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Posted on Oct 22, 2016, 11:36 am
#41
Hello Forum,

Sorry for the very long absence, the forum can be a bit of a toxic place and I wanted to stay away for awhile.

Just to recap for those that have already read through my journal and don't want to go back - I had stopped lengthening in April at what I thought at the time was 8CM because of really bad ballerina and knee bending. The hope was that I would fix it and then continue to do 10 CM before getting the nail and going home.

I did end up fixing it, but it took me more than 4 months and by that point my bones had started to consolidate and I was no longer able to lengthen. I tried to convince Dr. Barinov to re-break the bone but he told me that it would be far too dangerous to attempt this late in the game for various reasons and that I would have to wait another year if I ever wanted to break the bone again.

Of course I was incredibly disappointed, but the truth is that I have no one else to blame but myself. I simply did not put in the work required to fix my ballerina, and I just waited for it to get better on its own.

The current update is that I was supposed to get the nail a month ago but I developed an infection because I began skipping my bandage changes.. the doctors will not operate until the infection has cleared for at least a month.. so I'm now hoping to get it in the next 2 weeks.

Another thing that happened is that I was told by Dr. Barinov that I did not gain 8 CM as originally thought, because the clinic where I get the x-rays taken zooms in 10% and therefore I am likely 173CM. It's not a bad height, but far less than what I had came for.. so I am pretty upset about it.

I'm going to take this time to give everyone who is planning on doing external tibias some advice.

1. Do not listen to anyone that tells you that this is going to be easy or that it was easier for them than they expected. My mistake was that Mercusio (my LL mentor who I met with before the surgery and gave me advice based on his experience with LATN external tibias with Dr. Barinov) made it seem like it was a lot easier than it was, and I fell into the trap of taking the seriousness of stretching and walking for granted. Do not make this mistake. If you are lengthening, you NEED to stretch EVERY single day and you need to stand up and walk EVERY SINGLE DAY (granted you are doing external tibias and the doctor allows weight bearing). I will say that for him, it was in fact much easier and he was just giving me advice based on his own experience.

In the beginning, I did not stretch and I did not use the foot holder as much as I should have. If you are expecting to be babysat at this clinic, go elsewhere because they absolutely will not hover over you if you are not doing what you need to do. There is no physiotherapist services offered at this clinic and it is nearly impossible to find a physiotherapist that is familiar with this procedure in Volgograd.. believe me I tried for months and no one was able to find one for me.

The problem with this clinic is that you are left to do pretty much everything on your own, it is just simply the russian mentality. The doctors and nurses are good and they are helpful when you ask for help, but they are not like Western doctors - they will not come to you and they will not baby you. You need to be proactive and you need to be disciplined on your own.

They will show you what exercises you need to do, but you must ask them questions as they will assume that you are aware of what needs to be done. The benefit of this clinic, is that there are many patients who are doing lengthening that have had the experience and will guide you.. unfortunately, when I arrived at the clinic - almost everyone had just began lengthening..

2. USE THE FOOT HOLDER WHILE YOU ARE SLEEPING, AND FROM DAY ONE. This is probably the best advice I can give you. Your muscles do not want to be stressed and stretched because of the new bone length and they will resist the more you lengthen. You MUST push back against this resistance, and keep your muscles in the stretched position as long as you can everyday. It does not matter how uncomfortable it is to keep the foot holders on, they fking suck but if you want to lengthen without problems then you need to suck it up. I hated the foot holders and they were incredibly uncomfortable to sleep with, but my need to be comfortable and my laziness with the foot holders cost me lots of trouble, money and height.

3. Walk as much as you can, and do not lay in bed. The longer you remain inactive, the more difficult it becomes to walk. Push through the pain, and don't get discouraged because of how slow you're moving and how tired and bored you are of trying to walk down the hall. If you walk everyday for at least 2 hours minimum, you will recover much faster, walking will be much easier, you will feel less pain quicker and you will prevent ballerina much better. Walking is honestly, key and will get you to where you want to be. It only really sucks in the beginning and while you're lengthening, but it gets better really quickly if you keep at it.

4. This is not a vacation. You are not here to get girls, you are not here to experience Russia and you are not here to make friends. This is the best way to fk up. I got so caught up with girls while I was here, that I stopped paying attention to what I needed to do. I was trying to distract myself from things going on in my life, by trying to go out to restaurants, hang out with the correction girls and socialize with everyone else. It's okay to want to have these things, but focus on your daily goals and then when you have time reward yourself.. the correction girls have it really easy, they barely need to do anything other than walk and they're always bored so it's easy for them to want to distract you - don't get caught up in this, they don't mean any harm but they simply don't understand what you need to be doing.

5. Set goals and don't let a single day go by that you do not meet these goals. Track how much time you spent stretching and how much time you've spent walking.. you need to have a routine and you need to do this from day one, if you get lazy - everything can fall apart.

