My Femur Stryde LL (with Dr. Debiparshad) diary

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Quote from: cena on August 30, 2019, 05:57:11 PMGreat diary Lalbadshah.

I have some questions can you answer what you are comfortable with?

1 How do you sit and get up from the toilet? Do you use a walker for support?
2 How have colleagues and managers reacted to your disability?
3 How do you get around in airport for walking long distances? Do you opt for wheelchair?
4 How do you carry backpack along with crutches or walker while walking to office from uber? you had asked this question but you did not tell how you resolved it.
5 what is the hardest thing you find to do on daily basis because of LL?

thank you

1. initially walker was must to get down up but now i am strong enough to do so without walker so I have been doing it without walker or cane, BUT - it was a mistake, I have started using cane while sitting down up toilet again because once or twice I got too confident that I did it (sitting down/up on commode) so fast/rapidly that the jerk ended up giving pain to my hip so I use cane and do it nice and easy.

2. I have told only 2 ppl (they have sworn to keep it a secret) abt  it in office(it was a mistake because one guy reacted very negatively like why did you do so to ur leg etc. etc. oter guy was ok, he is cool abt it), others think i have hurt my leg somehow (and I never corrected their guess, neither affirmed I just give vague answer like yeah it is complicated, and nobody asks anything more).

3. for long distance like huge airports, yes i use wheelchair.

4. i keep backpack light. i use cane now, not crutches but even with walker or crutches u can carry backpack, as long as it is not very heavy and as long as ur back is strong enough - mine is.

5. everything is hard but hardest things are - i) the brutal pain i am getting on my right knee cap nerve, that comes at few/some times not always but when it comes it makes me cry/yell, and there is nothing we can do about it, there is no medicine for this nerve pain so u just keep suffering ii) sitting - for me this is the most difficult part of daily life, as soon as yo seat your ass/hip is in pain - the harder the surface the more the pain, the longer u sit the more it gets, in fact on a commode if you seat for like 30 minutes you will literally start crying in pain, even sitting on comfy chair for 30 minutes straight is difficult iii) decreased productivity - ur productivity at work will suffer so u become like weak member of team (in these cases your past achievements can save you, it is like if messi plays bad for 20 games he will still not be fired), so do LL only after u have established reputation for urself, if you re new member and start LL ur low productivity will make u prime target for layoff. for me actually, it seems my manger thought i am slacking bcoz i am looking (for other jobs so he ended up giving me higher bonus, lol but again this is bcoz of what I have done in last 5.5 years iv)carrying on the journey - when u think back hoe easy life was and what u have made of it, it is very easy to want to end it sooner, you may get thoughts to stop early, for example i wanted 2.5 inches but i am pretty sure i will stop at 2 now because I want to get back to normal life sooner even if that means stopping earlier than what u aimed for. These have been my biggest challenges.

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Hang in there, Lalbadshah! I also had to reduce lengthening during my journey due to pain. Moving down to 2 sessions a day was something I initially resisted - for the same reasons as yourself. I didn't want to drag the process on longer than it had to be. But, it solved all of my pain issues. It took maybe a week for me to start noticing the reduced pain, and it seems from your diary you're starting to notice improvement.

You'll make it. In the grand scheme of things, an extra few weeks of lengthening makes no difference. Suffering the pain you described every day just isn't worth it to save a little bit of time.

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Hang in there, Lalbadshah! I also had to reduce lengthening during my journey due to pain. Moving down to 2 sessions a day was something I initially resisted - for the same reasons as yourself. I didn't want to drag the process on longer than it had to be. But, it solved all of my pain issues. It took maybe a week for me to start noticing the reduced pain, and it seems from your diary you're starting to notice improvement.

You'll make it. In the grand scheme of things, an extra few weeks of lengthening makes no difference. Suffering the pain you described every day just isn't worth it to save a little bit of time.

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Quote from: verticalpush on August 31, 2019, 05:07:49 PMHang in there, Lalbadshah! I also had to reduce lengthening during my journey due to pain. Moving down to 2 sessions a day was something I initially resisted - for the same reasons as yourself. I didn't want to drag the process on longer than it had to be. But, it solved all of my pain issues. It took maybe a week for me to start noticing the reduced pain, and it seems from your diary you're starting to notice improvement.

You'll make it. In the grand scheme of things, an extra few weeks of lengthening makes no difference. Suffering the pain you described every day just isn't worth it to save a little bit of time.

