Compendium of Outcomes

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Thank you very much, Android. I got it.

Optimistic1

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Is Anyone working on this ?

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Quote from: jojo on February 23, 2018, 06:31:28 AMIs Anyone working on this ?

I could add my outcome over time, and those of several other Paley patients I know (e.g. Purushrottam - great outcome), but there are some problems with compiling outcomes here in this forum (and in general):

• Technology improves. The outcomes from STRYDE patients should be a lot better than those from PRECICE 2.2 patients. This will make a number of diaries obsolete.
• This particular forum doesn't allow the person compiling outcomes to update a post. Thus we'll end up with more and more posts in this thread as time passes by and patients move through stages (surgery -> lengthening -> consolidation -> walking -> sports -> nail removal). I've proposed to Admin that we upgrade the forum, but got no reply. The upgraded forum would allow editing posts, and also making them wikis, so anyone can edit, not just one person who started the thread.

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Moderators, this is serious. Neither are you commenting neither taking action on the above points. This is like you are playing with the lives of future LLers by making them unable to make the most out of the information posted here. Please comment(and if possible take actions or tell why the following is not possible):
-upgradation of the form as provided by OYG
-why spreadsheet kind of data of of former and current LLers can't be uploaded.
-why are you not commenting on any suggestions to improve the forum?
-are their any financial or technical constraints? If yes please share with us so that we can crowdsource the solutions for the same.
Hoping to get a fast reply this time.

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Quote from: Thatdude950 on January 05, 2016, 11:19:16 AMPoor outcomes:
[Emanuel- Serious complications, multiple corrective surgeries, loss of functionality
[
[
The word "outcome" is quite misleading as it is all a big and yes for some long process, and "outcome" indicates a final result.
I am definitely doing well now. Doing everything normally and doing sports every week. Having beaten players in tennis lately that are better than I was pre-LL.
When the bone is there, everything else will come back as well. Unless some serious stuff like nerve damage has been done.

The list should be updated and corrected  for sure.

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Quote from: emanuel on August 21, 2018, 06:18:02 PMThe word "outcome" is quite misleading as it is all a big and yes for some long process, and "outcome" indicates a final result.
I am definitely doing well now. Doing everything normally and doing sports every week. Having beaten players in tennis lately that are better than I was pre-LL.
When the bone is there, everything else will come back as well. Unless some serious stuff like nerve damage has been done.

The list should be updated and corrected  for sure.

Hi Emanuel. I concur with that) But if it's outcome, I'd say I had a good one and I'm not even on the list, so definitely out of date!

Good to hear you're doing sports and playing tennis. Tennis was my youth pretty much, probably what got me thinking about LL. I always thought if I was just a couple of inches taller, I'd have a much better serve.  These days I don't play so much, but I follow the major tournaments and I'm a big Roger fan. You must be a Rafa fan with a Spanish sounding name). Disappointed Roger lost to Novak at Cincinnati but Roger wasn't in form, too many unforced errors. No chance in current form at US open.

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Quote from: taller_in_Kiev on August 21, 2018, 09:37:50 PMHi Emanuel. I concur with that) But if it's outcome, I'd say I had a good one and I'm not even on the list, so definitely out of date!

Good to hear you're doing sports and playing tennis. Tennis was my youth pretty much, probably what got me thinking about LL. I always thought if I was just a couple of inches taller, I'd have a much better serve.  These days I don't play so much, but I follow the major tournaments and I'm a big Roger fan. You must be a Rafa fan with a Spanish sounding name). Disappointed Roger lost to Novak at Cincinnati but Roger wasn't in form, too many unforced errors. No chance in current form at US open.


Actually Emanuel is just my fake name for LL  But you guessed right about Rafa, it's my favourite player.
When playing tennis my stamina is still worse than pre LL. Running speed feels fine, though I haven't measured it. I hope it will all come back 100%, planning to play league games and tournaments again next year.
Service feels somewhat easier with the extra height (better angle), especially as I had been very short before.

How about your stamina when doing sports, is it back to 100%?

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Rafa is the undisputed king of clay! 11 f***ing French opens! How??! I didn't like him in the beginning, but I have a lot of respect for him now.

I'd say my stamina was as good as if not better than before? I ran for half an hour yesterday and hardly ran out of breath.  The only think that's lacking is flexibility around the hips, but that's because I haven't worked at it so much.

Don't forget you're not fully recovered yet. You still have rods inside!  Once you take those out, then the real recovery begins as your bone marrow fills up again as well as any holes from screws etc. Your bones will get stronger and you'll feel better as time goes by.  When are you planning to come to Kiev? I have to return to the UK in the first week of September, sadly my father is very ill, but I may return later, I'll see. 

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Quote from: taller_in_Kiev on August 22, 2018, 08:22:26 PMRafa is the undisputed king of clay! 11 f***ing French opens! How??! I didn't like him in the beginning, but I have a lot of respect for him now.

I'd say my stamina was as good as if not better than before? I ran for half an hour yesterday and hardly ran out of breath.  The only think that's lacking is flexibility around the hips, but that's because I haven't worked at it so much.

Don't forget you're not fully recovered yet. You still have rods inside!  Once you take those out, then the real recovery begins as your bone marrow fills up again as well as any holes from screws etc. Your bones will stronger and you'll feel better as time goes by.  When are you planning to come to Kiev? I have to return to the UK in the first week of September, sadly my father is very ill, but I may return later, I'll see.

How much did you lengthen bro and was it both femurs and tibia or just one segment, glad to hear athleticism is still good after surgery

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Quote from: Racurz on August 22, 2018, 08:41:03 PMHow much did you lengthen bro and was it both femurs and tibia or just one segment, glad to hear athleticism is still good after surgery

I put a cm for each French open Rafael Nadal won - that b@stard! (femurs only)