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Posted on Nov 22, 2024, 2:27 pm
#241
Kilokahn, had something to ask you regarding getting the surgery done by doctor Parihar, I'm aiming for 6 cm on my tibias and for method, I'm considering LON external, I have a few things to ask you about

1.do they provide you with physiotherapy during the lengthening phase or distraction phase?

2.since you increased by 6 cm, how long did your lengthening phase last? and if I recall correctly, you didn't have an intramedullary nail in place, so you had to wear it during the consolidation as well. If I opt for LON external fixator, how long will the lengthening phase last and probably I can return home

3. Can I expect assisted walk after say like 90-100 days of lengthening? Yeah I've got some budget constraints in placed as well distance issues so I'd like to return home and also avoid complications, if any are to arise, and if embolism is something, then I'll probably not return until I get unassisted walking, how long does it take for unassisted walking over LON external fixator?

4. How can I get more information about this from you? Like some more details, I'm considering it getting done sometime in the future, and have you regained most of your athletic abilities now? I'll make up my mind based on that and probably contact doctor Parihar

Kindly help me out, will be very helpful. Thank you
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Posted on Nov 22, 2024, 3:28 pm
#242
Oh, one more question to add, I heard from his interview with victor that you were there alone, did they provide you a caretaker during the lengthening phase? And approximately how many days after the surgery can I return home, for LON external fixator? How long was your stay there?
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Posted on Nov 23, 2024, 2:34 pm
#243
Kilokahn I'm sorry about texting on a thread that is a decade old but I, had something to ask you regarding getting the surgery done by doctor Parihar, I'm aiming for 6 cm on my tibias and for method, I'm considering LON external, I have a few things to ask you about

1.Do they have LON external fixator now? Do they provide you with physiotherapy during the lengthening phase or distraction phase?

2.since you increased by 6 cm, how long did your lengthening phase last? and if I recall correctly, you didn't have an intramedullary nail in place, so you had to wear it during the consolidation as well. If I opt for LON external fixator, how long will the lengthening phase last and probably I can return home

3. Can I expect assisted walk after say like 90-100 days of lengthening? Yeah I've got some budget constraints in placed as well distance issues so I'd like to return home and also avoid complications, if any are to arise, and if embolism is something, then I'll probably not return until I get unassisted walking, how long does it take for unassisted walking over LON external fixator?

4. How can I get more information about this from you? Like some more details, I'm considering it getting done sometime in the future, and have you regained most of your athletic abilities now? I'll make up my mind based on that and probably contact doctor Parihar

5. Where did you accomadate during your stay? And you didn't go with any relatives right? Did they provide you with a helper/caretaker, or were they available when you needed them?

6.About say getting a LON done, where an intramedullary nail is inserted, does it have permanent complications? My purpose is cosmetic as well

Kindly help me out, will be very helpful. Thank you
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Posted on Nov 24, 2024, 4:27 am
#244
Quote from: Viggen_18 on November 22, 2024, 06:55:52 AMHey! I'm new to this forum and I'm considering limb lengthening surgery in India, I saw about doctor amar sarin and then came to find out about his disasters. I found about doctor Mangal Parihar in this forum, and I'd like to know something.

1.Does he offer cosmetic limb lengthening surgery with LON external fixator (ilizarov apparatus)?

2. Does he have any package like the others, which includes stay, medicines, physiotherapy, food, x ray, walking aids, etc?

3.how can I get in touch with him and get this done?

1) He offers externals, externals with hexapod, and LON. Looking to offer internals again once Fitbone becomes available.

2) He doesn't offer comprehensive packages that include stay, as short term rentals are hard to come by in Mumbai. Best advice would be to work out a deal with a nearby hotel. Many of them have significantly reduced rates for stays of a few months, and I got one that worked out to $50 daily. Medications during the hospital stay are included, but anything additional after that is out of pocket. He works with a guy who is able to provide walkers, wheelchair, etc, but that is an out of pocket expense. There are very budget friendly options and more expensive options depending on your needs.

3) You can email him at [email protected] ... He also has a resource page for cosmetic patients here: https://sites.google.com/site/cllrpatients/faqs/cosmeticlengthening

Quote from: Viggen_18 on November 22, 2024, 02:27:08 PMKilokahn, had something to ask you regarding getting the surgery done by doctor Parihar, I'm aiming for 6 cm on my tibias and for method, I'm considering LON external, I have a few things to ask you about

1.do they provide you with physiotherapy during the lengthening phase or distraction phase?

2.since you increased by 6 cm, how long did your lengthening phase last? and if I recall correctly, you didn't have an intramedullary nail in place, so you had to wear it during the consolidation as well. If I opt for LON external fixator, how long will the lengthening phase last and probably I can return home

3. Can I expect assisted walk after say like 90-100 days of lengthening? Yeah I've got some budget constraints in placed as well distance issues so I'd like to return home and also avoid complications, if any are to arise, and if embolism is something, then I'll probably not return until I get unassisted walking, how long does it take for unassisted walking over LON external fixator?