You are right, I had reduced to 1 click a day for 4 days and now after noticing some improvement I am trying 2 clicks a day (otherwise it will be too mate for me to accomplish my goal), I plan to continue 2 click for another weeks or 10 days and then try to go to 1mm a day, if needed I am even ok doing rest if my journey with 2 sessions a day. The truth is some kind of pain or issue is part and parcel of the journey and nobody is going to have a perfectly smooth ride from beginning to end. I will call you sometime man, it has been sometime we talked on phone, lets talk again sometime.

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Quote from: verticalpush on August 31, 2019, 05:07:49 PMHang in there, Lalbadshah! I also had to reduce lengthening during my journey due to pain. Moving down to 2 sessions a day was something I initially resisted - for the same reasons as yourself. I didn't want to drag the process on longer than it had to be. But, it solved all of my pain issues. It took maybe a week for me to start noticing the reduced pain, and it seems from your diary you're starting to notice improvement.

You'll make it. In the grand scheme of things, an extra few weeks of lengthening makes no difference. Suffering the pain you described every day just isn't worth it to save a little bit of time.

You are right, I had reduced to 1 click a day for 4 days and now after noticing some improvement I am trying 2 clicks a day (otherwise it will be too mate for me to accomplish my goal), I plan to continue 2 click for another weeks or 10 days and then try to go to 1mm a day, if needed I am even ok doing rest if my journey with 2 sessions a day. The truth is some kind of pain or issue is part and parcel of the journey and nobody is going to have a perfectly smooth ride from beginning to end. I will call you sometime man, it has been sometime we talked on phone, lets talk again sometime.

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My thought on walking -

I wanted to share my thought on walking. The reason being - before doing LL I had read conflicting things in this forum on whether walking during LL is good or bad. My personal opinion and observation is - walking is good and in fact necessary (else you may become like vegetable and may have bad side effects) but at the same time I think it is important not to get overenthusiastic and walk too much everyday. With the power of stryde it is easy to abuse it by walking too much. I think walking too much may actually affect healing process adversely and put unnecessary strain on your body. This is my theory. Now if you ask how much is too much? I have no definite answer. I will say too much = what normally you would not do. just because you think walking will help you recover faster (this is prevalent opinion and I am not saying it is right or wrong, that is not what I am discussing here) do not go for like 4-5 sessions of long walks during the day, which normally (when you were not doing LL) yo would not do. Just keep it normal, walk just as much as you would walk normally (pre-LL). Again, this is my personal opinion, not a medical advice, I am not a doctor

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Quote from: Lalbadshah on September 01, 2019, 06:47:01 AMMy thought on walking -

I wanted to share my thought on walking. The reason being - before doing LL I had read conflicting things in this forum on whether walking during LL is good or bad. My personal opinion and observation is - walking is good and in fact necessary (else you may become like vegetable and may have bad side effects) but at the same time I think it is important not to get overenthusiastic and walk too much everyday. With the power of stryde it is easy to abuse it by walking too much. I think walking too much may actually affect healing process adversely and put unnecessary strain on your body. This is my theory. Now if you ask how much is too much? I have no definite answer. I will say too much = what normally you would not do. just because you think walking will help you recover faster (this is prevalent opinion and I am not saying it is right or wrong, that is not what I am discussing here) do not go for like 4-5 sessions of long walks during the day, which normally (when you were not doing LL) yo would not do. Just keep it normal, walk just as much as you would walk normally (pre-LL). Again, this is my personal opinion, not a medical advice, I am not a doctor
I absolutely agree with you on walking.  In general, walking is good for CLL, because walking can stretch your muscle, keep muscle strength, help bone grow, and keep you from being depressed during CLL.  However, overdoing it may cause adverse effects such as pain, exhaustion, or inflammation.  Listen to your body, since everybody is different.

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Quote from: Ghostfish on September 01, 2019, 07:16:47 AMI absolutely agree with you on walking.  In general, walking is good for CLL, because walking can stretch your muscle, keep muscle strength, help bone grow, and keep you from being depressed during CLL.  However, overdoing it may cause adverse effects such as pain, exhaustion, or inflammation.  Listen to your body, since everybody is different.

Agree 100%

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Updates:

1. The pain situation has improved a lot, now the pain is like very low so I  am back to 1mm from today, did .66mm yesterday and today back to 1 mm

2. I found a trick, handle your feet/leg etc gently/softly like in womanly manner and the pain level will be much much lower, the rougher/tougher you wanna play (with any kind of pain on body) the great hit-back you get

3. I will be very busy next 6 days so dont expect any update on diary

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@lalbadshah - glad to hear you pulled through and have been able to resume the normal pace of lengthening! keep at it, it will be over soon :-)