Quote from: ab608 on July 08, 2021, 11:18:37 PMUpdate - we're at ~6.8 on the left and ~7.0 on the right leg now. 91 days post surgery!
New (and hopefully final) lengthening goal - 7.5cm (we're almost there!)
It has been a *minute* since I first started this process, so it's really crazy to be wrapping up lengthening. Crossing my fingers that I can get to 7.5 by my next appt next week and that everything goes smoothly 
Wow! Time flies, eh? I’m sure it hasn’t for you since you’re doing all the work! 😁. Happy that the lengthening is almost done and also hoping everything goes smoothly for you as you wrap up the distraction phase. Best wishes!
Precice 2.2 Diary - Baltimore w/ Dr Assayag (April 2021)
Quote from: L8GrowthSpurt on July 09, 2021, 02:44:45 AMWow! Time flies, eh? I’m sure it hasn’t for you since you’re doing all the work! 😁. Happy that the lengthening is almost done and also hoping everything goes smoothly for you as you wrap up the distraction phase. Best wishes!
Thanks!
Will post x-rays after my next appt in a few days.
All done! Now in consolidation - should be 4-6 weeks for partial weight-bearing, and then another 4-6 weeks from there to walking without any assistance.
I hit 7.5cm a few days ago -- I think on Thursday (98 days since surgery) -- and since then, I've just been adjusting my right leg to get it to the same length as my left. It's been three days since Thursday and I think both legs look pretty even now, and I feel much more even when standing up on my walker now. I think I'm going to call it and just closely monitor how my legs look over the next week. The doctor said that if I still want to lengthen / shorten in a week's time, I'll be able to, since the bones won't have consolidated that much.
I'm feeling really happy - overall the journey was pretty smooth. The only big hiccup was that the first month of lengthening was pretty painful on my left leg, but that's because I was accidentally lengthening it too much. If you're using a NuVasive product and the second gen of the ERC, beyond making sure you keep your legs a good distance apart while lengthening, keep monitoring your leg lengths, especially if you're small like me. A lot of times my X-ray measurements didn't line up with how much I thought I had lengthened, and I have a theory that it's an ERC issue, because even after catching the issue of one leg being longer than the other and making sure I was keeping my legs far apart during lengthening, sometimes I could feel my other leg lengthening (basically I'd feel the motor in motion) while having the ERC on the other leg. I know the magnet is really strong, so despite keeping the legs apart, I still felt like the ERC would sometimes lengthen the other leg unintentionally. It's an unproven theory but seems likely to me.
Also, if you ever have to lengthen more on one leg for some reason (like correcting an imbalance), its good to keep a separate journal where you keep track of how many lengthening sessions you did per day + per leg and what you think the overall lengthening amount is so far, because the ERC doesn't allow you to skip sessions on one leg. So if you only lengthen one leg in a session, it'll still keep the counter going for the other leg, making it look like you lengthened both when you only did one. Also, keep in mind that the X-ray measurements have some margin of error, so always good to have some way of comparing how much length you think you got vs what the x-ray says you got. Just keep my experience in mind - if one leg is finding lengthening a lot more painful than the other, ask your doctor if he/she thinks this is what's going on. The act of lengthening using the ERC should not be painful, so definitely speak up if you're finding it very painful.
Now the game plan is to work really hard on both stretching everything out and strengthening my core, glutes, quads, and whatever else i can do. I still have the anterior pelvic tilt and my quads and glutes are pretty weak, so I'm really eager for any non weightbearing strengthening exercises for someone who did femurs. If you have any, please share! I'm thinking of using the leg press for quads, glute bridges for glutes, a lot of different core exercises, a lot of the exercise bike, squats in the pool, and all that kind of stuff. I'd love to make the transition to walking a little smoother by really working hard this month, although I don't know if that's a pipe dream. I know there's a lot of great diaries of past LL'ers who are walking now, so going to take some time to look through those for tips.
Not the best quality (my phone camera sucks) but here are the x-rays:
https://imgur.com/a/3hghmgd
Congratz on your 7.5 cm achievement. I am really happy for your gain. Keep us posted on how your recovery is coming along?
