VERY FERST STEP - INDIA - Dr. Anil Raheja

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Quotewe do not insert the femur and tibia rods in at the same time
due to the theoretical risk of fat embolism from reaming the medullary canal of more than two bones at a time
So if reaming the canal creates the risk of fat embolism I'm assuming it has something to do with the debris floating around in the canal, and since the debris is never removed...is there forever a risk of fat embolism?

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Hey Dis

Would love to get an update from you.


My situation is much improved  . Tomorrow I begin sitting and standing again. If you told me two days ago the probability that I can stand in two days I would have given an unequivocal 0% chance. Always important to remember that we have good days and bad days, and a good day is usually right around the corner.

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Disobedient,

I like your diary and your story because it's not too common to find info on cosmetic leg lengthening using the monorail frames, and much less doing simultaneous femurs & tibias at the same time. If I'm correct, you are just doing external frames and won't have any rods/nails inserted in your bones, right? This idea thrills me because this way there's no need to have a second surgery to insert the rods/nails or a third one to remove them later on.

I'm thinking that I would like to try double lengthening like you did and do 8cm (4cm on femurs & 4cm on tibias). How long do you think it will take and how long will I have to have the frames on before they remove them?

On a scale 1 to 10 (1 being little pain & 10 being unbearable pain), what is your pain like, and are you taking heavy narcotics or pain injections? BTW, how do you manage to use the toilet and move around?

Here are two links about a british girl named Emma Richards who appeared in the TV series Repley--Believe it or not! I saw the episode more than 10 years ago and it is very interesting because she lengthened her femurs using monorail frames. I wish I could find the video-- it is episode 4 from season 4. I googled it but couldn't find it.

http://www.telegraph.co.uk/news/uknews/1374808/Diary-of-stretched-girl-reveals-anguish-of-operation.html

http://news.bbc.co.uk/2/hi/health/1147874.stm




 

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For those interested in what this Nova Special Surgery Hospital looks like, here's a link to a video:



or you can see their own youtube video collection:

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Hey girl are u ok there? Im currently lengthening here in India. A couple of patient  and i are interested to meet up with u if u don't mind as we're actually genuinely concern for u. We're not that far away from u, so please do send me a PM if u're all right with it.

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Hey hand_sanitizer,

What Dr are you doing LL with?

I hope you are doing well Disobedient.

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With Dr srinari, russianblue's housemate.
Disobedient, u havent been posted for a while. Are u allright?

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Good Evening


I wanted to update you guys from 3days ago but I was little bit lazy to  do that ..

so let's start with

My x-ray


I had an x-ray a week ago.. and the problem of the reunion is solved, also the x-ray shows that I lengthened  3.1 cm -1.5 in femur and 1.6 in tibia-  (note this was  8days ago,so by now I'm 4.7cm )

 I asked from them to save my last x-ray pictures, but I forget to save the new one , since I was totally  shock  that the X-ray will cost me  this time 5000 INR !!!
I used to pay 2000 INR, I don't know what wrong with nova but I'll not gonna do the x-ray with them next time for sure ... any way these are  my x-ray..

 






2mm

as I told you guys that I started to do 2mm in my femur side there were no side affect that I notice nor pain but when I told the Dr that I had been doing 2mm in my femur side during last week, he advised me to stop doing that RIGHT NOW.. so I did ..
 


The Pain

well I know this surgery is not pain free, however I really should point out that the real pain will start in the distraction phase... with every millimeter I gained  the pain increased too...

my tibia is the most part that heart me.. and the most part that I have problems with for example   

1-pin site

2 days ago, I had bleeding in the upper pin site of my tibia (it's exactly in my left knee)..
the pain was horrible.and it doesn't happen suddenly..
I remember I mentioned about that to my Dr one week ago and he checked the pin site and said its okay and i don't have to worry about it since there is no discharge from the pin site., so there is no infection. but the pain remain same, no actually it started to increase by the days then, he send a nurse to change the dressing to me and told me to take antibiotic ...

