 6 months not do any sports. So since she didnt follow the doctors advice she still has issues 2 years after surgery. At least im pretty sure this is the same girl as you where talking about.

The russian man, i know him and have talked a lot with him, and i already mentioned that he blames himself for his problems now, he admits to not following instructions, lengthening to fast and not slowing down when he got a severe infection, also overexerted himself to early, and developed ballerina in one leg. He also had like 6 mm discrepancy between his legs when he was done with the lengthening phase and had to fix that, and a few months afterwards decided to add 5 mm more to both legs. This coupled with slower than average consolidation is the reason why it took him so long, but he doesnt blame Bagirov.

The last thing you mention i have never heard about, who did the surgery in Baku? i have a hard time imagining Fachri would just show you a failed case of a patient if he himself was the surgeon and he was at fault for the failure. He is a doctor so it doesnt sound believable he would laugh if he caused the patients those problems. I know Fachri and have talked a lot with him. More likely that patient didnt follow instructions and most likely lengthened to much or turned those other screws that are used for correction more than he should have.

Btw i got a PM (will keep the user private) that told me Bagirovs clinic does not allow patients to lengthen at home anymore because some patients dont "follow their instructions" and hurt themselves. This poster was going to do the surgery with Bagirov but might not be able to now because he cant afford to be away for 3 months to lengthen.

Im almost 100% sure this decision of the clinic has a lot to do with your case of lengthening and how you completely neglected their recommendations.

Like (0)

You must be logged in to post a reply.

Related Topics