Dr Mangal Parihar (Mumbai India)- Mangal Anand Hospital

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Posts: 59

Joined: Sep 2013

Posted on Oct 13, 2013, 8:23 am

#11

PT is overated especially for tibia LL.

from what i can see in LL patients experiences, it appears stading and walking during distraction are the most important.
So how hard is it to add those 2 or atleast just standing to what ever cheap PT u will have.

I dont think it is that hard.
As long as my doctor is good with the surgery I'm happy. all i have to do is put up with the frame, turn the nut/bolts every day to distract and then stand as much as i can.

the other stuff can be done by any PT since its only massaging and stretching which only helps relief pain and lossen tendons. I see it as temporary relief that helps u lengthen more. If u really want to combat balerina iu are going to have to walk or atlest stand a lot while lengthening. and u dont need a fancy PT for that.

For femurs then yes u need a good PT because pf the many muscles that r involed when u lengthen.

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M

Medium Drink Of Water

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Posts: 259

Joined: Oct 2013

Posted on Nov 3, 2013, 3:37 pm

#12

Quote from: Adriano on October 13, 2013, 08:23:16 AMPT is overated especially for tibia LL.

from what i can see in LL patients experiences, it appears stading and walking during distraction are the most important.
So how hard is it to add those 2 or atleast just standing to what ever cheap PT u will have.

I dont think it is that hard.
As long as my doctor is good with the surgery I'm happy. all i have to do is put up with the frame, turn the nut/bolts every day to distract and then stand as much as i can.

the other stuff can be done by any PT since its only massaging and stretching which only helps relief pain and lossen tendons. I see it as temporary relief that helps u lengthen more. If u really want to combat balerina iu are going to have to walk or atlest stand a lot while lengthening. and u dont need a fancy PT for that.

For femurs then yes u need a good PT because pf the many muscles that r involed when u lengthen.

Agreed. I did almost no PT in Beijing and the end result was fine. Most of us thought the physical therapists there weren't helpful and we stopped going to them. By the time I left, they'd been let go by the hospital. When I came back a year later for my internal nail removal, the PT room was half its old size (they built a wall to turn it into 2 rooms; I don't know what they did with the other half) and was unstaffed. There was equipment for you to use on your own, if you could find where the light switch was.

Dr Mangal Parihar (Mumbai India)- Mangal Anand Hospital

The most important thing during lengthening is standing. That fights ballerina foot and stimulates bone growth. Once you're done, the most important thing is walking. Walk a lot and your body will eventually adjust to your new bone length. I walked at least 2 hours a day for several months after my LL. Even after that I'd try to fit long walks into my schedule whenever I could for another couple of years.

I'm really impressed by Dr. Parihar's philosophy of being conservative about physical activity. Take it easy in the hospital: moving around a lot in the fixators can cause problems. Take it easy when you first get out of the hospital: if you put too much pressure on your legs before the bone has fused with the IM nail's screws, that can cause problems that'll send you BACK to the hospital after you thought you were done. Some people in Beijing with me had to learn these lessons the hard way.

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Quote from: Adriano on October 13, 2013, 08:23:16 AMPT is overated especially for tibia LL.

from what i can see in LL patients experiences, it appears stading and walking during distraction are the most important.
So how hard is it to add those 2 or atleast just standing to what ever cheap PT u will have.

I dont think it is that hard.
As long as my doctor is good with the surgery I'm happy. all i have to do is put up with the frame, turn the nut/bolts every day to distract and then stand as much as i can.

the other stuff can be done by any PT since its only massaging and stretching which only helps relief pain and lossen tendons. I see it as temporary relief that helps u lengthen more. If u really want to combat balerina iu are going to have to walk or atlest stand a lot while lengthening. and u dont need a fancy PT for that.

For femurs then yes u need a good PT because pf the many muscles that r involed when u lengthen.

Agreed. I did almost no PT in Beijing and the end result was fine. Most of us thought the physical therapists there weren't helpful and we stopped going to them. By the time I left, they'd been let go by the hospital. When I came back a year later for my internal nail removal, the PT room was half its old size (they built a wall to turn it into 2 rooms; I don't know what they did with the other half) and was unstaffed. There was equipment for you to use on your own, if you could find where the light switch was.

