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Posted on Mar 24, 2015, 5:14 am
#61
Here are Dr Parihar's recommendations for weight bearing and stretching once the distraction phase is complete. While he does not encourage walking during lengthening and wants you to focus on physiotherapy, once distraction is over he is a proponent of walking to stimulate bone healing. This is what he advised:

1. You have to walk in a continuous fashion for at least two half hour sessions in a day. This should be a continuous walk (in a circle as around a building or in a yard) rather than to and fro (as in a room)

2. It is necessary to continue using a floater splint during consolidation if you have developed equinus, because otherwise, your feet are in equinus for 8 hours a day, which leads to continuation of the equinus.

3. Continue doing ankle stretching exercises - see the following link - especially number 5. http://www.physioadvisor.com.au/8047950/ankle-stretches-ankle-flexibility-exercises-ph.htm
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Posted on Aug 30, 2016, 10:49 pm
#62
its been like a year and somewhat since i last posted - so hi i guess? Life got me sidetracked a little.

i believe to achieve this in the near future this doctor would be my most likely hood of bets -

i'm more then likely to be looking at external route so was looking to see if i could be filled in on two things for this specific doctor;

rough costs of everything, hotels, food, surgery - etc

and length of time for lengthening 5CM-6CM

i know these have been answered a multitude of times but im looking for more of a direct answer from idealistically anyone who has been to this doctor.

i know Kilokhan had, i have had a look but i know a lot of his stay was deciding between doctors.

I'm going in hard headed - i want this doctor, and externals for 5-6cms.

thanks, if anyone answers.

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Posted on Aug 30, 2016, 11:27 pm
#63
Quote from: egocentrical on August 30, 2016, 10:49:33 PMi'm more then likely to be looking at external route so was looking to see if i could be filled in on two things for this specific doctor;

rough costs of everything, hotels, food, surgery - etc

and length of time for lengthening 5CM-6CM

Here's the list of expenses I put together after I returned home (2014 exchange rate):

Surgery  -  $14,977 / 900,000 Rupees
Hotel Stay  -  $1,500 per month (at Hotel Maharana Inn)
X-Rays & Appointment  -  $240.00 (charges at front desk ranged between 1,000 - 3,000 INR)
Physiotherapy at Hotel -  $17.00 per session (Mr Chaudhary's rate)
Medications      -  $40.00
Zimmer Frame  -   $60.00
Wheelchair  -   $434.00 / 26,000 INR (I bought the most expensive wheelchair in the catalog but there were many cheaper options available)
Custom Splints  -  $55.00 (I recommend each patient to get splints made through Mr Shringare because they're sturdier than ones from local carpenters)
Dressings  -   $265.00 (each box cost 600 INR and had enough gauze for 2.5 changes)

Food is cheap. If you eat at local places and don't go to Domino's each day you'll only need to add a couple hundred bucks for expenses. I think it was around $23,000 USD total for everything when not including the cost of airfare.

I stayed 4 months for 6 cm. Frames were removed after 1 year from the initial surgery date.

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Posted on Sep 24, 2016, 11:49 pm
#64
Wait, so you stayed at a hotel for 4 months? But weren't your frames removed only after a year? Does that mean you can go home after 4 months already?

Because I'm computing the expenses and lol, if I get LON from parihar and stay at a hotel for 6 months, the hotel cost will be bigger than the medical and surgery costs.
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Posted on Sep 24, 2016, 11:59 pm
#65
Most of the doctors let you go back home after lengthening phase.
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Posted on Sep 25, 2016, 12:09 am
#66
Is better to have a doctor near when you are doing this process.
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Posted on Sep 25, 2016, 5:48 am
#67
Quote from: sexmachine on September 24, 2016, 11:49:43 PMWait, so you stayed at a hotel for 4 months? But weren't your frames removed only after a year? Does that mean you can go home after 4 months already
You can go once the lengthening is over.
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Posted on Sep 25, 2016, 6:07 am
#68
Also, did Parihar evaluate you psychologically before limb lengthening? I mean, did he check for self-harm scars or any of that sort?  I'm quite stable but back in my teenage years I've had some self-harm scars that aren't that visible unless inspected thoroughly.
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Posted on Sep 25, 2016, 4:29 pm
#69
sexmachine if you think he will think that you are suicide, the scars in your body wouldnt be on your back, if scars were in some part that could be touched by hands be a little worried.
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Posted on Oct 25, 2016, 4:49 am
#70
Notes from my consultation- October 2016:

So my consultation is done. After months of reading about him, it was a good thing to finally be sitting across the table and talking to Dr. Parihar.