4. How can I get more information about this from you? Like some more details, I'm considering it getting done sometime in the future, and have you regained most of your athletic abilities now? I'll make up my mind based on that and probably contact doctor Parihar

Kindly help me out, will be very helpful. Thank you

1) Physiotherapy is included as part of what you pay for the surgical fees, while you're in the hospital. After you leave, you have to pay for physiotherapist visits, depending on their individual rate, which is partly based on how far they have to travel to get to you. I think my physiotherapy averaged out to $11 per session at the hotel. Any physiotherapy I received at Dr Parihar's clinic during his biweekly checkups ended up being free.

2) I was there from the end of June until the beginning of October. Lengthening began one week after the initial surgery. If you go the LON route, the fixator is removed once your lengthening is over. You just have to stay in Mumbai during the lengthening phase, and when you return home you just send x-rays to Dr Parihar once a month so he can check on your bone healing.

3) LON allows early removal of the fixator, but you won't be allowed to graduate to crutches/walker until Dr Parihar is satisfied with your level of bone healing to allow it. How early depends on individual genetics and stuff.

4) You can continue to post here.

Quote from: Viggen_18 on November 22, 2024, 03:28:06 PMOh, one more question to add, I heard from his interview with victor that you were there alone, did they provide you a caretaker during the lengthening phase? And approximately how many days after the surgery can I return home, for LON external fixator? How long was your stay there?

They will appoint someone to take care of your needs while you're in the hospital. That'll include things like giving you your food and emptying your pee jug and all that. Once you're out of the hospital, that's up to you to arrange. It's one of the reasons I recommend a hotel, as the staff will take care of things like bed sheet changes, emptying trash, getting you transportation to the hospital, etc. You can leave after the lengthening phase and the fixator is removed, in case of LON. For 6 cm, probably 3-4 months.

Quote from: Viggen_18 on November 23, 2024, 02:34:30 PMKilokahn I'm sorry about texting on a thread that is a decade old but I, had something to ask you regarding getting the surgery done by doctor Parihar, I'm aiming for 6 cm on my tibias and for method, I'm considering LON external, I have a few things to ask you about

1.Do they have LON external fixator now? Do they provide you with physiotherapy during the lengthening phase or distraction phase?

2.since you increased by 6 cm, how long did your lengthening phase last? and if I recall correctly, you didn't have an intramedullary nail in place, so you had to wear it during the consolidation as well. If I opt for LON external fixator, how long will the lengthening phase last and probably I can return home

3. Can I expect assisted walk after say like 90-100 days of lengthening? Yeah I've got some budget constraints in placed as well distance issues so I'd like to return home and also avoid complications, if any are to arise, and if embolism is something, then I'll probably not return until I get unassisted walking, how long does it take for unassisted walking over LON external fixator?

4. How can I get more information about this from you? Like some more details, I'm considering it getting done sometime in the future, and have you regained most of your athletic abilities now? I'll make up my mind based on that and probably contact doctor Parihar

5. Where did you accomadate during your stay? And you didn't go with any relatives right? Did they provide you with a helper/caretaker, or were they available when you needed them?

6.About say getting a LON done, where an intramedullary nail is inserted, does it have permanent complications? My purpose is cosmetic as well

Kindly help me out, will be very helpful. Thank you



1) They've always had LON. Physiotherapy is provided at no charge while in the hospital, or when you come in for your checkups. They give you a worksheet of exercises to perform on your own, and if you elect to have more physiotherapy sessions at your place of stay, they can arrange it for you, but it's at your expense. It's cheap though. He will expect you to continue your exercises when you are done lengthening and still in consolidation, and will request follow-up x-rays once a month so he can check on your bone healing.

2) See previous response.

3) See previous response.

4) See previous response.

5) I stayed at Hotel Maharana Inn a few blocks away from Dr Parihar's clinic: https://www.hotelmaharana.com/ I went to India by myself. Anything I needed while at the hotel was taken care of by the staff that worked there.

