Arche,
I don't think people should do LL on two segments at the same time either. It is risky. But it's been done and you shouldn't be rude and criticize her for doing it.
I hope she continues her diary and I hope the best for her. But I wouldn't want to continue writing a diary if I had to read the bullsh!t you're posting.
There are numerous success stories of people doing both at once, it's just requires excellent care. I believe you'll do just fine, but I suggest an around the clock person to stay with you and take care of issues.
Take care, you're going to look beautiful after you get through this, and we're all with you. I would only do 5cm in each section and stop. Make sure you follow your Doctors advice on how much to lengthen each section per day.
Quote from: Arche on November 01, 2013, 08:01:19 PM
To the woman who is doing this surgery, I apologize if my last comment offended you. I am just bewildered that you have decided to do this to yourself. I am not a bad person, and I do not mean to do harm to any one person, however, I think knowledge is the most important "tool" that can be utilized when going into this procedure. I wish you the very best, and please prove me wrong and recover fully. I am absolutely rooting for you, but you really stacked the cards against yourself. Once again, I hope you continue with your diary and update it with pictures.
To the person who made the above comments, you are a real dbag. I apologize if my comment offended you. I am just bewildered that you have decided to berate someone in a vulnerable position (ie. many broken bones, foreign country) who came here to willingly/openly share her story and in return to receive emotional/practicable support for the challenging journey that she has already embarked on. You say you are not a bad person, and that you do not mean to do harm, however....blah blah blah.... (Arche, please be kind.)
Dear Disobedient,
Please try not to be discouraged. There are people here who are eager to hear your story and will do our best to offer support (and I think Arche will too henceforth). We are wishing the best for you!!! 
I hope your fever/possible malaria is being resolved. Please keep us updated.
Livelife
Good Evening everyone ...
So today I received my blood test result and it stated that I'm not infected with malaria
but it shows that my hemoglobin levels was low "9" although I had blood test two weeks before the surgery and it was 12 !!!!
Anyway,the fever disappeared and I'm feeling much better today...
Thank you all for your support, I do really appreciate it..
An_Apple_A_Day
Yes I'm so brave..
Can you even weight-bear with both femur and tibia in a fixator?
my dr. is not recommend that in the distraction period, but after the distraction I think I could do it.
and thanks for your wishes
LiveLife
Yes, I'm so independent 
Thanks for your support, and I'll keep you update
orlandoflorida
I mentioned in the beginning of this post that I'm brave so ... So I can't say to you anything but I'm so brave 
thanks
Goodnews
Hello Goodnews,
right now I'm feeling well, and actually I do have PT who is coming everyday for about an hour and I have caretaker as well ,who is coming everyday "from 9to9",however I cant afford 24 hours caretaker..
Also, since I don't have fever right now so I don't think I have bone infection, but I'll go on your advise and I'll take the medicine for preventing malaria ..
You mentioned that your read some stories of people doing both and they succeed , do you have any link?? I really need to read such a thing ..
Thanks a lot for your support
Sweden
Hi Sweden
I read your post in old forum about the garlic and I tried some garlic with chicken soup, however after I read Russianblues's post I think I'll just take Allicin supplementation
You do have regular physical therapy for at least 2 hours right?
No, for one hour.. and he is concentrate in making mr do bending exercises more than any thing else right now,,
But how could I know if the device malfunctioned? I'm trying to pay attention in any change as much as I can, However I'm still don't know how could I determine whether the device is malfunctioned or not !
My doctor told me to do just one turn and he'll do x-ray after a week to check the bone again, but I'm doing 2 turns and I'll see after a week what will happen ..
about the intramedullary nails and the plates, I don't think I got it ! what should I do intramedullary nails AFTER I done lengthening!! my surgeon never mention such a thing before !
I think my eating habit is quite healthy
I drink 1-2 glass of skim milk daily, and 1-1.5 L of water
Morning ( I choose one of these )
* Muesli Cereal with milk
*whole grain toast with peanut butter/ cheese/ egg
* Few pcs of Digestive biscuit with milk
Lunch
* salad Chef "similar to subway but with more healthy options like soup and salad"
*subway
and once a week I tried one of Indian dishes
Dinner "this is fixed 
"
* yogurt with cucumber sometimes with soup
snack (one of these)
*apple
*banana
*Digestive biscuits
However, when I had the fever I didn't eat any things except one biscuit before the medicine, and even today when I ate slice of toast I felt so sick ... but I'll try from tmw to return to my old regime although I think it will take me few days to do this ...
short_and_depressed
hey you
hummm well I guess 5'5 is excellent..
about the pic I wanted to upload my x-ray but I don't have scanner and I tried to capture pic for my feet to show Sweden that I still don't suffer from ballerina, however the Q is low since I took it "my maid did that actually" with my laptop's cam
Blackhawk
yeah don't worry I'll keep continue my my diary
Thank you for continuing your diary. Everyone that does something someone else doesn't understand will get shots thrown at. Don't mind those people.
I'm not supporting the choice you made but it's all up to you - and maybe your doctor.
The picture quality looks better now but that picture doesn't show us anything. Ask your maid to take 30-40 pictures of your legs at different angles and then you can choose the best looking ones. That's how you take pictures.