Points I noticed about Dr. Parihar:
1.   Straightforward and no-nonsense type, he won't bs about anything to you
2.   May come across as aloof in the start, but warms up once the conversation progresses
3.   He doesn't try to "sell" the surgery to you. In fact, he continuously questioned my beliefs about how life will be after I become taller, asked me what if my expectations are wrong, etc etc.
4.   He really knows his stuff, he came across as pretty confident and knowledgeable.

I landed up at the clinic at around 5 PM, and was taken to Dr. Divya's room first. I had to introduce to him what I was there for, and he asked me how I came to know about the surgery, what research I've done, and basically wanted to see whether I know what I'm getting myself into. We talked about how height affects success with women (Dr. Divya pointed out some celebrities who were my height, and asked me if I'm sure height was really causing a problem or it was just my imagination).

Dr. Parihar and I also had an extensive debate on whether I'm right in worrying about my height affecting my success in women. But I told him my other concerns as well (moving to the West, career aspects, etc). In the end, I think we did finally reach a middle ground on the impact my height is or could have in the future.

I was clear to both Dr. Divya and Dr. Parihar that I only wanted 5-6 cms.
I also assured them that my parents will be in on this, because they both said that it is required for them to know.

Both Dr. Divya and Dr. Parihar did not have any specific comments on the forum, but cautioned me against taking medical advice from anyone here, saying people either overstate problems or understate them.

I asked a whole lot of questions, which are listed below with the answers I got from Dr. Parihar. I think he was slightly amused that I was asking so many questions, because he asked whether I'm really a college student, or a PhD researcher. Lol Dr Mangal Parihar (Mumbai India)- Mangal Anand Hospital  I don't blame him, because I just went on and on, from one question to another.

Here's the Q&A:
1.   Since I have a slight case of bowlegs, I asked if femural lengthening would worsen the condition. He said it won't, especially considering I'm doing only 5-6 cms, and even if it did, it can be simulated on a computer and preventions can be done. Nothing to worry about.

2.   I asked about lingering and permanent pains like screw pains and rod pains, and he said I shouldn't worry about it if I'm doing only 5-6 cms. These problems usually come with insane amounts of lengthening.

3.   Permanent pains should not happen, if you keep to safe lengthening limits.
Once the lengthening phase is over, the pains & aches reduce drastically; they may come & go here and there, but after full recovery you shouldn't feel anything. You could expect come-and-go aches & pains for upto a year post-op.

4.   Dr. Parihar inserts the nail from the hip. He said he could do it from the knee also, but prefers not to.

5.   The main painkillers they prescribe immediately after the surgery are Ibuprofen and Nimesulide.
After that, Paracetamol or Ultracet is prescribed. He hasn't come across a patient till now that has needed stronger than this.
About pain, he said that there's a line to draw between "no-pain" and "tolerable pain", but anyway, he said not to worry so much about the pain, and not to try and micro-manage it. We'll take it as it goes, he said.
None of his patients have ever gotten so bad with pain that they said "I wish I never did this".

6.   I asked him about how to determine whether your bones are strong enough for LL, and he said that through the blood tests, they will know how your general health is; and if your general health is good, your bones should be good too.

7.   With the Precice nail, he doesn't see a chance of losing height already gained.

8.   My worst fears were confirmed when he said that the catheter, in most cases, is required and non negotiable Dr Mangal Parihar (Mumbai India)- Mangal Anand Hospital He said that this a serious surgery and they need to monitor you so they need the catheter in.

9.   IT Band Release: He said that he will make an on the spot decision towards the end of the surgery as to whether to release the IT band or not, but will most likely do it.
He said that if he has a doubt on whether to do it or not, he would go ahead and do it, so he would err on the side of release.

10.   Rate of lengthening: 1 mm per day, could come down to 0.75 mm depending on how my body reacts.
The lengthening from start to finish is more or less continuous, but some lengthening holidays could be granted here and there, if there was excessive pain.

11.   If the lengthening had to stop on any one leg, for any reason, they would rebreak my femur at a slightly different location and restart the lengthening.

12.   Costs: 9,00,000 INR from the hospital's end plus the cost of the Precice 2 nails (which is subject to the exchange rate)

13.   I also asked him what I could do to make it easier for me, and since I have at least 6 months to go, he said I should start stretching and working on my flexibility.
Flexibility is always a good thing for LL, he said.

I hope this contributes to the knowledge of this forum. When I start my LL journey, I will definitely write a diary too.
Special thanks to KiloKahn and Penguinn for introducing this doctor to us.
I feel this consultation was a watershed moment; now I know that I'm 100% doing it, and I'm already on the way. Some lose ends in life need to be fixed first, but I'm reasonably sure about doing this sometime next year. Exactly when, I can't say, but this is a given now: MTall needs those 5 cms. Period.
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