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Posted on Oct 26, 2013, 6:06 pm
#1
Hello

so this is "clear" or " Alpen Rose"  from old forum , I got banned but  I don't know why?!!
I was really happy that I can share and get some info from LL patients
but hopefully I'll be able to do that here...

so lets start my diaries

Who am I?

Gender : Female
AGE: under 25
Height: 5 feet
Weight: 56-58kg
Country: UAE- Dubai

 

Why DO I want to do LL ?


obviously, because I'm short, I didn't face any problem with my height like it was hard to me to date or smth..
actually many men think that my short height is giving me extra bonus since they can feel more manly with my petite size
But I hate being short ..!

Where?

I was thinking to do this surgery in several places :-

Firstly, I thought of Germany since I was promise to  be 2nd secretory  in my Embassy over there, and in this way I can afford living in Germany and the surgery's cost too, also, I love European  countries so living there for more than year is not consider an issue for me.  BUT, getting this job  will take time around (3-6months) , and I want to do the surgery RIGHT NOW,so I  chose another country, since I cant afford living in Germany nor the cost of the surgery.

Secondly, China, it is a  good choice, but my friend have been in china for more than 3 months and she told me that is so hard to communicate with ppl over there, cuz they are not speaking English.

Thirdly, Russia , Despite  my tries to contact many hospitals but I got no replay

Fourthly, Thailand, I love this country, moreover, the hospital over there are very great and the doctors too. However, I found just one hospital that perform  LL, so I changed my mind and I chose...

Finally, India, there are many hospitals that offer to do this pressure, and the cost of living in India is so low.. so I decided to go and find the hospital and the doctors by myself .. ( I'll write later about what I found in India about ppl/cost/etc)...

The journey to find hospital ...


I found over 15 hospitals  that offer to do LL ( using different methods) across India, however I Just met with tow doctors in tow different hospital ..

The first hospital: Forti hospital
The name of the doctor : Dr. Vivek Mittal
The technique: Ilizarov
My impression about the doctor: he is very realistic, and he thinks more about patient's health than money
he was against doing this surgery for both my tibia and femur. Also, he was explained me and warning me about the pain that I may carry..
The cost: the surgery is 6000USD include the investigation tests  and so on, staying in the hospital is cheap too (750INR/night) and I spent tow night over there and it is a good hospital..

Note: I found cheaper hospital in Mumbai,..but money it should not be the first priority when it comes to your life and health...

Second Hospital : Nova Hospital
The Dr name  : Dr. Anil Raheja 
I met Dr Rehaja and he explained for me about the  external fixator which he will use and its called monorail fixator .. For me this fixator it looks more comfy than illizrov method ..
I told him my true tension to get lengthening both my femur and tibia and he advised me to do just my tibia...
but for me I think I can stand the pain (i guess) and technically lengthening both femur and tibia is possible and I shouldn't get trouble with lengthening both parts..
the cost of the surgery included (7days) in hospital and 2.5months physio therapy is 11000$

(I'll write about the accommodation later )

 
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Posted on Oct 26, 2013, 7:07 pm
#2
Hello and welcome to this forum. You won't bet banned for asking questions about bicycles here.  VERY FERST STEP - INDIA - Dr. Anil Raheja
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Posted on Oct 26, 2013, 7:16 pm
#3
As someone that is struggling with an Ilizarov external fixator on their tibia right now, please god DO NOT do external femurs and external tibias at the same time.



Before this surgery I thought I was tough. I played rugby for a decade, I always thought I could push myself harder in the gym than anyone else, I've had serious illnesses causing me to spew my guts up etc for days and not be phased, called tough by siblings/friends, just a general arrogance thinking I'm special and LL won't be much of a challenge for me, similar vibe to what I read in your post. Boy was I WRONG. It is so hard! Crying has been a daily occurrence for me for the past few days. Today I had to get an x-ray so they had to carry me downstairs put me in a taxi and drive there, every bump was a sharp stab in my pins, especially one. On the way back I was assisted by people clearly inexperienced with LL and they just yanked my legs to get me in the taxi, I already had an existing knee ligament issue and the pain was unbearable, if not for only a few seconds though. I cried all the way back.



I cannot even fathom doing this with another fixator on my thigh ESPECIALLY SINCE EXTERNAL FEMURS ARE SUPPOSED TO BE SO MUCH MORE PAINFUL. I cringe so hard thinking you are even considering doing this, listen to the doctor and just do tibia. I would say if you are dead set on increasing your height a vast amount go for 8cm-12cm on tibia. Although I wouldn't recommend this at all it would undoubtedly be far better than having duel fixators.



Look, I don't know you, I could have read this post and just moved along. But I saw an opportunity to help you. I can almost guarantee (99.99%) you will regret doing this probably the day after your surgery, that soon. If you do this you will be in for an extended period of literal torture/hell. Please don't do this I am shuddering even thinking about having to deal with another worse fixator on my thigh. Please post back saying you have reconsidered. If you want I can ask the others in the guesthouse to post here as I am positive they will only backup what I have had to say, it sounds like even the doctor is extremely hesitant.

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Posted on Oct 26, 2013, 7:45 pm
#4
Medium Drink Of Water
so they banned me because of bicycle thing?

