Quote from: jcayabo on May 23, 2019, 01:10:16 PMWALKING UNAIDED!! SCK MY DCK ILIZAROV FRAMES.
But I look like a waddling duck.
Did you finally remove the frames?
That was a long time I read that you were distracting at .4 mm/day for most of it
Congrats!!!! 
Quote from: jcayabo on May 23, 2019, 01:10:16 PMWALKING UNAIDED!! SCK MY DCK ILIZAROV FRAMES.
But I look like a waddling duck.
Really nice! Congrats!
Quote from: Bonez on May 25, 2019, 01:05:43 AMDid you finally remove the frames?
That was a long time I read that you were distracting at .4 mm/day for most of it
Congrats!!!!
I'll find out about my frames tomorrow... big day.
i ma happy to see you are recovering. keep it up. keep going. thumbs up.
Very frustrating day. Got my xrays and very, very little progress in 2 months. Could be the NSAIDS, could be my crap PT.
What will happen now?
I get my next X-rays by the end of june and I fear that it won't be enough again...frustrating indeed
Quote from: Great321 on May 29, 2019, 03:40:37 PMWhat will happen now?
I get my next X-rays by the end of june and I fear that it won't be enough again...frustrating indeed
Doctor has now said, out of nowhere, that the frames cannot come off until I am walking unaided fully and able to sit>stand without aid. Very strange because this is the first time I've heard about it. So, now I need to start crushing my PT or I will never be out of the frames.
Quote from: cheekycabs on May 29, 2019, 05:14:28 PMDoctor has now said, out of nowhere, that the frames cannot come off until I am walking unaided fully and able to sit>stand without aid. Very strange because this is the first time I've heard about it. So, now I need to start crushing my PT or I will never be out of the frames.
Very weird. In my eyes your legs look almost fully consolidated...Maybe you know another doctor who you can show the X-rays to for a second opinion? Via DICOM files or CD ROM ? As you said...what your doctor said is unusual. But maybe he thinks that you will progress to that level soon anyways and until than your bones might be 100%. In my case I couldn't wait until then. Pretty sure that without the frames, the recovery will be a lot faster.
Quote from: Great321 on May 29, 2019, 06:04:44 PMVery weird. In my eyes your legs look almost fully consolidated...Maybe you know another doctor who you can show the X-rays to for a second opinion? Via DICOM files or CD ROM ? As you said...what your doctor said is unusual. But maybe he thinks that you will progress to that level soon anyways and until than your bones might be 100%. In my case I couldn't wait until then. Pretty sure that without the frames, the recovery will be a lot faster.
You're probably right, it may be good for a second opinion, but I have seen massive strides in my abilities, maybe I am closer to walking/standing than I thought. I'm going to try and see how this month goes, really get into PT and see what happens. I just want to wear normal pants again. My doctor has said that if I can't walk/stand there is a possibility that the bones will compress on themselves and I'll lose height, so unless I'm able to walk fully they won't remove it. And you're definitely right, having these damn pins in my legs have to be halting my recovery.
2 week update or whatever it is.
Walking very good lengths of time unaided, I'll say for 3 minute intervals I'll walk unaided without crutches. But my form is not so great, I spoke to a very interesting blind russian physiotherapist, and he's basically given me this video to help me recover
He's told me walking is not the be all and end all, these exercises are much more important, so I'm focusing on that more than before, which every post-LL patient says anyway.
One last thing, still getting some swelling after walking a lot. I really do hope it's just because of the pins. Damn I want these things off. 
You must be logged in to post a reply.