The most important thing during lengthening is standing. That fights ballerina foot and stimulates bone growth. Once you're done, the most important thing is walking. Walk a lot and your body will eventually adjust to your new bone length. I walked at least 2 hours a day for several months after my LL. Even after that I'd try to fit long walks into my schedule whenever I could for another couple of years.

I'm really impressed by Dr. Parihar's philosophy of being conservative about physical activity. Take it easy in the hospital: moving around a lot in the fixators can cause problems. Take it easy when you first get out of the hospital: if you put too much pressure on your legs before the bone has fused with the IM nail's screws, that can cause problems that'll send you BACK to the hospital after you thought you were done. Some people in Beijing with me had to learn these lessons the hard way.

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S

Sweden

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Posts: 457

Joined: Sep 2013

Posted on Nov 3, 2013, 5:40 pm

#13

Agreed. The physio at Dr Sarin was totally useless. Today it's more than 6 months after frame removal and I'm still suffering like crazy from ballerina.

Standing is the most important thing!

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M

Medium Drink Of Water

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Posts: 77

Joined: Oct 2013

Posted on Nov 3, 2013, 6:08 pm

#14

There's no magic treatment they can do for you during the distraction phase that'll make your legs come out as a finished product when you're released from the hospital. When I came back for my nail removal, I told the Beijing patients that were there at the time that LL doesn't end when you get out of the hospital, that's when it BEGINS.

Six months after my frame removal I was distraught, wondering what I was thinking to have done this to myself. My right leg was quite a bit worse than the left. I was worried I'd have to get surgery on my Achilles for it. But I just kept walking and walking, pushing through the pain, and eventually my legs evened out and got better.

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A

An_Apple_A_Day

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Posts: 225

Joined: Sep 2013

Posted on Nov 3, 2013, 7:36 pm

#15

Quote from: Medium Drink Of Water on November 03, 2013, 06:08:47 PMThere's no magic treatment they can do for you during the distraction phase that'll make your legs come out as a finished product when you're released from the hospital. When I came back for my nail removal, I told the Beijing patients that were there at the time that LL doesn't end when you get out of the hospital, that's when it BEGINS.

Six months after my frame removal I was distraught, wondering what I was thinking to have done this to myself. My right leg was quite a bit worse than the left. I was worried I'd have to get surgery on my Achilles for it. But I just kept walking and walking, pushing through the pain, and eventually my legs evened out and got better.

It is precisely this that we don't hear about enough.

How soon did you return to work? Do you think you are tapped out in terms of recovery now? Or do you feel your muscles will keep adapting if you start to (progressivly) stretch them further.

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K

KiloKAHN

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Posts: 143

Joined: Sep 2013

Posted on Dec 8, 2013, 9:55 pm

#16

Here are videos of Dr. Parihar doing voice over commentary on a surgery he performed where he uses LON for a case of tibial hemimelia. You get to see what this sort of operation looks like while the patient is under anesthesia.

*Not for the squeamish.

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R

Russianblues

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Posts: 353

Joined: Oct 2013

Posted on Dec 8, 2013, 10:30 pm

#17

fk me, to think I voluntarily did a similar thing to my own legs make me sick to my stomach.

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R

Russianblues

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Posts: 266

Joined: Oct 2013

Posted on Dec 8, 2013, 10:34 pm

#18

How come this guys patients seem to recover so slowly? 4 Weeks just to stand, on crutches for 4 months and minimum 6 months unassisted walking?

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M

Muse

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Posts: 226

Joined: Sep 2013

Posted on Dec 9, 2013, 1:29 am

#19

Nice videos, should be required pre-surgery viewing for anyone considering LL, to know what's really going on.

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R

Roger Murdock

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Posts: 435

Joined: Sep 2013

Posted on Dec 9, 2013, 4:46 am

#20

Hey Guys,

I have a friend I've been talking to on Emm Emm Tee who is meeting with Dr. Parihar tomorrow. Actually, it's TODAY for him, since he's already over there. Its REALLY last minute, but if you have any specific questions, post them and I will try to get them to him (possibly over the phone as he's said the Internet in his hotel is really bad and he may not be able to get online again before his consultation.)

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Dr Mangal Parihar (Mumbai India)- Mangal Anand Hospital

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