Hey buddy. Yeah, it is funny we began the same time. I have been getting those pain killer injections every 5 hours. I have been sleeping all the time. Just sleep and watch Netflex. The doctor gave instructions to reduce it to 2 injections now. I don't feel that sleepy like in the beginning. How is your condition now?
A quick update:
I realised if i increased my painkillers(2 times a day, 0.5mg co-efferalgan,...from once a day), i could do more walking and much more comfortably.
Today I had almost zero pain after my day painkiller intake.
Here is a video of my walking on crutches. Only point of discomfort while walking is my palms are getting hurt by the crutch.
i can walk for 20 mins without much effort at a stretch. Totally i walk 40 mins in 2 sets.
Looking good! Maybe you can wrap the handles with small towel and tape it up.
Thank you for recording the video. Even x-rays have been harder to come by in recent diaries. Videos are very precious.
Hi buddy, you're looking good in that vid! you can use small towels as android said to keep the crutches to hurting you. Keep going man. 
- A. Lecter
Update
I have got back to my country a few days back. It was a very tiring and uncomortable journey back home. My legs(specially the ankles and feet) swole up like balloons.
Now it it much better. Walking is much better too. I am managing by myself. If all goes well, I am planning to resume my work too next week(desk job, so not an issue). Dr too said it should be fine as long as i stretch/excercise frequently. I stretch and do some walk/excercise every 1-2 hours for 15 mins.
Also I do not take painkillers anymore.
Wow, no painkillers?
And what did Dr. Pili say about the possibility of pin-site infections? You're (probably) very far away from him now. Did he worry about that? What was his advice to you regarding that?
How often, and how, are you cleaning your pin-sites?
For a final question: did you get any good idea of what was the (medical) relationship between Pili and Catagni during your stay in Italy? We are quite curious about that.
Thanks a lot, FTN.
Quote from: myloginacct on May 05, 2018, 03:58:02 PMWow, no painkillers?
And what did Dr. Pili say about the possibility of pin-site infections? You're (probably) very far away from him now. Did he worry about that? What was his advice to you regarding that?
How often, and how, are you cleaning your pin-sites?
For a final question: did you get any good idea of what was the (medical) relationship between Pili and Catagni during your stay in Italy? We are quite curious about that.
Thanks a lot, FTN.
No pain..only mild pain(for a second that too.. if i pull my muscle wrong or after sleeping and getting up).
Since my country's currency is very low against dollar, only way that I afford all this is if i work. So cant leave my work for long. Dr Pili was fine with it, given i visit him monthly.
Dr Pili and Catagni indeed work very closely. Pili has his pic in his clinic. And I feel Dr Catagni too operates out of lecco mostly. On the letter of discharge, his signature mentions his practices in Lecco and Rome. Dr Catagni too was there for my surgery. I only saw him in the OT and once on a road on his white lamborgini/ferrari :p
For Pin site care we are given a manual. I change my bandages(gauze) every other day using h2o2 and betadiene.
and again, regarding pin site, so far all is good *fingers crossed*. No blood no puss no infection. Lets pray.
I hope you'll be one of the 50% who don't get any pin-site infections!
A center in Russia does their cleaning with a betadine solution with alcohol. Sounds very similar to what you described.
By the way, two questions that I wanted to ask, if you don't mind:
- Did you do a CT scan before the surgeries (not plain x-rays)? Does that seem to be the standard procedure for CLL?
- How are you advised to take showers, considering the external fixators you have on?
I hope you've been doing as good as you can be doing during LL, FTN.
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