A lot of what I'm saying is pretty obvious and everyone reading it is probably thinking, they already know these things - but honestly planning for this surgery and then going through it are two completely different things. Anyone who read my journal from the beginning will know how much planning I did and how ready I was.. things fell apart pretty quickly.

Ballerina is no joke. It will happen to every single person that does limb lengthening, if they do not actively fight it. What we are doing is not natural, your muscles, nerves and tendons will resist the lengthening and if you want to achieve your goals then you need to do everything you can to prevent it. Once you get ballerina, it is really difficult to fix and it will set you back months if you don't fix it. IF YOU GET BALLERINA, STOP LENGTHENING AND FIX IT - THEN CONTINUE LENGTHENING. DO NOT TRY TO KEEP LENGTHENING AND THINK THAT YOU WILL SIMPLY FIX IT ONCE YOU'VE GOTTEN TO YOUR GOAL. This will not happen the way you think it will, it is FAR more difficult to fix ballerina than to prevent it. I should have been done this whole process in May of 2016... but I'm still here in October, not having achieved my goal and still waiting to go home because I thought that I could lengthen and then worry about my ballerina after.

I do want to point out that I am really young, much younger than most members on this forum.. and I've been the youngest person to come to this clinic within the last two years. I will say that I think a lot of the lack of real discipline and the carelessness probably had to do with my age... but for those who think that because they're still young that they won't have problems with flexibility.. trust me, you being young isn't going to make this a breeze for you.

I'm open to questions now, so you can post on this journal as you please.




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Posted on Oct 22, 2016, 11:51 am
#42
Before anyone asks, I'm beginning to walk without crutches (10 months post op) - i'm still not 100% flexible, but I anticipate that I'll be walking normally by March. Other patients recover much quicker, one of the other patients that started with me is walking completely without crutches and you can't tell that he had done a surgery, other than the fact that it's still a little difficult for him to get up and down the stairs quickly and that he still can't run.
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Posted on Oct 22, 2016, 9:31 pm
#43
Thanks for checking in and being honest. You've achieved a really good height and should be very proud of yourself. I've only told two people about this procedure, and they just couldn't fathom that something like this was even possible. It does not sound like an easy task to do. My preparation stretching sucks enough as is (especially hamstrings--I'll never be able to touch my toes). I can't possibly imagine what you must be enduring.

1. Lodging Question
You're staying in a furnished apartment, right? Are the other patients your neighbors or are you pretty much alone? I still plan on going in June when my apartment's lease expires and I meet my savings goal. I was just wondering if I'll be going monk mode as soon as I move from the clinic. Does the apartment have a gym? It would be nice to have a place to do some 3am cycling or treadmilling when no one is around.

2. Pre-op Tests Question
What exactly do they do for their pre-op tests before surgery? I wasn't sure how to specifically ask Irene about this. Do they just do a blood test and take an x-ray before they make the cut? What exactly are they looking for with their blood tests? Are they just trying to see if you have any diseases that would impact surgery, or is it for anesthesia purposes? And for the x-ray, do they just take an x-ray of your tibias to see where they are going to make a cut or do they do other parts of the body?

This sounds like a lot of paranoia, but I just don't want to quit my job, fly out there, and find out something that would prevent them from doing the surgery. Because that would really suck finding out after ditching your life and career. When I spoke with Irene, it sounds like the only thing that would prevent someone from getting surgery would be cardio-vascular problems, diabetes, and depression.
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Posted on Oct 23, 2016, 4:40 am
#44
Wow, thanks so much for writing this man. It'll go under-appreciated here because people just want to read 2-3 paragraphs of them flying through LL, but you've seemed to capture a good glimpse at the real struggle. I hope you have a full recovery.
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Posted on Oct 23, 2016, 7:26 am
#45
Quote from: ibuse on October 22, 2016, 09:31:54 PMThanks for checking in and being honest. You've achieved a really good height and should be very proud of yourself. I've only told two people about this procedure, and they just couldn't fathom that something like this was even possible. It does not sound like an easy task to do. My preparation stretching sucks enough as is (especially hamstrings--I'll never be able to touch my toes). I can't possibly imagine what you must be enduring.

1. Lodging Question
You're staying in a furnished apartment, right? Are the other patients your neighbors or are you pretty much alone? I still plan on going in June when my apartment's lease expires and I meet my savings goal. I was just wondering if I'll be going monk mode as soon as I move from the clinic. Does the apartment have a gym? It would be nice to have a place to do some 3am cycling or treadmilling when no one is around.

2. Pre-op Tests Question
What exactly do they do for their pre-op tests before surgery? I wasn't sure how to specifically ask Irene about this. Do they just do a blood test and take an x-ray before they make the cut? What exactly are they looking for with their blood tests? Are they just trying to see if you have any diseases that would impact surgery, or is it for anesthesia purposes? And for the x-ray, do they just take an x-ray of your tibias to see where they are going to make a cut or do they do other parts of the body?