Thank you! I will definitely update.
Right now I'm focusing on strengthening and stretching. Despite having really good ROM when stretching on my bed, when I stand on my walker, I'm finding that my left leg feels really tight, while my right leg feels loose and flexible. This makes me feel weird when I stand; I feel kind of lopsided. So I think I need to put more time into stretching out my left leg more -- especially the upper part of my hamstrings. I also feel weird when I stand with my legs together -- it makes my back arch more -- so I have to work on stretching those adductor muscles as well.
In general, I've been making an effort to put more weight on both legs. I barely stood on my walker during lengthening, so I'm trying to do that more now to get them used to having weight on them (obviously taking care not to exceed 50 lbs on each leg). Will share links to exercises I'm doing soon, in case it's helpful!
Update - almost 2 weeks into consolidation
I was pretty flexible and maintained really good ROM throughout lengthening, so regaining flexibility hasn't been a huge focus for me for consolidation, but its still really important nevertheless. I do feel tightness/stiffness when I don't stretch regularly, even though I still have good ROM. I've been trying to strengthen more, but have been finding that tough. The act of putting more weight on my legs and forcing my muscles to work causes pain afterwards, and I have to be careful to not overdo it and space out the strengthening. Standing feels really weird too - my left leg feels super tight when I stand up with my walker, which is weird because its very flexible when I stretch it on my bed. My PT says it might be because the weight is causing my muscles to wake up and stay in a contracted position - basically the muscles are still getting used to holding weight and are going to feel weird at first.
My PT and I also discovered why I feel so "off" and uneven when I stand. Prior to surgery, my knees would naturally hyperextend, which is common for women. Now, after lengthening, my right knee has retained that ability to hyperextend when standing, but my left knee doesn't. This lines up with what I felt in lengthening - towards the end, my left knee began to feel stiffer than the right. This could be because my left quad is weaker than my right quad, and the quad allows for hyperextension of the knee (or something like that). Hoping that both knees ultimately end up the same way so that I can feel even when I stand.
I now take my pain meds on an as-needed basis. The first week of consolidation, I barely needed pain meds, but this week I took them a couple times to deal with post-workout pain. My legs have been achy and annoying so I've been taking the the meds for that.
My hip flexors are still really tight, so my lower back is still very arched. Trying my best to lie in prone position, stand more, do different hip flexor stretches, but they're still really tight and my back is really weak. It makes sleeping and working tough because my back is so arched, etc. But trying to stay positive and keep stretching it!
To be honest I'm a bit nervous about what it's going to be like to start walking again. I think it's going to take a while for my legs to adjust to holding my weight and to get rid of the pelvic tilt. Oh well I guess, best not to think too much about that and just keep stretching and strengthening
Hi there, congratulations on all your progress to date in your LL journey! It sounds like everything you have been doing and your positive attitude have gotten you this far and you are doing great. I am near the end of my first month post LL surgery, and because Covid/Delta is rampant in my area, am now planning to do PT on my own for a while. I am also Precice 2.2 and going for 7.5-8 cm. Really looking forward to seeing what exercises and stretches you have been doing to date. I am mainly getting mine from YouTube at the moment. Anyway, good luck with consolidation and before you know it you will be walking tall and unaided again!
Hey! Congrats on starting the process - excited for you!
Here are the stretches I've done throughout this process (on the stretches tab): https://docs.google.com/spreadsheets/d/1y9FBpearMEqThe0luRJ4yZKk1eGEi6wVVWGgdbb8k6o/edit#gid=1128726750
I'll update it with strengthening exercises later today.
A stretching strap and resistance band would be really useful to have. Also highly recommend getting a massage table if you have the space for it (unless your bed is pretty high off the ground) because it really helps with stretching your hip flexors. My hip flexors are really tight right now and I wish I had gotten a massage table earlier since the added height makes the stretches like the Taylor stretch a lot more effective, in my opinion.
Many thanks ab608, these are super useful! And thank you in advance for the strengthening exercises. Great, I will get a stretching strap and resistance band. Is the latter a looped/closed band? I probably don't have enough room for a massage table unfortunately. Yes, same here with hip flexors.
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