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Posted on Nov 21, 2013, 10:26 pm
#41
Quote from: Doflamingo on November 21, 2013, 09:49:04 PMHi

This might has been asked already (my apologies):

1. How long was the lengthening period? (As accurate as possible please)
2. At which rate (lengthening)?
3. Did you had any administrator problems because of LL before? (For ex not able to go home because of the papers)
4. Did you suffer ANY side effects that ISN'T curable after the LL?
5. Can you walk normal without having any problems for a long period?


1. I was in Beijing for 5 months and I lengthened 7.5cm during that time.

2. Rate of lengthening was highly variable.  In the beginning they tell everyone to lengthen .66mm per day, and they wait for x-rays to see how good your bone growth is before telling you to lengthen more or less each day.  My bone growth was excellent so in the end they were telling me to lengthen 1.33mm per day.

3. No.

4. I'm not sure if the stiffness/sensitivity in my knees will ever go away.

5. Yes.  I can walk for hours.
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Posted on Nov 22, 2013, 8:57 pm
#42
Hi,

You said you were in Beijing for 5 months and you gained 7.5cm, did you stay in Beijing for a few months after frame removal?

Could you give a rough, brief timeline of how long you lengthened for, how long after surgery you got your frames removed, how long after frame removal until you could first walk without crutches and how long after frame removal until you could walk normally.

Thanks.
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Posted on Nov 22, 2013, 9:49 pm
#43
Quote from: NMG on November 22, 2013, 08:57:08 PMHi,

You said you were in Beijing for 5 months and you gained 7.5cm, did you stay in Beijing for a few months after frame removal?

Could you give a rough, brief timeline of how long you lengthened for, how long after surgery you got your frames removed, how long after frame removal until you could first walk without crutches and how long after frame removal until you could walk normally.

Thanks.

My plane ticket departed 5 months to the day after I arrived in Beijing.  I stayed for 2 weeks after frame removal.  They want you to stay for 2 weeks to make sure everything is okay with the IM nails but then you're done.

Time in frames - 4 1/2 months

Walking without crutches - 3 months after frame removal (I was very careful and conservative with this.  People who rush it are prone to problems with the IM nails).

It's hard to say when I could walk "normally."  It was a gradual, steady improvement.  By the time I ditched the crutches, there was nothing unusual about the way I walked.
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Posted on Nov 24, 2013, 4:21 am
#44
So 4 and a half month lengthening for 7.5cm?
Isn't that slow?

1mm/day = 3cm/month = 2,5 month = 7,5cm (if math is correct)

How come it took so long?
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Posted on Nov 24, 2013, 4:45 am
#45
Quote from: Doflamingo on November 24, 2013, 04:21:22 AMSo 4 and a half month lengthening for 7.5cm?
Isn't that slow?

1mm/day = 3cm/month = 2,5 month = 7,5cm (if math is correct)

How come it took so long?

Pin bending and taking breaks from turning due to knee stiffness.
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Posted on Nov 24, 2013, 4:55 pm
#46
What were the 'causes of pin bendings?
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Posted on Nov 24, 2013, 5:00 pm
#47
Weight bearing and muscle resistance are the two causes of pin bending.  It happens to everyone using a pin-based device, it wasn't a complication.
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Posted on Nov 24, 2013, 7:14 pm
#48
Thanks so much for doing this. This thread is more helpful than almost anything I have seen from past LL vets on old forum . If you don't mind, I have a few additional questions?

1. When you had to renew a drivers license or passport post-LL, did your height increase cause any problems/complications/suspicion?

2. Assuming you have health insurance, will your coverage costs increase if it is found out that you had this procedure? I assume a doctor would notice a height increase at a checkup at some point, wouldn't they, and after age 23 they would probably investigate, right?

3. Do you have any kind of nerve damage or change in your legs post-LL? Are any areas more/less sensitive? Is your feeling ability altered in any way? Can you move all of your toes as well as pre-LL?

4. Are you able to sit comfortably in a normal chair for long periods of time (an hour or more), or do longer tibiae make it uncomfortable?

5. Have you tried climbing ladders, trees, or rock walls post LL? If so, how did you fare?

6. Can you walk as much as you want without experiencing more leg pain than before LL?

Thanks so, so much again for doing this! People like you are the reason I left old forum  in favor of this forum.
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Posted on Nov 24, 2013, 8:44 pm
#49
Quote from: Tall on November 24, 2013, 07:14:42 PMThanks so much for doing this. This thread is more helpful than almost anything I have seen from past LL vets on old forum . If you don't mind, I have a few additional questions?

1. When you had to renew a drivers license or passport post-LL, did your height increase cause any problems/complications/suspicion?

2. Assuming you have health insurance, will your coverage costs increase if it is found out that you had this procedure? I assume a doctor would notice a height increase at a checkup at some point, wouldn't they, and after age 23 they would probably investigate, right?

3. Do you have any kind of nerve damage or change in your legs post-LL? Are any areas more/less sensitive? Is your feeling ability altered in any way? Can you move all of your toes as well as pre-LL?

4. Are you able to sit comfortably in a normal chair for long periods of time (an hour or more), or do longer tibiae make it uncomfortable?

5. Have you tried climbing ladders, trees, or rock walls post LL? If so, how did you fare?

6. Can you walk as much as you want without experiencing more leg pain than before LL?

Thanks so, so much again for doing this! People like you are the reason I left old forum  in favor of this forum.

1.  No.  Most peoples' drivers' licenses list their height/weight when they were 18 so it's not unusual for someone to be taller or heavier.  That was the case for me.  I know Jungle was concerned it'd be an issue because he lengthened so much and did it later in life, so he had Dr. Mitkovic write a letter for him explaining the surgery in case he'd need it.

2.  My health insurance did not go up because of this.  As far as I know, no cosmetic surgery causes insurance rates to rise.

3.  I have a little bit of numbness right where the osteotomy sites are.  Most of the time I don't notice anything though.  I can move my ankles/toes/feet as well as I could before the surgery.

4.  I can sit as long as I want/need to.  The longer tibiae didn't change anything regarding sitting endurance.  Have questions you'd like to ask someone who had LL six years ago? Ask them here

5.  Ladders are no problem.  It's a little harder to climb trees and walls because the longer tibiae have to be pulled up higher to get the feet where they need to go, but not so hard as to make me not do it.

6.  My lower leg muscles get a little more sore after really long walks than they used to, but I still go on really long walks without having to stop.  The difference isn't very much.

Well I'm glad I can help people and hurt that terrible forum at the same time.  Have questions you'd like to ask someone who had LL six years ago? Ask them here  So keep the questions coming if you're curious about anything.  But remember I'm only an expert on my personal LL experience, and your results may vary.
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Posted on Nov 24, 2013, 11:47 pm
#50
Very useful stuff, as usual. I'd give you a major credibility boost, but we all know how well that system worked out for the old forum  Have questions you'd like to ask someone who had LL six years ago? Ask them here

1. Who actually performed your surgery?
2. How much of an issue was the language barrier for you while in Beijing?
3. Do you suffer from hypertrophy of the calves? If so, have big calves made your legs stronger in any way?
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