I think I have 2.000 pictures from my trip in India. You will want to have pictures of things you did in your life for later.
You have to find out if your getting a nail inside your bones after your finished lengthening. You will be permanently hurt if you need to wear the monorails for 10-12 months and not exercising as you should(but can't bc of monorails).
Ask you doctor how he(she?) will approach this.
It sounds as if you have no clue of what you're doing or understand the seriousness in this procedure.
You shouldn't have any ballerina for now but it'll strike you really bad later around ~5cm which is where I wish you'd stop lengthening.
I'm telling you this bc I don't want to see you get any life long conditions and feel miserable about yourself.
Your doctor should be able to tell you how the lengthening device acts when it malfunctions. EVERY monorail at Dr Sarin malfunctioned so stay alert.
Advice on the road: lengthen your femurs faster than your tibias. Try to move around for several hours and stretch as much as you can. Sleep with straight legs - NO PILLOW UNDER YOUR KNEES even if it's more comfortable. They will get stuck in that position.
Reach for your toes. Try to eat more and drink at least 2l of water/day. Don't sit on the edge of the bed with your thighs or else your femurs will bend badly.
Take care and don't forget the pictures.
Quote from: Sweden on November 03, 2013, 05:06:11 AM... NO PILLOW UNDER YOUR KNEES even if it's more comfortable. They will get stuck in that position.
I wonder how many patients follow this advice compared to the ones that ignore it or are never even given that information. It's almost crazy how something as simple as pillow positioning can affect the outcome of the recovery process.
Dr. Parihar mentioned this exact problem. I think this information will be relevant to you Disobedient since you are doing both tibial and femur lengthening, even though you're using monorails instead of the classic frames.
"Proper limb positioning taught early on minimizes the chances of contractures developing later. The commonest cause of a flexion deformity is the tendency to keep a pillow lengthwise under a tibial frame. This causes flexion at the knee. This should be prevented by repeatedly correcting the tendency and keeping an pillow only under the distal most ring in the frame thus allowing the knee to remain fully extended at all times. The other point to be remembered is the necessity of passive dorsiflexion splints for the ankle. This can be easily done by using a strap or bandage around the plantar aspect to the forefoot which is attached to the frame and keeps the foot in a neutral position. In patients undergoing significant tibial lengthening, this splint is required all through the day, and especially in the night. To prevent hip flexion contractures, especially in patients with a femoral frame, the patient has to be taught to lie prone for a few hours a day, and to extend the hip by taking the leg off the edge of the bed."
http://www.limblengtheningforum.com/index.php?topic=22.0
Quote from: Kilokahn on November 03, 2013, 06:33:49 AMI wonder how many patients follow this advice compared to the ones that ignore it or are never even given that information. It's almost crazy how something as simple as pillow positioning can affect the outcome of the recovery process.
Dr. Parihar mentioned this exact problem. I think this information will be relevant to you Disobedient since you are doing both tibial and femur lengthening, even though you're using monorails instead of the classic frames.
"Proper limb positioning taught early on minimizes the chances of contractures developing later. The commonest cause of a flexion deformity is the tendency to keep a pillow lengthwise under a tibial frame. This causes flexion at the knee. This should be prevented by repeatedly correcting the tendency and keeping an pillow only under the distal most ring in the frame thus allowing the knee to remain fully extended at all times. The other point to be remembered is the necessity of passive dorsiflexion splints for the ankle. This can be easily done by using a strap or bandage around the plantar aspect to the forefoot which is attached to the frame and keeps the foot in a neutral position. In patients undergoing significant tibial lengthening, this splint is required all through the day, and especially in the night. To prevent hip flexion contractures, especially in patients with a femoral frame, the patient has to be taught to lie prone for a few hours a day, and to extend the hip by taking the leg off the edge of the bed."
http://www.limblengtheningforum.com/index.php?topic=22.0
This guy seems super switched on. Was it you who was planning on going to him for LL? I remember a memeber early in this forums days discussing him.
EDIT: I see it was. I wonder if he would do external only? One of my biggest concerns with LL is the tendon damage to the knee when inserting and removing the nail for LON or LATN.
Quote from: An_Apple_A_Day on November 03, 2013, 12:17:23 PMThis guy seems super switched on. Was it you who was planning on going to him for LL? I remember a memeber early in this forums days discussing him.
EDIT: I see it was. I wonder if he would do external only? One of my biggest concerns with LL is the tendon damage to the knee when inserting and removing the nail for LON or LATN.
He does external only also. He's actually one of the people I may lengthen with this December. I haven't fully decided yet.
I'm unable to do external only simply due to the amount of time I'd have to be off work. Children have it easier when it comes to external only methods since they'll only need to be in frames about a month per centimeter lengthened, whereas for adults it's two months or more per centimeter. Psychologically I don't think I'd be able to deal with being in frames that long.
Disobedient, I hope you're not planning to do external only. Especially with both segments being lengthened, that's going to be much tougher than you've thought possible.
hey everyone, I'm new to the forum, come in to say I'm supporting Disobedient recovery from the surgery.
I plan to do LL in February/March and will have a diary on here when that happens.
You must be logged in to post a reply.