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Posted on Apr 11, 2021, 2:22 pm
#21

Quote from: Ahd1978 on April 11, 2021, 02:18:53 PMYes I have decided to buy it and he helped me in making final decision to go with paley too as a doctor for LL.

Well I have recieved reply from him and he would be asking doctors same to clarify further.

I have also told him to request docs either to charge extra but ensure blood tests are mandatory during distraction for all patients and during discharge  to ensure all vitals come clear before sending one home.

Attaching his reply here towards my question

I don't, however, believe getting taller will affect your blood flow. The cool thing about the body's vascularization is that it can reroute and adapt to new situations to keep you alive regardless of the stimulus or situations. Whether that means creating new capillaries to engorge your new legs with blood or ensuring you properly oxygenate your upper body, I would say that perhaps it will take some time after distraction to feel more normal but I would like to keep on top of this to ensure you're okay.

Victor

Hope this helps


Good to hear this. His response seems awesome and I hope it's true and what the doctors said What does Dr Assayag say about muscle regeneration in this video?

If you get a chance, please also ask him about this thread (how muscles, vessels and nerves respond to lengthening considering what Dr Assayag said in the above video).

As for blood tests, yeah I think it's a good idea. But I guess most patients don't have problems and so maybe they have decided it's not necessary. But for someone like you who had fat embolism it would be more necessary I think.

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Posted on Apr 11, 2021, 3:37 pm
#22

Thanks surely would ask him

Also getting the beta with all necessary information.

As for blood tests it’s not just for fat embolism but as number of patients are in creasing so are complications.

The bloods also are good to see vitals and dimmer levels which can show elevated levels during clots. Atleast till distraction phase

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Posted on Apr 26, 2021, 7:56 am
#23

Razal was kind enough to ask Dr Assayag this question and Dr Assayag was kind enough to answer it.



- He says there is both regeneration and stretching.
- Nerves, he said theoretically deteriorate he said.
- But clinically patients seem to fine functionally.
- He did not specifically address blood vessels.
- But generally all soft tissues have regeneration and stretching. He did not say how much of each.

All in all, it seems like clinical observation is the primary way in which doctors think this procedure is safe to perform.

I guess anyone who plans to do this should dedicate their 100% to staying fit (eating and exercising right) so that even if there are theoretical deteriorations you will compensate for that by doing everything else right.

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Posted on Apr 26, 2021, 11:11 am
#24

I feel like LL doctors are strangely optimistic and vague about soft tissue degeneration.
There are people on this forum who legitimately believe they can regain 90-100% athleticism after 8 cm lengthening...

The truth is you will be lucky to ever play sports again, even on the lowest level possible. The fact that doctors aren't very clear and explicit on this matter sets off a lot of alarm bells for me personally. You are stretching your muscle, nerve and arteries an insane amount about a very small origin point, at like 1-2 mm a day for 60-40 days in a row, with no way for the soft tissue to release the pressure at any point.

If you can go for a walk with your family and friends, go on a bike ride once in a while and walk up stairs after that; it is the max you can hope for post-lengthening. I am not saying it is not worth it to lengthen +5 cm, but you should be aware of the permanent trade off in athleticism.

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Posted on Apr 26, 2021, 11:16 am
#25

Ok guys I have news for all

1.  My breathing being heavier I have no idea the reason for it. Howeve when I was in ICU at he cardiologist ran many tests to see if there was any heart damage the answer was confirmed by troponin level tests in blood which came normal. Troponin level is something that tells you of there is damage to heart.

2. The amount of pain killers I took did affect my stomach lining and caused GERD. This is an issue that comes for people late 30s. It’s from years of travel food in restaurants and bad life style. So now I am on GERD medicine as it come sometimes cause acid to enter lungs.

3. Same time I will be doing ultrasound and ecg this week to rule out again higher dimmer levels or any chances of clot.

4. I am reaching 7 cm distraction end of month and will then decide.

5. With regards to changes in long run.  This is answer I got from main guy PALEY poland. He said to analyze this one should have ecg and ultrasound before and after surgery to see what data shows. Unfortunately no one has done that research yet but all adapts to changes but it would be good research to know. Also that taller people have lower BP.

