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Posted on May 16, 2014, 6:55 pm
#151

Quote from: Tall on May 15, 2014, 09:52:14 PMHi. Have you been out in public with your frames? How hide-able are they? Has anyone noticed them under sweatpants? How do you explain their presence to those around you who don't know the truth about your LL? I was also wondering if Dr. Bagirov's prices are likely to rise in the next few years. Thanks so much for your answers and for this awesome patient experience record, by the way!
Hope not because I'm doing this in Russia only because of the price otherwise I wouldn't even think of

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Posted on May 16, 2014, 7:04 pm
#152

Quote from: Hallijah on May 15, 2014, 07:51:28 PMMan Hows walking during consolidation? I plan doing the operation with bagirov at the end of may( not dure which year though) so i'll spend 3 months For lengthening in moscow and during consolidation I should be back home. According to this I should finish distraction phase by the time uni starts which is the reason why I'm wondering about the walk. Also when you're in the consolidation phase do you still need to avoid knee bending and all the stuff that you did during the distraction phase?
are you able to walk at decent speed now that you consolidate? All I need is to go to uni and home and that's about 15 min of walking. Do you think the price will rise lets say in the next 2 years?

walking is improving very fast, i can walk now without aid, but quite akwardly and slow (i walk kind of like a robot would, robot dance etc), it doesnt hurt and eventually i will walk normally with the frames on, they allow full range of motion.

You should sleep with straight legs and wear footholders when laying down on your back even in consolidation phase, but of course its less likely to develop any of those problems now if you didnt get them during lengthening phase.

And yes, i think the price will rise in the future, in 2 years yeah probably. I remember reading a diary from a few years ago at old forum, a girl who was a patient with Bagirov, her price was 6000 dollars, while mine was 6450 euros, a substantial increase.

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Posted on May 16, 2014, 7:08 pm
#153

Quote from: Tall on May 15, 2014, 09:52:14 PMHi. Have you been out in public with your frames? How hide-able are they? Has anyone noticed them under sweatpants? How do you explain their presence to those around you who don't know the truth about your LL? I was also wondering if Dr. Bagirov's prices are likely to rise in the next few years. Thanks so much for your answers and for this awesome patient experience record, by the way!

Yeah when i traveled to the airport after my first visit in Moscow on my way back home, it was mostly sitting in a cab, then a wheelchair waiting at the gate on the airport, and then moving through the airport at home with an assistant moving me on the wheelchair. then taking the car home.

That same thing i did on my check up return in Moscow this last tuesday. So its basically a whole lot of sitting down (flight, cab drive, wheelchair). I havent gone out in Sweden or met any friends etc. but i might do it when i can walk normally, i would need wide pants to cover the fixators though.

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Posted on May 16, 2014, 7:13 pm
#154

Quote from: Slim_tim on May 16, 2014, 02:39:32 AM
Like a bike with good "dampers" like dirt bike? you get that cushing support "bouncy". So after LL i assume that feeling is gone. So when you take a step you don't feel "bouncy" right?. kinda like 2X gravity when walking?

yeah it doesnt feel like dampers during LL, because the pins keep everything locked and hard, i guess it feels similar to a bike without any dampers at all when walking, its just hard pressure going through the lower legs while the flesh stays rigid. But as i said this feeling is starting to get less and less noticable. The stronger the muscles get i guess they start to work again as dampers and you start to feel the legs less as you walk.

Soon it will feel like it did before LL, at this pace im improving at i would guess within a month i can walk like before LL and with the pressure gone.

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Posted on May 16, 2014, 7:14 pm
#155

I was trying to take pics of the x-rays, but it isnt very high quality so it can be hard to see details... i will probably have to scan them. Il try to get it done in the coming days.

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Posted on May 16, 2014, 9:52 pm
#156

Can u ask dr that "is that ok to take melatonin to heal bone more faster" bcoz I got on website is stimulate osteoblast differentiation.  I pray u heal faster nd I welcome ur appreciate ur decision of lengthening at 4 cm which is safe. If I do I will consider 5:5 max. Can u tell me what will be the duration of 5 cm on tibia for lengthening.  Then normal activities.? When u will put off ur fixator.?

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Posted on May 16, 2014, 10:36 pm
#157

Quote from: Wannabegiant on May 16, 2014, 07:13:01 PMyeah it doesnt feel like dampers during LL, because the pins keep everything locked and hard, i guess it feels similar to a bike without any dampers at all when walking, its just hard pressure going through the lower legs while the flesh stays rigid. But as i said this feeling is starting to get less and less noticable. The stronger the muscles get i guess they start to work again as dampers and you start to feel the legs less as you walk.

Soon it will feel like it did before LL, at this pace im improving at i would guess within a month i can walk like before LL and with the pressure gone.


keep fighting man. You earned it. take your time soon enough this will be a distaint memory and you will be enjoying your reward.

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Posted on May 17, 2014, 6:05 am
#158

Inspiring journey. I especially like how you stopped at 4.3 cm to feel right with yourself and as you picture yourself being VS going for 6-7 CM just to be taller.

Can't wait for some photos of the frames under pants. I would like to see a walking video also at some point.

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Posted on Jun 1, 2014, 6:30 pm
#159

Hi Wannabegiants,
How are you doing? I am planing my surgery with doctor salameh in september, in germany. My goal is 5,5.
I think doctor salameh and bagirov device are similar, but salameh device when you have some callus is removable the bottom part, and then the device is smaller during the rest of consolidation period.
I was thinking in doctor mitkovic too but you are right although his device  looks like smaller it is more dificult to hide under the trousers.
cheers.

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Posted on Jun 1, 2014, 8:04 pm
#160

Quote from: paco1 on June 01, 2014, 06:30:56 PMHi Wannabegiants,
How are you doing? I am planing my surgery with doctor salameh in september, in germany. My goal is 5,5.
I think doctor salameh and bagirov device are similar, but salameh device when you have some callus is removable the bottom part, and then the device is smaller during the rest of consolidation period.
I was thinking in doctor mitkovic too but you are right although his device  looks like smaller it is more dificult to hide under the trousers.
cheers.

Sounds good, Im doing fine, no problems really, but life is so damn boring. My walking has gotten better, but walking without crutches still not efficient enough that i feel i can stop using the crutches completely. Maybe in another 2 weeks..

I didnt know the bottom part was removable, that is a great idea, makes me sad that i cant do that with my device, im still debating which people i can meet before removing the frames.. if it was smaller i would go out and live almost like normal the moment i can walk normal.. Well Bagirov was cheaper than Salameh so at least that makes me not regret my choice

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