Quote from: Slim_tim on May 05, 2014, 12:42:03 AMSweden i have been scared off lately.
I have a vision of how i will be/look after the surgery and you are basically telling me that my vision will not happen.
I don't know what to do..I can't go on being this height for the rest of my life. But if i do the surgery im doomed to be in pain and have fatigue in legs for years to come after surgery.
WTF SHOULD I DO!!! i just want to be normal .
I was feeling the exact same way as you bro! There was a time when I thought that the pain and complications with CLL was only temporary and then end up becoming a taller and normal once again....but now I understand that there is a trade off between height and health. You can either:
1)remain short, live with height neurosis (probably forever) and not risk your physical health
2)become taller, more confident but risk your physical health with possible early arthritis
I have chosen the second option as I am extremely depressed with my current height and lost most of my esteem that it is hard for me to live a normal life and do basic things like walking properly with my ****ing shoelifts to try and avoid humiliation. I will stick with 6-6.5 cm on my femurs and 5 cm MAX on my tibias and hopefully that won't do much damage to my legs. I don't mind trading minor aches and pain for several inches of height but having premature arthritis......oh man 
Quote from: TheRisingShorty on May 05, 2014, 02:25:21 AMI was feeling the exact same way as you bro! There was a time when I thought that the pain and complications with CLL was only temporary and then end up becoming a taller and normal once again....but now I understand that there is a trade off between height and health. You can either:
1)remain short, live with height neurosis (probably forever) and not risk your physical health
2)become taller, more confident but risk your physical health with possible early arthritis
I have chosen the second option as I am extremely depressed with my current height and lost most of my esteem that it is hard for me to live a normal life and do basic things like walking properly with my ****ing shoelifts to try and avoid humiliation. I will stick with 6-6.5 cm on my femurs and 5 cm MAX on my tibias and hopefully that won't do much damage to my legs. I don't mind trading minor aches and pain for several inches of height but having premature arthritis......oh man
I feel the same way too. I was hoping to do Lon on tibias but I think the risk of permanent knee pain is not worth it. I think I will will do external with Dr Birkholtz hopefully in 2 or 3 years. I will only do 5 cms on tibs so I don't think I will be in frames for too long.
Quote from: Blackhawk on May 05, 2014, 03:05:36 AMI feel the same way too. I was hoping to do Lon on tibias but I think the risk of permanent knee pain is not worth it. I think I will will do external with Dr Birkholtz hopefully in 2 or 3 years. I will only do 5 cms on tibs so I don't think I will be in frames for too long.
How long do you think it would take a 25 year old kid to recover from purely external tibias? Somewhere along 7-10 months? This is for 5 cm btw
Quote from: Arche on May 05, 2014, 03:15:31 AMHow long do you think it would take a 25 year old kid to recover from purely external tibias? Somewhere along 7-10 months? This is for 5 cm btw
From what I have read I think 7-10 months is a good estimate.
This is probably a good question for RGKEY.
Quote from: Blackhawk on May 05, 2014, 03:34:58 AMFrom what I have read I think 7-10 months is a good estimate.
This is probably a good question for RGKEY.
Yeah, I think wearing frames like that is Guantanamo-style torture lol (but seriously...) I'll take my chances with the Intramedullary Nail. (It's not like the PRECISE nail isn't entered through the knee for tibias anyway).
Quote from: Arche on May 05, 2014, 03:15:31 AMHow long do you think it would take a 25 year old kid to recover from purely external tibias? Somewhere along 7-10 months? This is for 5 cm btw
Doctors often say adult patients need 1 to 2 month for every cm you lengthen, so best case scenario is 5 months and worst case scenario is 10 months. Most likely scenario is 7.5 months. It depends on your own genetics, diet and exercise.
Quote from: TheRisingShorty on May 05, 2014, 02:25:21 AMI was feeling the exact same way as you bro! There was a time when I thought that the pain and complications with CLL was only temporary and then end up becoming a taller and normal once again....but now I understand that there is a trade off between height and health. You can either:
1)remain short, live with height neurosis (probably forever) and not risk your physical health
2)become taller, more confident but risk your physical health with possible early arthritis
I have chosen the second option as I am extremely depressed with my current height and lost most of my esteem that it is hard for me to live a normal life and do basic things like walking properly with my ****ing shoelifts to try and avoid humiliation. I will stick with 6-6.5 cm on my femurs and 5 cm MAX on my tibias and hopefully that won't do much damage to my legs. I don't mind trading minor aches and pain for several inches of height but having premature arthritis......oh man
From alot of reading I believe that there are stages potential LL patients go through. The first is wanting to lengthen as much as possible, the second is realising that lengthening the max affects how the rest
of your body looks e.g lengthen 10cm then realise tibs/femur/sitting height is no longer proportional. Then finally the long term health effects are considered.
The best doctors won't let CLL patients do 8cm on tibia or 10cm on femur because they know what happens when people do.
Quote from: theuprising on May 05, 2014, 04:35:52 AMFrom alot of reading I believe that there are stages potential LL patients go through. The first is wanting to lengthen as much as possible, the second is realising that lengthening the max affects how the rest
of your body looks e.g lengthen 10cm then realise tibs/femur/sitting height is no longer proportional. Then finally the long term health effects are considered.
The best doctors won't let CLL patients do 8cm on tibia or 10cm on femur because they know what happens when people do.
Thank you for stating the obvious for the 1028934 time. Next time you maybe want to give some contructive critism instead of just tellins us wtf you have been figuring out since you started your forum journey....
Quote from: theuprising on May 05, 2014, 04:35:52 AM
The best doctors won't let CLL patients do 8cm on tibia or 10cm on femur because they know what happens when people do.
Where did you get the crazy idea that the "best" doctors won't let CLL patients do "8cm on tibia and 10cm on femur?!!"
From my research, it seems the real-world best Doctors are a lot more conservative then that.
Quote from: Slim_tim on May 05, 2014, 03:24:33 PM
Thank you for stating the obvious for the 1028934 time. Next time you maybe want to give some contructive critism instead of just tellins us wtf you have been figuring out since you started your forum journey....
I think the post from theuprising was way more valuable than your post slim_tim.
You want constructive critism? Here's some. You're acting like an @$$hole!!! Most people don't like what you have to post when you are acting like an @$$hole because reading it is a waste of time. So stop being an @$$hole slim_tim.
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