LON with the boys at Dr Sringari--India (Complete)

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Hey dude,

whats up with the fibular bone alignment? is it supposed to be like that?

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Fibula? Aghh, we don't worry about fibula. 

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Quote from: Polycrates. on March 09, 2014, 10:10:06 PMFibula? Aghh, we don't worry about fibula. 

lol

I guess fibula bone is not really needed.

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Quote from: Polycrates. on March 09, 2014, 10:10:06 PMFibula? Aghh, we don't worry about fibula. 

It figures, this IS India after all.
 
From what I've read, at least according to several leading CLL doctors, that, to no surprise, the fibula is quite important and that if completely ignored, fibula related complications can occur.
Also, I had a consult with Dr. Paley's and asked him what kinds of complications can occur and ways he deals with it. One of the complications he brought up was the requirement for equal distraction of bothtibia and fibula bones, and about the importance of the lower fibula bone not migrating (even a few mm migration has drastic consequences) because it could lead to misalignment, ankle pains / inflammation (ligaments & tendon) and early arthritis.
 
Dr. Paley also told me he recently he had several patients who did lengthening in India come in, one of which who complained about severe ankle pains after he returned home. Turns out the patient's lower fibula migrated out because cheap, improper wires were used to fixate the bones and because no screws were used. Thus, the bones moved and that he needs another operation to fix this.
 
I'm not surprised the doctor or "medical" staff India say that the bone is not important, it was probably what the other Indian patient heard when he was there too.
But I guess answers like "fibula is not important" is not a big surpanswer hen it came from a doctor who can make "accurate" calculations simply by grasping your ankle while you laid in bed.
 
Quote from: Medium Drink Of Water on March 09, 2014, 07:47:48 PMYes, an x-ray taken of the whole lower body while standing, after the lengthening phase.  They used that to determine how much we gained and whether our alignment was proper before the 2nd surgery.

This is what Dr. Paley and his staff told me too.
 
When I was waiting in line to get a full body x-ray, there was a patient ahead in frames. The radiologist said he had to stand up for the X-rays, and in the back of my head I thought this was crazy because he was in frames. When I spoke to Doctor about this and whether or not I needed to stand up for X-rays when I do LL, he said yes, because standing up and ambulation of the feet are required to make proper assessments of alignment of the bones and joints in the legs. Laying down does not accurately show bone/joint alignment because standing position and pressure on feet/bones/joints are not present.
 
So MDOW, I guess the Chinese doctors knew what they were doing.
 
Polycrates, when you did our CT scans, and also your X-rays, do they require you standing up on your feet?

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No, everything I've taken has been laid down. To the doctor's credit, some months ago, when I asked about the fibula's consolidation and he said he doesn't even look at the fibula, I do remember he mentioned that the only thing important about it is that it remains in line at the ankle. He said he passes wires through the top and bottom ends of the fibula. I remember reading a Paley authored study saying this is an adequate means of fixation. Does Dr Paley still use screws with external fixators? Even in my x-rays, you can see there is a pin passing through the fibula. I've already conceded to the fact I'm going to be a bit f**ked up. Hope I can get it sorted back home in Canada without too much hassle, otherwise I've botched my health by my own stupidity....

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It sounds like Sweden's ankle problems may be resulting from a fibula issue as well.

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Quote from: Polycrates. on March 10, 2014, 12:51:03 AMNo, everything I've taken has been laid down. To the doctor's credit, some months ago, when I asked about the fibula's consolidation and he said he doesn't even look at the fibula, I do remember he mentioned that the only thing important about it is that it remains in line at the ankle. He said he passes wires through the top and bottom ends of the fibula. I remember reading a Paley authored study saying this is an adequate means of fixation. Does Dr Paley still use screws with external fixators? Even in my x-rays, you can see there is a pin passing through the fibula. I've already conceded to the fact I'm going to be a bit f**ked up. Hope I can get it sorted back home in Canada without too much hassle, otherwise I've botched my health by my own stupidity....

Dr. Paley said that you need special wires called Olive Wires to properly fixate the bones.
Using only regular wires like what the guys from India had does not have ball-barring to properly hold the bone in place, so the bone can still move and "slide" on the wire's smooth axis.

Yes, he still uses screws with external fixation. The screws (which need to be inserted at a proper angle) are needed as well to add more strength because the wires can bend during lengthening. Especially if the person has thick, muscular legs which resists lengthening and puts more strain on the wires, screws and the entire apparatus.

It's funny your Doctor not properly acknowledge the importance of the fibula. From my consultation, the importance of proper fixation and equal distraction rates of both tibia and fibula bones kept coming up, because taking care of them can prevent nasty complications later on.

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I know I have the regular wires, but my logic was that because they are crossing each other, this would lock the bone and prevent any sliding from occurring. When my physio comes in here with his stupid smile on his face and asks how I'm doing, I'll let him know today. I was contemplating going back home in frames and going to an ER, but I'll just book a ticket for 2 weeks from now and get into an ortho ASAP. FMstupidL.

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Quote from: Polycrates. on March 10, 2014, 02:01:01 AMI know I have the regular wires, but my logic was that because they are crossing each other, this would lock the bone and prevent any sliding from occurring. When my physio comes in here with his stupid smile on his face and asks how I'm doing, I'll let him know today. I was contemplating going back home in frames and going to an ER, but I'll just book a ticket for 2 weeks from now and get into an ortho ASAP. FMstupidL.

I hope everything goes well for you Polycrates.
It's not the end of the world, just a minor setback to overcome.
Hopefully, the other patients are faring better.

It would be interesting to hear what your physio say. You also have to remember that it seems like there is a business comes first mentality going on in India and that business undertones seems to prevail everything - at least according to what I have read.
Maybe the physio or other staff, may withhold important information in fear that you announce it to the world. Or lie to you and give you misinformation to temporary "appease you."

In fact, why is it that your physio is even giving you medical advice when it should be the Medical Doctor Surgeon who should be coming in to advise and treat you?

Your physio should not be the one to advise you on your X-rays, or your frames or anything. In any other modern medical establishment, the physio is there solely to aid you in proper Physiotherapy treatment and then leave. Not act as an unlicensed, pseudo radiologist-neurologist-pharmacist-ortho-surgeon-medical doctor.

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Hey, I heard somewhere that 50% of the patient issues come from his/her own mind. Maybe you will come out of this healthy and pain-free. Who knows. If not, then you have that old man to thank for (fake diary & doctor's affiliation $).

It is already what it is at this point. So worrying won't help. When I came back, my family doc said, after looking at my xray, that I won't walk again. We were setting me up on Canada disability tax credit. I pay a lot of taxes every year. However, in one month I came back walking, then he took that privilege away from me.

I'm glad that I'm not a burden to my country!

Cyber. You seem very knowledgeable on this subject. Did you go by a different username on the old forum? Welcome to this forum!