At the 1:24:45 mark a question is asked about what happens to muscles after 10% of lengthening
The audio is quite bad so I can't quite hear the answer. He does say the IT band heals up. But the muscles "don't necessarily regenerate per se and only stretch". After that he goes on to say something about "electromyograph", "electrical stimulation", "contractile units" which I could not hear properly. I think the gist is that even though there are negative changes to the muscles, there are no changes clinically.
Can anyone else give it a listen and tell me? I want to know what those negative changes exactly are and whether they might cause long term problems.
What does Dr Assayag say about muscle regeneration in this video?
bump. anyone?
Well, the truth is, if uh the IT band when we’re doing a femoral lengthening it does regrow, so it heals and then slowly, slowly stretches. However, the muscles just stretch. They do not necessarily regenerate per se. We know that, if you analyze with an electromyogram, the muscles… the electromyogram being the nerve conduction… the activity within the nerves that go into the muscle, there are signs after lengthening of denervation. That can be decreased by using e-stim, and it recruits sarcomere used which are the contractile units. Now clinically, it does not cause any functional impairment. Now a lot of people ask me can I remain a high level athlete…..
https://pubmed.ncbi.nlm.nih.gov/2298769/
Quote from: Serilium on April 10, 2021, 08:12:10 AMWell, the truth is, if uh the IT band when we’re doing a femoral lengthening it does regrow, so it heals and then slowly, slowly stretches. However, the muscles just stretch. They do not necessarily regenerate per se. We know that, if you analyze with an electromyogram, the muscles… the electromyogram being the nerve conduction… the activity within the nerves that go into the muscle, there are signs after lengthening of denervation. That can be decreased by using e-stim, and it recruits sarcomere used which are the contractile units. Now clinically, it does not cause any functional impairment. Now a lot of people ask me can I remain a high level athlete…..
https://pubmed.ncbi.nlm.nih.gov/2298769/
You are a hero Serilium!
So he stops with the muscles at "they just stretch" and do not "regenerate per se".
And then he goes to explain how nerves also become worse in a way and that it's possible to reduce that by using "e-stim" but I don't know why it's not used in practice then.
It's puzzling how this question is not asked more often by us PATIENTS. Most people ask questions like how much length, how much does it cost, how soon can I work again, what are the complications, but the unique thing about this surgery is the stretching. Patients need to be more curious about that.
It also puzzles me to this day how they don't make people sign all this on the informed consent form. If you see the informed consent form, it's made to make you think that things might go wrong and cause complications but the truth is, it has been studied that there will be some degeneration which a patient needs to be aware of. In some sense, patients need to be made aware that this is an experiment at some level.
But kudos to Dr. Assayag for being completely honest. He seems like a very genuine doctor.
Hello Want-3-inches,
I will ask to my doctor about this video. Because he had told to me that all the soft tissues will get regenerated.
cheers,
sergio
Most doctors shy away from real questions and call you neurotic because they are not ones under the knife
I have been asking a genuine question to all but no one answers
I find it lot harder to breathe now but I was told my energy levels are low.
Which I don’t doubt. But I know my body too. I said if I am 7 cm taller wont my body take longer to pump blood to it’s organs compared to before and yes maybe I’m healthy now but what about future.
My uncles who are very tall have issues with clots all time.
Taller people naturally are built with larger organs for that matter.
What about us limb lengtheners ? How do our organs adjust to this new height because I surely can’t believe that my blood flow would be same post lengthening
Quote from: Ahd1978 on April 10, 2021, 04:44:24 PMMost doctors shy away from real questions and call you neurotic because they are not ones under the knife
I have been asking a genuine question to all but no one answers
I find it lot harder to breathe now but I was told my energy levels are low.
Which I don’t doubt. But I know my body too. I said if I am 7 cm taller wont my body take longer to pump blood to it’s organs compared to before and yes maybe I’m healthy now but what about future.
My uncles who are very tall have issues with clots all time.
Taller people naturally are built with larger organs for that matter.
What about us limb lengtheners ? How do our organs adjust to this new height because I surely can’t believe that my blood flow would be same post lengthening
Hey Ahd1978,
I am sorry to hear that you are still facing difficulties of the breathing. Did you get all the diagnostics tests performed? If you are not feeling the satisfaction please ask to the doctors for more tests. But finally you will have to listen to the doctors about why you are feeling this way. If no diagnostic tests are showing why you are having the breathing difficulty and the oximeter shows the good readings then you should have to believe you are severely anxious.
If the body is 7cm longer yes it would be harder for the heart to pump the blood to all the organs. But shouldn't the same thing happen when a skinny guy puts on the muscles through extreme body building? There are people who put on 15kg of weight after body building and they become more healthy after that. So I think the amount of new tissues added should not cause serious problems.
I am more concerned if the blood vessels are getting damaged from the lengthening and can carry only lesser amount of blood after the lengthening. But that should reduce the circulation in your legs but not to the other organs.
sergio
Thanks Sergio
I have been adamant with local team of dr. Paley in poland and due to that only when I did blood tests on my own accord I realize my dimmer levels were very high including liver enzymes.
Apparently both are high post surgery is what local docs say.
I should have had my vitals before and after surgery.
I do agree with you I may have little anxiety but I think after escaping fat embolism and waking up with tubes in your mouth as surprise and later having an irregular heartbeat I am being extra precautious
With regards to growing muscle hmmm I agree it’s healthier
But what I’m concerned with is time now needed for blood to travel upstream. I just want a doc to answer this honestly. Because if it is I would stop at 7 cm end of this month and call it a day. If not I would push last 8 cm
I am doing breathing excercises daily and have reduced distraction to .5mm which also helps.
Maybe it’s just my energy levels. I am 43 years old too. So not youngest of all limb lengtheners.
My breathing stays heavy only 30 min during distraction after that it regains its strength.
When I ask my doc paley he says clarify with local docs in poland. They will answer your blood and other issues.
So I have paid 100k usd for surgery where I won’t be seeing my doc till end of distraction if he comes back to poland and till then I am dealing with his local docs in poland. Had I known that I would have done it only in Florida
People in Florida pay the 100k for Paley and still end up never seeing him at all- sometimes not even for consultation.. You pay for Robbins
Well atleast robbins is more senior
I am not discarding local polish docs at his institute but with patient who gone through fat embolism scare a little bit of attention would be nice.
He does reply on emails though. But I’m always scared to ask him for anything.
Since I am doing this in private I can’t even share with my family.
I will battle this out. That’s why I have reached out to forum with these questions.
My initial 5 cm didn’t have any breathing issues. That’s why I’m thinking is new height which is now almost 6 cm affecting my breathing and changing my dynamics.
My flexion and all r tops so far. Even physios say recovery is great. So they are surprised with my dimmer levels or heavy breathing.
What I have found is that fat embolism or any kind of trauma can affect heart muscles
Simplest way is when I don next blood test I’m checking for troponin levels which would show if there is any damage to heart. If none one thing ruled out and maybe it’s just my energy levels being low and lack of cardio like I had pre surgery
We shall figure this out.
In meantime if you guys can get more information on dynamics of organs post cll would be great
Thanks
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