This sounds like a lot of paranoia, but I just don't want to quit my job, fly out there, and find out something that would prevent them from doing the surgery. Because that would really suck finding out after ditching your life and career. When I spoke with Irene, it sounds like the only thing that would prevent someone from getting surgery would be cardio-vascular problems, diabetes, and depression.

1. Yes, I am living in a furnished apartment. I am currently living with another patient, but he will move out this week as he is going home. My personal experience was that I was so tired of how busy the clinic always was, that I really was happy when I was able to move into an apartment by myself.. but this quickly became lonely. I recommend that if you can partner up with someone in the clinic and move out together, or move into their place then do it... it makes this journey much easier and you guys will support one another.

As for the other part of your question, the apartments don't have amenities.. you're not going to find a gym or anything like that in any place that is reasonably affordable. The best thing to do is plan to go to the clinic everyday so that you can exercise there with the other patients, just make sure you never miss a day and lose your routine.

2. As for pre-op tests.. it's pretty simple. Just a blood test and an x-ray if you didn't come with one.. they measure your height of course and create a mock-up of what you will look like after with your recommended height.. I'm really not sure what the blood test is looking to filter out.. but I haven't heard of anyone not being able to do the surgery because of any previous health problems.. so if you don't have any major complications then you should be fine.. also of course don't go in talking about how this is your last hope and that if you don't achieve your goal then you're going to kill yourself. Just come in and have the consultation with Dr. Barinov, he will explain to you what he will do during the surgery, he will answer your questions, take a picture of your body for the mock-up and from there you will set a date for surgery.

For the x-ray, they just look at your tibias so they can determine if there will be any complications or things they need to work around.. where to cut and insert the nails etc. 
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Posted on Oct 23, 2016, 1:22 pm
#46
Hi Stripes,

First I'd like to say I'm very glad you are doing fine, that 2CM I'm not going to say it is a big deal, but you have to look at the bright side, you are doing currently fine, no big complications.
You have to realise going 10CM is also a overkill. Hopefully, you are happy about the whole incident ofcourse!

I've had a main question, could you sum up the total of your expenses?

Please keep us updated, I'd really like to hear when you are fully or near recovered!

Kind greetings,
Arch
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Posted on Oct 24, 2016, 10:17 am
#47
Arch,

I'm a little confused as to why you're asking about expenses as both ECB1992 and I have broken it down specifically for you in personal messages when you asked before... I will copy and paste what I sent you in the PM as a reminder...

Here is the breakdown of the expenses in Euros:

14 500 EUR - LL Surgery + 1 month accommodation
300 EUR - roundtrip plane tickets from Brussels to Volgograd
1000 EUR - +1 month accommodation in clinic (this can be negotiated to be much, much less)
4000 EUR - nail surgery (can not be negotiated)

An alternative to the accommodation in the clinic is living in an apartment. Here is the breakdown for the apartment expenses every month.

280 EUR - Rent, internet
66 EUR - Errand boy services (grocery delivery twice weekly)
53 EUR - Weekly cleaning service
78 EUR - Average monthly groceries (vegetables, meats, juice, eggs, sauces, snacks etc)
95 EUR - Chef services (comes 3 times a week cooks two days worth of food)
Total: 572 EUR a month.

My apartment expenses were much higher because of all the services I paid for.. if you share an apartment you can pay 184 EUR a month for rent.. and if you really are low on money and desperate enough you can even share a room at a hostel for 78 EUROS a month....

If you want to know how much I've spent total.. I've been here 10 months now so add up all those numbers above. I paid a lot more than the average patient, so don't use my total as a guide.. just add up what you think you'll need based on what arrangements you think you'll make.
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Posted on Oct 24, 2016, 1:25 pm
#48
Hi Stripes,

Forgive me for asking the same thing twice, I have thought things might changed due your absens but actually everyhing was going according to your plan!

Are satisfied with your LL in general?
Do you feel you will ever be back to 100%?
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Posted on Oct 24, 2016, 4:27 pm
#49
I guess I am satisfied in that I don't have any problems and am recovering well... but I of course am not happy about not reaching my goal. I am planning on doing femurs in the next few years.. so I'm looking at the fact that I only did 7 CM as a blessing in disguise because it allows me to gain more height overall by doing femurs.
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Posted on Oct 24, 2016, 5:49 pm
#50
Quote from: Stripes on October 24, 2016, 04:27:13 PMI guess I am satisfied in that I don't have any problems and am recovering well... but I of course am not happy about not reaching my goal. I am planning on doing femurs in the next few years.. so I'm looking at the fact that I only did 7 CM as a blessing in disguise because it allows me to gain more height overall by doing femurs.
Sorry if you have explained it before,what do you think about your proportions?Can you handle femurs too?What is your wingspan?
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