6) LON has a risk of chronic knee pain that's referenced in the medical literature. Some doctors say the rate is 20-25%, but so far Dr Parihar hasn't had that come up in any of his patients.
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Posted on Nov 24, 2024, 10:03 am
#245
Thank you so much for this, kilokahn, thanks for providing me with all the info you observed on ground, ahh one more thing, though doctor Parihar didn't have any case were the patient developed a knee pain, just to be on the safe side, considering the external fixator without the nail, sounds just the thing for me, but my only problem is the prolonged stay, in your case, as you mentioned that you had to stay there from the end of june to the beginning of october, was it just from the surgery till the end of lengthening, or did it also include consolidation? How long did you wear the frame for? Your stay at the hospital was a week long? Or was it a bigger time period? Thanks a lot kilokahn, for even providing me with the link for the hotel, and I'm very sorry for asking so many questions
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Posted on Nov 24, 2024, 10:33 am
#246
Quote from: Viggen_18 on November 24, 2024, 10:03:25 AMThank you so much for this, kilokahn, thanks for providing me with all the info you observed on ground, ahh one more thing, though doctor Parihar didn't have any case were the patient developed a knee pain, just to be on the safe side, considering the external fixator without the nail, sounds just the thing for me, but my only problem is the prolonged stay, in your case, as you mentioned that you had to stay there from the end of june to the beginning of october, was it just from the surgery till the end of lengthening, or did it also include consolidation? How long did you wear the frame for? Your stay at the hospital was a week long? Or was it a bigger time period? Thanks a lot kilokahn, for even providing me with the link for the hotel, and I'm very sorry for asking so many questions

I went home with the frames still on and had them removed by a local trauma surgeon using my employee health insurance from my job. I had the frames on for 1 year and 4 days lengthening 6 cm. For externals without a nail, you should expect to have the frames on for 1.5 - 2 months or longer per cm lengthened. You only need to stay in Mumbai for the lengthening phase.

I was in the hospital for either a week or 10 days. It's been so long that i don't remember, but i probably wrote it in my patient experience on this site. 
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Posted on Dec 1, 2024, 8:01 am
#247
Kilokahn, had somemore things to ask you, hope you don't mind:-

1. Did you get a 6 cm lengthening done on your tibias Or was it on your femurs?

2. It's been a long time since you got this surgery done, like 9-10 years i believe, can you run now? Did you regain your athletic abilities or most of it? Can you do everything that you could do before normally, confidently and comfortably?

3. Do you still have to stretch every day Or every once in a week in order to not lose some functionality or not face any issues?

4. Can you ride a bike and maintain balance? Have your reflexes gone back to the level it used to be Or it's still not right there?

And btw, you didn't get the hotel for cheap, they actually charged you there standard rate, although I certainly agree you have got same facilities at a cheaper rate here than any western hotel offers at that price. Help me out with these questions. Thank you
 
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Posted on Dec 1, 2024, 3:57 pm
#248
Quote from: Viggen_18 on December 01, 2024, 08:01:16 AMKilokahn, had somemore things to ask you, hope you don't mind:-

1. Did you get a 6 cm lengthening done on your tibias Or was it on your femurs?

2. It's been a long time since you got this surgery done, like 9-10 years i believe, can you run now? Did you regain your athletic abilities or most of it? Can you do everything that you could do before normally, confidently and comfortably?

3. Do you still have to stretch every day Or every once in a week in order to not lose some functionality or not face any issues?

4. Can you ride a bike and maintain balance? Have your reflexes gone back to the level it used to be Or it's still not right there?

And btw, you didn't get the hotel for cheap, they actually charged you there standard rate, although I certainly agree you have got same facilities at a cheaper rate here than any western hotel offers at that price. Help me out with these questions. Thank you

1) Tibias. Whole experience written here: http://www.limblengtheningforum.com/index.php?topic=634.0

2) Yep. Legs feel totally normal. Only thing is a reduction in running stamina, but not much of a runner anyway.

3) Stretching hasn't been an issue at all.

4) Yes. Eventually your body adjusts to your new biomechanics.
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Posted on Jan 22, 2025, 7:13 pm
#249
25 Indian M considering LL surgery under Dr Mangal Parihar! Any suggestions welcome?

Hey all
I’m a 25 y/ o fit Indian male 172-175 cm( though got measured at 176 at Dr Parihar’s). I’ve a fairly decent sporting background and based in Mumbai only.

Considering max LL in tibia and femur with lon and fitbone respectively. He said at my ratios ( wide enough wingspan), fairly normal sitting height, and I have slight knock knees, I can expect about 7-7.5 cm in femur with fitbone and 5-6 cm in tibia with lon, though at any time function will be prioritised over length.
I need appropriate questions to ask?   Common complications and worst complications observed under him?   Any embolism, non union, or long term damage ( either during the process or after it)?

Things to watch out for ? Past patient conversations ( if any here)?   approximate cost inclusive of everything?    Complication rate? Recovery rate to expect?   Any other thing I need to be watchful about even considering surgery in India and with him?
Thanks alot!
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Posted on Feb 9, 2025, 4:02 pm
#250
Hi, so there's this guy kiloKAHN who has got it done by him and tenau diwitt has started LON with him in December 2024, so you might ask them and read their diaries for reference, and just s personal advice, don't go for limb lengthening surgery at that height, 172 cm or 5'8 is average in India and you're a solid 5'9, I'd say reconsider getting this done as it is a costly procedure and also has its own risks, kiloKAHN had a great complete recovery, you can watch him on his YouTube channel @kilokahn9763
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