Russianblues

Actually I did it ... I just didn't got time to post about the details..
I'm on day 30 or 31

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Posted on Oct 26, 2013, 7:52 pm
#5
Quote from: Russianblues on October 26, 2013, 07:16:15 PMAs someone that is struggling with an Ilizarov external fixator on their tibia right now, please god DO NOT do external femurs and external tibias at the same time.

I totally agree with this.  Encourage the OP (original poster) to really give some serious consideration about this decision. You might take years to recover from this, not only physically but psychologically.  There will be alot of pain and immobility, not to mention complications with recovery when you do both Femurs and Tibias at the same time. 

The results of patients who have done it are not encouraging.  Also suggest that you think seriously about NOT doing External on Femurs, as the pain level and complications level are quite high so it's quite a risk.

Going to unknown doctors is not advised, unless the doctor has legitimate specialized training in Limb Lengthening and patient's feedback that you know of. 

Update: You posted that you have done the surgery, so the advise above would not apply to you anymore.  Wish you well on your recovery and you will have the support of the community.
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Posted on Oct 26, 2013, 8:08 pm
#6

Russianblues


about the taxi.. I think I had the same experience few days ago when I went to hospital
but to be honest I didn't suffer a lot .. cuz I got some ppl who carried me  VERY FERST STEP - INDIA - Dr. Anil Raheja
however , I have to say moving out isn't easy too, so next time I think I let them to come and  have the x-ray here in hotel with these portable devices, the quality  of x-ray want be so good,, but it will do the job..


Diameon

about the doctors I'll say he is well known as a good orthopedic doctor "he did many knee replacement surgeries"
BUT for LL he "claimed" that he did 20 LL surgeries  ...
thanks
 



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Posted on Oct 26, 2013, 8:33 pm
#7
DayZero ..

I was waiting to shift into my room about 3-4hours and  when I shifted (at 8pm) I felt very comfy the room is big and nice, and nurses are so friendly (note in India they called nurse by sister )
They asked me to have shower , shave my private area, and wear the gown... after that I did several tests which include x-ray, blood test, and 2 or 3 other tests.. they asked me million questions too.. and then..
they put the cannula and told me to not eat any thing 10hours before the surgery .. Oh I forget to mention the surgery will be tmw at 12:00pm, 24th-Sep
was it a hard day?
I don't know !but it was cold  I hope that those "warm inches" that I read about will break this feeling and make me warm sooner or later..
I really I had no idea what kind of thoughts were in mind or maybe I don't have any of them..  ... but  I wanted the surgery to be done and these 8 months to pass quickly..
then? yeah I knew what will happen next not exactly but at least I'll be taller.. and that's what I want, that's what I always want to.. no need to google the height of actress to see if they are as same height as am I anymore.. and no need to wear high heel when I know that I can rest my feet now" after LL" by wearing flat... what else? I dunno..
how could I describe my feeling ? exciting ?sad ? afraid? what? I dunno again
but I know that I wasn't sad that I'm alone cuz I chose that, however there are few ppl or may be certain person you need him/her to be with you.. not to do any thing just to be with you and tell you that you'll gonna be fine and you're strong enough just to come to this place alone , he should say it via phone, email, or whatever !!!
I remembered in that day too that I was listening to ROAR it's a good song indeed...also I remembered that I received my new clothes that I made here in India ..so the night  passed while I was trying my new clothes... I'm looking good  with these clothes..but I'll  be Goddess after LL..
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Posted on Oct 26, 2013, 10:46 pm
#8
I don't think I really understand all this. You are now doing both tibia and femur external at the same time - right now?

Kiss your former life godbuy and welcome a crippled one.

The nerves can't take that amount of lengthening.

Which famous doctor agreed to do this to you?

I'm sorry you destroyed your life, and for what? Guys already liked you.
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Posted on Oct 27, 2013, 12:04 am
#9
yes I'm doing my tibia and femur with external fixator.."monorail fixator" in the pic below


VERY FERST STEP - INDIA - Dr. Anil Raheja
sorry for the low quality of the pic

and about the nerves issue I already spoke to the dr.Anil Raheja  and he said, if anything happen to nerves we can compress the bone since the bone tissue is so soft
and he wasn't fully agreed to go for both tibia and femur at the same time but I told him that I can stand the pain so he did it..

I'm Engineer, and I have been deal with numbers mostly in my life and this surgery to me is like mathematical problems that deals with many numerical value..
For me I thought gaining 7cm in 6months by doing just tibia is not good as gaining the double amount at the same period of time...
I may take few months more so I may take 8 or9 months but it's not bad too
cuz I'll suffer just for one time, I do the surgery just for one time ,,,and then I'll be taller 15cm ..
it may the dumbest decision I ever made but  any problem I would face it seems to be manageable VERY FERST STEP - INDIA - Dr. Anil Raheja,,,


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Posted on Oct 27, 2013, 12:06 am
#10
Sweden, whatever done is done.   My opinion is that

- Nothing constructive can come out of criticizing her decision at this point in time.  You may have valid points, but it's pointless now that the surgery is done.  Plus remember that reasons for doing LL is very personal, it won't make sense to others.

- I don't agree with her decision to do double surgery with external techniques, and neither do you or RussianBlues.  That's very clear and we have reasons for saying so.

- Despite all that, the best thing for now is to give support to Disobedient (be it emotional or technical information) so she gets through this.  I would also like to know who's the Doctor for general awareness, but that's up to the patient's decision to disclose.   
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