2-skin burning sensations

this is one of the weird pain that I have, cuz there is no redness in the skin or any visible sign that you could see,just the feeling of that something burn your skin, the pain come all of a sudden and disappear  suddenly too...! I did experience the same feeling  few months ago when I applied chemical peeling solution on my skin  for more than required time .. the pain is awful !
but why would I have a similar pain in one area ...
this really strange !!!


My femur part

my femur part is good, no it's more than good comparing to my tibia... I don't have any problem there, I can say there is almost no pain or very slight pain in my femur side ! I know this maybe  a shock to some of you but this is what I feel
the only problem with  doing LL to the femur part "so far" that you cant sleep in your side and this will cause pain to your back by the time ...

muscle cramps

this is another problem that I have, I think everyone experienced muscle cramps in his life but with LL, it although it last for few sec but it is a real nightmare cause every time it happen you'll feel that the pin just inserted in you skin ...


Doctor visit

yesterday Dr Rah sent a doctor to check the pin site to me "this doctor is one of the surgical team who operated the surgery to me " he said there is no infection on the pin site and this is because of stretching of the skin.. he said the burn sensation that I feel is caused by the nerves...
so he prescribed for me 5 medicine

ACE-PROXYVON
PAN-D
UBICAR - for muscle relaxation
LYRICA- for nerves relaxation
Nitrest - in case if i have sleeping problem
and finally calcium   

SO TODAY  I must say the the muscle cramping reduced by 60%, while the burn sensation is still exist no improvement yet.. 

 

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MAC

thanks 

Kilokahn

there will be no nails inside, and according to him there is no need to such a thing and I can walk normally without problems few months later ...
and so far I think I'm doing well, so I'll not stop lengthening my femur side

Shorty

it seems there is no major risk doing the both part, but he indicated too that the rehabilitation is much more difficult because of lengthening muscles on the both sides ....
great link , thanks


Russianblues

HI
That's Great News, congrat,  I remember when I was able to stand for few sec "before the distraction" I was so happy too...
tell me how much did you lengthened so far?

thanks for your support 


Leonardo2013


Hi Leo

well I can't give you the exact time that you will need cuz that is vary from person to another but here is the approximate calculation

day one -surgery ..
15 days before the distraction
40 days to get 8cm ( if you will length 1mm for femur and 1mm for tibia per a day)
6 weeks to 2 months for bone consolidation (you may take more time)
then they'll remove the frame
 so you may take 3.5 to 4 months

you are just doing external frames and won't have any rods/nails inserted in your bones, right?

yes

On a scale 1 to 10 (1 being little pain & 10 being unbearable pain), what is your pain like?

in my femur there is very slight pain unlike my tibia ... before having problem with the pin site and the other problem that I listed above ,, I would say the pain is smth around 4..
with these problem  it's maybe 5 or 6 "but good medication should decrease the pain "

when my PT trying to bend my knee to 90 deg the pain is 9 , and this will last for few min

are you taking heavy narcotics or pain injections?

I'm taking Ultracet

how do you manage to use the toilet and move around?

with this  and by the helping from my caretaker
 

its a wheel chair with commode


about the British girl, Good for her, it is amazing that she did 5 inches in one part
I really I would love to see the ep too


hand_sanitizer

Hi, yes for sure I'll send you my address
but I would like to meet you after  1-2 weeks  since  friend of mine will go into same surgery and I expect that he will discharge after 10 days. since he'll be in the same hotel .so maybe you could meet him too


Blackhawk

I'm doing good
thanks


 

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Quote from: Disobedient on November 14, 2013, 06:12:02 PMKilokahn

there will be no nails inside, and according to him there is no need to such a thing and I can walk normally without problems few months later ...
and so far I think I'm doing well, so I'll not stop lengthening my femur side

How long is he telling you that you'll need to be wearing those fixators? Multiple orthopedic surgeons state that adults doing lengthening with purely external methods are required to wear the fixators 1 and 1/2 months to 2 months or longer per centimeter lengthened. If you're going for 7 centimeters on each segment you're looking at over a year until your bones will be strong enough to take on walking without the fixators. I'd suspect that since you did both segments at the same time it's going to take even longer than the usual expected recovery time.