Quadrilateral Lengthening with Dr. Paley

Speak to the physical therapists first for most of your questions. Usually they have the answer. If not, send an email to John the PA or Dr. Packer or Dr. Robbins. You can try to reach Dr. Paley, but he rarely responds to emails, because he's so busy. Dr. Packer and Dr. Paley should be in Miami right now, by the way, so the only way to reach them is by email. Only the doctors can give you a new prescription for drugs.

Ah yes. The one who did tibias is Egyptian if his first name starts with A. Say hi to him for me as well. I did femurs, so I can't really comment on your boots. The guy who finished his tibias to 7 cm could probably give you a better answer. The Asian and Indian guy might be finished consolidating, so they might have left the hotel already.

I mentioned the Oxycodine to one of the doctors today and she told about how they won't prescribe it because it is highly addictive and etc etc.  She just told me to add tylenol to the mix.  Also since it's my first 2 weeks they want me to ride it out.  Well, if the pain gets horrible about the time i'm lengthening my femurs and tibia's simultaneously i'll bring it up again but for now she mentioned I could use 2 pills instead of one if really needed.  I'm really conservative with my pill usage because I can for see lots of pain after my femurs break.  Doing a number 2 really takes a toll on my tibia's I feel shoots of lightning down the areas where the bones were broken.  Does this happen with the femurs as well??  Thanks bud and a good recovery to you.

Shoots of lightning? No. That sounds like nerve pain, and you should definitely mention that to the doctors if you haven't already. I've only had nerve pain when overstretching during PT. I'm a bit lucky in that regard, because another patient had nerve pain in the Tibs as well, even though she did femurs. But eventually it went away when she slowed down the lengthening.

I'm not surprised that they didn't prescribe oxycontin to you. That stuff is really good. Addictive, but really good. But double up on Oxycodone if the pain is too much. You can always be more conservative with your pills later on. For example, for my first two weeks, I took 2 Oxycodones per 4 hours. Along with a Oxycontin per 12 hours. Along with 4 advils per 4 hours (don't take Advil like I did.).

Afterwards, I started taking only 2 Oxycodones only when I feel a lot of pain, and only take 1 all other times. Eventually towards the end, I only took one oxycodone, except for when I go to PT. And I stopped taking Oxy at night. Finally when I stopped lengthening, I quit all pain meds. A week after lengthening, almost all pain goes away.

As for Tylenol, I take a 8 hour release one. They're 650 mg each. You're allowed to take up to 4,000 mg per day. So I only take two pills per 8 hours (1,300 mg per 8 hours). Times 3, that's 3,900 mg per day.

Anyway, you're really brave to do all 4 sections at the same time. Man, I did only femurs and I already thought that that was too much.

Wow ur very brave to lengthen femur and tibia at the same time! I'm lengthening my tibia also with paley atm. I think I saw you a few times. I'm a private person so I prob won't initiate any convo, we'll have like a silent nod of acknowledgement lol. But if you have questions feel free to message me here.

As for the shooting pain, try to stand as much as you can while holding onto the crutches. My therapist told me the bone needs to get use to having the precise in there so the more you stand the faster you will adapt. Its going to hurt but trust me it gets easier.

The first week sucks. After that will be very little pain. I talked to 4 other ppl doing their tibia and we pretty much felt the same during the first weeks.

Hi buddy. What nationality are you. It might help narrow you down next time I see you to speak to you.  I'm quite reserved at first and I do not like disturbing people. If you don't feel like describing yourself here on the thread go and and pm me so we can initiate conversation. Your likely see me with my father since he's taking care of me till Tuesday. Thank you.

Quote from: Iamready on November 06, 2015, 01:48:34 PMHi buddy. What nationality are you. It might help narrow you down next time I see you to speak to you.  I'm quite reserved at first and I do not like disturbing people. If you don't feel like describing yourself here on the thread go and and pm me so we can initiate conversation. Your likely see me with my father since he's taking care of me till Tuesday. Thank you.

gotcha will do.

I suggest making friends with other patients, because it's a long journey, and it would be much easier when you have support from other patients.

Quote from: Iamready on August 26, 2015, 09:11:37 PMHi, just a quick update.  I had my consultation and I will my surgery will take place at the end of October.  The first surgery will be for the tibial lengthening and will be followed by another surgery at the end of November for the lengthening of my femurs.

Hey fellow "Quadie"   

I'm curious, is there a reason Paley recommended you do tibias first, then femurs, for quadrilateral lengthening?

I'm doing quads as well, but I opted to do cross-leg (one femur and the other tibia at the same time). I think it's worked out for me so far: when my femur hurt (from 1cm to 3cm), my tibia had no trouble; when I was battling ballerina (4cm to 5cm) my femurs were fine; from 5+ cm I worked my femur while my tibia was already finished and consolidating. So at each stage I was able to stagger my concentration on each affected part.

Do you think you might possibly stop doing quads if you feel you've gained enough with tibs alone?

Have a good recovery!

Hi glenn

Are you doing Qll in Paley's hospital? If not, where are you doing it?  I read that those doctors using Fitbone seem to do Qll in cross leg.
I am very glad that you have been doing great.  Apparently you have gained quite a lot of height.  How much did you increase your height?
Hope you recover very well.
 

Hi Ghostfish,

I don't want to hijack Iamready's thread, but to quickly answer your question: I am in the middle of first-stage doing quads with Dr. Monegal using Fitbone. I have done 5 cm in tibia and 6.4 cm so far in femur. If you have any questions for me please feel free to ask in my diary thread instead, thanks!

I am not a Paley patient. I was just asking Iamready for his perspective since he is doing quads, like me.