Paley himself told me vessels and all is rubbish and don’t read stuff on internet.

So real answer is no one knows truly the long term effects

It’s like I mentioned before when I did my ACL younger was great. Now as I am aging I can feel the difference.

Hence I believe moderation is key but doing crazy numbers like 14 and 16 cm I would be petrified.

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Posted on Apr 26, 2021, 11:32 am
#26

Quote from: Ahd1978 on April 26, 2021, 11:16:44 AMOk guys I have news for all

1.  My breathing being heavier I have no idea the reason for it. Howeve when I was in ICU at he cardiologist ran many tests to see if there was any heart damage the answer was confirmed by troponin level tests in blood which came normal. Troponin level is something that tells you of there is damage to heart.

2. The amount of pain killers I took did affect my stomach lining and caused GERD. This is an issue that comes for people late 30s. It’s from years of travel food in restaurants and bad life style. So now I am on GERD medicine as it come sometimes cause acid to enter lungs.

3. Same time I will be doing ultrasound and ecg this week to rule out again higher dimmer levels or any chances of clot.

4. I am reaching 7 cm distraction end of month and will then decide.

5. With regards to changes in long run.  This is answer I got from main guy PALEY poland. He said to analyze this one should have ecg and ultrasound before and after surgery to see what data shows. Unfortunately no one has done that research yet but all adapts to changes but it would be good research to know. Also that taller people have lower BP.

Paley himself told me vessels and all is rubbish and don’t read stuff on internet.

So real answer is no one knows truly the long term effects

It’s like I mentioned before when I did my ACL younger was great. Now as I am aging I can feel the difference.

Hence I believe moderation is key but doing crazy numbers like 14 and 16 cm I would be petrified.


hey you have had Pulmonary embolism right? May this be the reason for your breathing problems?

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Posted on Apr 26, 2021, 12:01 pm
#27

Hey I had minor complication with fat embolism during surgery as per PALEY

Later they ran tests and I never felt heavy breathing till 6 cm of lengthening.

Since then I have had high dimmer levels which doc says is very normal after such heavy surgery as body is repairing itself.

I will do ultrasound this week and ecg to check all

But no I didn’t have PE

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Posted on Apr 26, 2021, 12:28 pm
#28

Quote from: TheDream on April 26, 2021, 11:11:32 AMI feel like LL doctors are strangely optimistic and vague about soft tissue degeneration.
There are people on this forum who legitimately believe they can regain 90-100% athleticism after 8 cm lengthening...

The truth is you will be lucky to ever play sports again, even on the lowest level possible. The fact that doctors aren't very clear and explicit on this matter sets off a lot of alarm bells for me personally. You are stretching your muscle, nerve and arteries an insane amount about a very small origin point, at like 1-2 mm a day for 60-40 days in a row, with no way for the soft tissue to release the pressure at any point.

If you can go for a walk with your family and friends, go on a bike ride once in a while and walk up stairs after that; it is the max you can hope for post-lengthening. I am not saying it is not worth it to lengthen +5 cm, but you should be aware of the permanent trade off in athleticism.


At least in the short term most people recover much more than that. There are plenty of examples of people recovering more than that. It's just the long term impact that no one knows about and don't seem to be working on also.

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Posted on May 5, 2021, 8:55 am
#29

Just to bump this thread a bit, https://www.newyorker.com/magazine/2021/05/10/persuading-the-body-to-regenerate-its-limbs

This is a cool article on whether we may be able to regenerate limbs in the future. Theoretically even if our legs do get fked up, if we live long enough we might be able to cut them off and regrow them in a natural state. Who knows but I'm optimistic either way that we will have technology to fix any issues we have.

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Posted on May 5, 2021, 2:36 pm
#30

Well, what do make impossible growing after some age? The bones growth plates. Some grew until 23years, some until 18.. But it is all about the bones growth plates. If you are thin and you star to eat well and go to the gym, after a while, your muscles will be bigger. If you dou steroids, your muscles will be so much bigger. Your skin, nerves and muscles have the capacity to grow and shrink. The human body is amazing.

So it is supposed that your muscles can grow as well with Limb lengthening. Maybe no as fast as you lenghten your bones, but they can grow

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